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hi, all: i have been diagnosed with idiopathic PN or CIDP -- the doctors can't tell me which it is, for sure -- and, among other symptoms, have experienced major footdrop in both feet, with the right foot being the most involved. Until a week ago, I could not tap my right foot, nor move its toes. everything was deadsville. But then a friend was over at the house and, out of the blue, said, 'dude, your toes are moving!' and, by golly, they were. All of a sudden, I could lift my right toes, clench my right toes a little, and tap my right foot, almost like old times. I have no explanation for this. I ended a 10-session IVIG treatment almost a year ago, with the doctor telling me it'd done no good, and that there was no reason to continue.
In the past month or two, the only things I've done differently are: 1/ had a spinal tap to see if it says anything about NP vs CIDP 2/ starting making breakfast shakes with a good bit of cayenne pepper 3/ started taking a small amount of adderall daily (dr prescribed to help kick start my anti-depression meds). 4/ cut back on drinking, from 3 - 4 glasses a day, to 2 - 3 glasses two or three times a week, if that. so ... do you think any of the above, alone or in combination, could be the reason for this spontaneous reversal? one final thing: i am a surfer and the reversal has had a major impact on my surfing, for the better. that's where I really notice what's happened. would ask my doc about all this but i don't see him again until the end of sept. thanks for any thoughts you might have! |
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