When I wake up in the morning, normally at 4am, I have this wonderful experience that while lying down, I dont have the pain. I dont have the very unpleasant sensation in my skin nor the throbbing and deep pain in my feet going up to my leg. I feel like I am normal. I can press my legs against the pillows and the sheet does not bother me at all. But, once I am up walking to the bathroom, then all the pain goes back. I used to have a window of like 1-2 hours of pain free after waking up when the PN is just new to me. But, now its like a switch, once I get up, the pain starts and stays all through out the day (and night).

Does anyone have similar experience?

Thank you.

I notice when waking up now I don't have much discomfort either.
And since fixing my thyroid level I can walk without pain.

Back when my PN started (30+yrs ago), I had a terrible time first walking in the morning. It was horrific, then slowly improved to dull discomfort the rest of the day. (this was my hypothyroidism at work)

My worst times now are when I first go to bed. That is when my pain and sometimes burning comes back with a bang.

When we wake up not all of our brain is really switched on, so some pain may not be registering until we are fully awake.

I think people do vary and after reading on the net I've seen all sorts of variable reported symptoms. I think we'll see others on the post, expressing that.

Yes, my wake up hour is the bet my feet ever feel. I use to have pain free days until night time but now the burning is almost constant day and night, but yes, my first hour upon waking up is the best hour of my day.


Hi Mrs D may I ask you how long it took to "fix" your thyroid for your pn to get better? Also what did you use to fix it??

I am on desicated Nature-Throid for 3 months, no help yet.

When I finally got the proper testing (radioactive uptake) showing my problems clearly, the levothyroxine took about a year to work.

By then my feet had progressed to mostly numb. They started to tingle and burn immediately as I ramped up from .025 to .075mg
over a one year period. I still have a tiny bit of numb on two toe tips, but my blood work shows good TSH and so I stay now at .075.

Thanks Mrs D! Do you have any opinion about the desicated thyroid pills, such as armour or Nature-throid??? I read alot at stopthethyroidmaddness.com and they are so against synthetics. Just wondering if you have opinions on it. thanks