have never been exposed to toxins or solvents. I haven't had antibiotics for years. I am normally fit & healthy.:)

Hi,

So sorry you are in so much pain. I have had a very similar experience: healthy conscious, runner, worked out most days, then suddenly last summer horrible heel pain that has spread now up my ankles, with sensations elsewhere in my body.

This group is a very good resource. I have found it much more helpful than doctors.

Try to stay calm and not focused on the pain because that makes it worse (VERY hard to do, I know!!!!!)
Heather

Hi Cath
 

Welcome to Neuro Talk. There are alot of us with this condition. I either have PN or RSD. I have declined an EMG, as all it will say is yeh yeh yeh to one or the other. My doc. isn't going to make me go through all that. Also there is a special lotion that helps alot. PM me for list of ingredients if you are interested. This has allowed me to get off much of the medication I have been taking for it. Sorry this happened to you. Causes, well, I don't think the doctors even know. Try to seek a specialist in this, not just a GP. I found help first with an orthopedic surgeon, who guessed the PN, then a pain specialist/ physiatrist. I wish you all the best. No, this isn't fun to have at all. I will keep you in my thought and prayers. ginnie:hug:

Hi Heather, sorry to hear that you are in pain too. Today my right ankle is really painful & I cant get it comfortable at all.

You are right about trying not to focus on the pain, & I am trying to kep busy. Its very hard though as you say.

I have learned a lot already from this forum & Im sure I will learn a lot more.
Cath x

I can't offer as much help as the others here, just wanted to add that unless your B12 levels are HIGH then I would consider taking B12. Nothing in the "normal" ranges are normal, and my B12 is off the chart high and I still take B12 cuz it helps.

My personal best advice, don't just accept anything, but research everything out, everything. Test results...look them up YOURSELF. Don't trust the word of the dr that its "normal". Research every drug, every disease, every lead.

NOBODY cares about your health as much as YOU.

I have fired 2 doctors. Yes, fired. I consider them my employee and if I am not satisfied, I leave, hence they are fired. My first dr got very testy when I questioned him on a blood pressure drug. He was giving me a very new drug and I didn't want it. He got mad, I fired him.

My second dr was great until we discovered I am HypoThyroid and she prescribed synthetic hormones, the standard drug of choice, the "normal" drug used. I didn't want it, I wanted to try desicated natural thyroid. She refused. I left, fired her and found a new dr.

My point is, you have to fight for yourself. Iam sure as a trainer you know what it means to focus and fight...well now you have to focus and fight for your health. Take charge. The internet is at your fingertips, don't just be drug along by a doctor, but be the leader. Ask the questions, read the results YOUSELF.

I am getting better everyday, thanks to MY determination, and places like this forum with amazing help. Benfontiamine has become a MIRACLE for me and healed me of feet burning, and no doctor told me that, I had to find that out for myself, here on this forum and other places.

We need doctors. I believe in them. I go to them. I have simply altered my thinking about them. Since deciding I am their boss and I am in charge of my body, my treatment, my testing and results, I have a much better result and have found a dr who is willing to work ALONG SIDE ME.

I encourage you to keep fighting the good fight and don't give up and remember...YOU ARE THE BOSS.

good luck

Go to a neurologist. Get the nerve conduction study asap. That will show at least which nerves aren't performing. You sound like you need pain relief - and they can prescribe things to help with it. You can get neuropathy and have relatively normal bloodwork. It happened to me.

I see my GP on Monday & will ask for an urgent referal to a neurologist & see if he can speeed up the nerve conduction test. I have tried lyrica which did nothing & I am now on amitriptyline, but only 10 days on that. My bloodwork was normal. Cath

Hi Stacey, I know what you mean about the doctors & I will keep researching & asking questions. As you said, no one cares about my health more than me. I am asking for an urgent referal to see a neurologist when I see my doctor on Monday.
Take care Cath

Are you not supposed to take extra B12 if it is already high in your system? It seemed like if you take the mega doses as recommended here, you will naturally get a high reading? perhaps I am wrong?

I believe Stacy is meaning the "old" lab ranges showing low numbers as normal.

Also if you have inactive B12 in your serum from supplements, and you have the MTHFR genetic mutation that prevents conversion to active methyl form, you would test higher, and still the B12 would not be working. An MMA test will reveal if your B12 is working for you. Or you could get the DNA test for the MTHFR polymorphisms.

If you are taking B12 already, it will read high in testing serum.