I thought protocol was to do a loading dose of 3-5 days. This is what I had (years ago) and others I've talked to both then and recently. It takes a while to be effective and I would guess not doing a loading dose would mean it would take even longer. I would ask your doctor next time you see him, just to get his position on why he didn't do it.

enbloc....I agree with you

ivig dosing protocol (at least with CIDP) is 2gm/kg loading dose over 3-5 days, then 0.5gm-1gm/kg every 3-4 weeks thereafter

hopeful....dunno why your neuro did not give you an initial loading dose to start with...maybe your sfn dx?

I went thru 3 years of it, and frankly, it didn't change the course of my disease and I got extremely bad headaches from it. I started to freak when my kidney function started to deteriorate. I nixed it. I don't think they know enough about how the body works. I am done being a guinea pig. I am hoping it cleaned my brain out tho, so I don't get Alzheimers.

general question to anyone

is ivig FDA approved for "pure" small fiber neuropathy?

This link has FDA approved uses, and off label uses:

http://en.wikipedia.org/wiki/Intravenous_immunoglobulin

In this link is a short statement about using IVIG to prevent Alzheimer's progression...a new study published in 2012.

I am going to ask my doctor when I see him again. It seems to me that everyone I have spoken to said they had a loading dose. I was wondering if it had anything to do with insurance. I'll find out.:)

Given the way my head felt after I had an infusion, it probably cleaned my clock pretty well.

I'm in UK and started IVIG nearly a year ago and I got started with loading dose over 5 days.