Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Ivig

Reply
Page 3 of 3 12 3
 
Thread Tools Display Modes
Old 12-07-2012, 08:54 PM #21
en bloc's Avatar
en bloc en bloc is offline
Senior Member
  
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
Default
I thought protocol was to do a loading dose of 3-5 days. This is what I had (years ago) and others I've talked to both then and recently. It takes a while to be effective and I would guess not doing a loading dose would mean it would take even longer. I would ask your doctor next time you see him, just to get his position on why he didn't do it.
en bloc is offline   Reply With QuoteReply With Quote
Old 12-08-2012, 03:06 PM #22
029anser 029anser is offline
Junior Member
  
Join Date: Jun 2012
Location: Midwest
Posts: 40
10 yr Member
029anser 029anser is offline
Junior Member
 
Join Date: Jun 2012
Location: Midwest
Posts: 40
10 yr Member
Default
enbloc....I agree with you

ivig dosing protocol (at least with CIDP) is 2gm/kg loading dose over 3-5 days, then 0.5gm-1gm/kg every 3-4 weeks thereafter

hopeful....dunno why your neuro did not give you an initial loading dose to start with...maybe your sfn dx?
029anser is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hopeful (12-11-2012), mrsD (12-08-2012)
Old 12-10-2012, 10:01 AM #23
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
  
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default
I went thru 3 years of it, and frankly, it didn't change the course of my disease and I got extremely bad headaches from it. I started to freak when my kidney function started to deteriorate. I nixed it. I don't think they know enough about how the body works. I am done being a guinea pig. I am hoping it cleaned my brain out tho, so I don't get Alzheimers.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
Old 12-10-2012, 03:52 PM #24
029anser 029anser is offline
Junior Member
  
Join Date: Jun 2012
Location: Midwest
Posts: 40
10 yr Member
029anser 029anser is offline
Junior Member
 
Join Date: Jun 2012
Location: Midwest
Posts: 40
10 yr Member
Default
general question to anyone

is ivig FDA approved for "pure" small fiber neuropathy?
029anser is offline   Reply With QuoteReply With Quote
Old 12-10-2012, 04:29 PM #25
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
  
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb
This link has FDA approved uses, and off label uses:

http://en.wikipedia.org/wiki/Intravenous_immunoglobulin

In this link is a short statement about using IVIG to prevent Alzheimer's progression...a new study published in 2012.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
029anser (12-10-2012), hopeful (12-11-2012)
Old 12-11-2012, 06:41 PM #26
hopeful hopeful is offline
Member
  
Join Date: Aug 2009
Posts: 914
15 yr Member
hopeful hopeful is offline
Member
 
Join Date: Aug 2009
Posts: 914
15 yr Member
Default
Quote:
Originally Posted by en bloc View Post
I thought protocol was to do a loading dose of 3-5 days. This is what I had (years ago) and others I've talked to both then and recently. It takes a while to be effective and I would guess not doing a loading dose would mean it would take even longer. I would ask your doctor next time you see him, just to get his position on why he didn't do it.
I am going to ask my doctor when I see him again. It seems to me that everyone I have spoken to said they had a loading dose. I was wondering if it had anything to do with insurance. I'll find out.
hopeful is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (12-14-2012)
Old 12-12-2012, 07:54 AM #27
cyclelops's Avatar
cyclelops cyclelops is offline
Magnate
  
Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
Default
Quote:
Originally Posted by mrsD View Post
This link has FDA approved uses, and off label uses:

http://en.wikipedia.org/wiki/Intravenous_immunoglobulin

In this link is a short statement about using IVIG to prevent Alzheimer's progression...a new study published in 2012.
Given the way my head felt after I had an infusion, it probably cleaned my clock pretty well.
__________________
Some days are not so good
.

.


Others not so bad:
.
cyclelops is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (12-14-2012)
Old 12-14-2012, 02:35 PM #28
villier villier is offline
Junior Member
  
Join Date: Sep 2010
Location: Loch Lomond Scotland
Posts: 60
10 yr Member
villier villier is offline
Junior Member
 
Join Date: Sep 2010
Location: Loch Lomond Scotland
Posts: 60
10 yr Member
Default
I'm in UK and started IVIG nearly a year ago and I got started with loading dose over 5 days.
villier is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mrsD (12-14-2012)
Reply
Page 3 of 3 12 3

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Ivig mrsD PN Tips, Resources, Supplements & Other Treatments 1 06-06-2015 12:43 PM
Ivig tysondouglass Myasthenia Gravis 2 04-21-2011 07:24 AM
Ivig brandonc Myasthenia Gravis 11 02-04-2011 12:48 AM
Rn's and IVIG's JCPA Myasthenia Gravis 8 10-23-2009 07:52 PM
IVIg matt's sis Myasthenia Gravis 3 03-04-2009 04:13 PM


All times are GMT -5. The time now is 12:25 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home