I spoke with my rheumo this morning. He wants me to start on Savella. I haven't looked it up yet but I will try it. He said he will start at very low dose because he knows I hate meds. I asked him if this wer him would he go without a diagnosis or would he keeps looking. He said You do have a diagnosis. It is SFN. I said yes but if it were you and someone told you it was idiopathic would you take that or keep looking. He recommended I see a Dr. at Drexel who is a neuromuscular doc. Says it will take me a long time to get an appt. but I'll try the med route until I see her. Hopeful

This is sounding similar to the way my PN is progressing. I've been doing 4 to 6 miles a day either trail hiking or walk-jog-walk on streets -- but lately my leg muscles feel rubbery and stiff, and hurt sometimes. My knees hurt like heck sometimes, though icing after the workout helps a lot. It's not "overdoing it" because I've been working out like this for a long time, and the hurt is new.

I'm going to a new doc next week, with a list of questions on exercise and muscle wasting -- I'll share anything useful.

pain
 

Anyone taken a fluoroquinolone? (Cipro, Levaquin, Avelox) read up on them, your pain could be caused by this. I've been in pain for over 8 months now because of Levaquin.

Did he give you a reason why he wants you on Savella? Savella seems to help with burning and allodynia but alot of people cant tolerate the drug. I myself was thinking about trying it as cymbalta did nothing for my burning pain but I dont seem to have luck with TCA's or SNRI's.

He did not give me a reason for the Savella. I finally worked up the courage to start it on Sunday. I thinks it is making my symptoms more pronounced. Especially the burning. He did not say it was for the burning but for the weakness. He gave me Savella becuase we had tried the lyrica and I could not take it. I am going to try it for at least two weeks. I had the same reaction when I starated Cymbalta but the symptoms went away. Cymbalta helps me alot. The Savella is at the lowest dose possible so he thinks it is OK with the cymbalta. hopeful

Did your doctor tell you to take BOTH Cymbalta and Savella?

That is a MAJOR drug interaction and not safe:

http://www.drugs.com/interactions-ch...273,3101-13615

I am surprised the Pharmacy let you have them!

Not sure why he would RX two SNRI's.

Usually they add lyrica or gabapentin as those drugs have synergy with TCA's and SNRI's. So what it dose is make the cymbalta work better or make it work at a lower dose.