[bananababe]

Can anyone recommend a neurologist in the chicago area? I have seen two (one from U of IL) and been disappointed with their response to wait and see if it gets worse or goes away. It is clear to me that the PN is getting worse and I have not yet found a cause or a doctor who knows any of the stuff I've learned from this forum. I'd appreciate a recommendation if anyone has one.

thanks

[echoes long ago]

Jack Miller center in Chicago specializes in peripheral neuropathy

[bananababe]

Thanks, I will check them out!

[FlyingSquirrel]

Dr. Roos is the director at Jack Miller, his phone number is 773-702-5659. Good luck!

[bananababe]

Thank you very much! I have just sent in my records and information and will try to wait patiently until I hear back.

[bananababe]

So I couldn't get in with Dr Roos. He sent me back to general neurology, which I was very disappointed about. I was able to get an appointment last thursday with a neurologist. Luckily, I didn't have high expectations since I thought it was Dr Roos who I should've been seeing. They explained that Dr Roos specializes in MS, ALS and loss of sensation. I have PN but all hypersensitivity with tingling and burning and no loss of sensation. The internist and neurologist at U of Chicago were nice but said the same thing I have heard many times now which is my symptoms are not "worrying" because they can see no obvious cause (I have no abnormalities in my bloodwork, EMG/NCV and MRIs) and my symptoms do not coincide with any specific conditions, other than PN.

I been told by my podiatrist, psychiatrist and primary care to keep looking, there has to be a cause but when you go to the experts they tell you it's about pain management. It's hard to get both kinds of responses because on the one hand, I need the hope that something can be done or figured out because I agree, how can you be very active and healthy and at 32 suddenly have all this pain? But then the hope gets dashed every time in a less than sensitive way by the neurologists:

"You're lucky the gabapentin is helping"
"It doesn't sound like it's progressing" after I've just described how it is
"Why are you upset?"
"Your symptoms are not worrying" - to whom??

Those responses only make sense to me now that I know my symptoms are not markers for something worse. However, they are so discouraging when given without context and further explanation.

Plus, I am convinced that neurologists know less than this forum about PN.