[NeuroMystery]

I'll try to keep this as suscinct as possible:

* Exposed to Hep B last year. Given HBIG Hep B postexposure prophylaxis shot to prevent infection.
* Given Hep B vaccine - 3 shots finished Feb 2012.
* Exposed to HIV Feb 2012 (dont ask).
* Given powerful toxic post-exposure prophylaxis pills to prevent HIV infection (AZT/Kaletra/Zidovudine) for 30 days. (it worked).
* After completing meds, when not well rested, fatigue attacks.
* Instant weakness and chills that flow over me, especially in the legs.
* Lasts a few hours to a few days.
* Upon getting good sleep - completely gone the next morning.

This would repeat every few weeks for a handful of months.
Blood tests showed all normal with minor imbalances of poor red blood cell production, but barely out of range so docs not concerned.
ANA, thyroid, etc all normal. Epsein Barr: Positive for past infection
Cat Scratch: Positive past infection.

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July:

* Bouts of weakness stopped as sufficient rest was occurring.
* Hangover recovery very poor. Minimum 3-4 days until felt better.

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September:

* Found swollen painful gland in groin. No other symptoms.
* 4 days later flu-like symptoms. Low grade fever (100). Spine pain/aching between shoulders, up neck.
* Profuse sweating during the daytime, during inactivity.
* Put on Augmentin 875 due to lack of visible herpes lesions. Assumed bacterial.
* Felt better in a couple days.
* Back/spine aching returned. Felt like crap. Assumed it was the Augmentin. Quit early at 8 of 10 days.
* Felt immediately better.
* Candida overgrowth? Intense gas (every 30 seconds) for a couple days. Burning eyes, itching skin, burning lips.
* Burning eyes, bad Gas, burning lips, itchy skin, and redness appeared in corner of mouth. No sensation unless pressed. No lesion or fluid filled. Went away with gas 2 days later. Assumed candida related.

* Changed diet to eliminate sugars, sodium, caffeine etc. Started probiotics.
* Felt better few days later.

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Mid Sept:

* Continued new diet of zero sugar, salt, and caffeine.
* Increased water intake to 1 gallon a day, working out hard.
* Reduced supplements to 1 multivitamin and nothing else.
* Solid breakfast, but only eggwhites all day, maybe chicken salad at night. Protein shake.
* Lost my minor belly, began heavy ab workouts. Looking great. Dropped body fat fast with sugar block.
* Developed migraines that would appear every evening at 8pm.
* Migraines at night lasted a solid week and a half.

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Current:

* 14 days ago: Left finger begins twitching. Then left arm muscle.
* Top of left foot goes numb. Pins and needles followed by "cool" washing over feeling from knee down for a half hour.
* Discomfort walking on left foot lasts a couple days.
* Twitching spreads to minor fasculations all over body. Arms, above ears, legs, back of calves.
* Even laying down on pillow, would hear vibration like moth in ear - muscle spasms around eardrum.
* Bodywide twitching continues for 12 days.
* Decide to drop the diet and start taking sodium in again.
Electrolytes. Had a foot long subway and the twitching stopped all day. First time.
* Twitching/spasms Returned at bed time.

Tested for magnesium, glucose, electrolytes - all normal. Probably should have tested before fixing diet. Blood glucose was slightly elevated (100) but i had just drank a Gatorade ...

* Continued new diet and electrolyte and magnesium potassium supplementation.
* Twitching noticeably worse even with 1 hour less sleep.
* If fully rested, twitching bad in the morning - with cessation from noon till 8pm.
* Twitching return at night.
* Any physical exertion / exercise brings them back.
* Neuropathy in foot seemed to progress a little.
* Developed severe sensitivity to temperature in hands and feet.
* Couldn’t drive as left foot felt swollen and blisteringly hot. Needed to take off shoes.
* Holding cold water bottle with hands felt like they were touching an ice cube. Fingers bright red after.
* Continued spine aching between shoulder blades is only other symptom.

Tested for Lyme ELISA - came back positive. Went to Urgent care - given Doxycycline assuming Neuro Lyme symptoms.

* Within 5 days on Doxy, neuropathy symptoms seemed to reduce. Twitching seems to reduce. No loger twitch like crazy when laying down to bed. Still have it in the morning however. Breaks during the day.
* Increase in arthritic symptoms after starting doxy. Painful joints, knee, fingers, neck. Unable to drive car as finger joints hurt when steering. Cant turn neck All transient, goes away within several hours, goes to another joint.
* Lyme proponents telling me this is "Herxing" symptoms of die off...
* Eating right, supplementing, and resting a lot.
* Continued aching in spine between shoulder blades.

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Oct 1: Current

Western Blot Lyme - only one band positive (28 IGG). CDC calls this a negative.

* 7 days on Doxy - twitching continuing to decrease.
* Neuropathy gone. But returned today while walking around store.
* Temperature sensitivity is less.
* Joint issues continuing but seem less.

* Have lost over 14lbs since Sept 1.
* Lack of sugar in diet? No idea ...
* Wasn’t fat in the first place. Went from 36 waist to 32 in three weeks.

Brain MRI scheduled for Tuesday
Spine CT scheduled for Tuesday
EMG scheduled for Thursday

Depressed. Confused. Im 38 years old. I exercise 3-4 times a week. I eat right (to the point that people make fun of me) with periodic binges on pizza and oreos. Dropped all sugar. Dont understand the 15lbs of weight loss in 1 month. Im 6ft was 198, now I am 183. No explanation. Haven't stopped eating. First worried it was primary herpes neuropathy, then thought about ALS but dont have marked weakness in limbs. Then thought it was benign fasciulation sydrome (BFS), then Lyme because of the positive Elisa, then Not lyme because of the negative Western Blot, then maybe Diabetes, but bodywide twitching unusual at this stage. Really at a loss. ....