Jak, if it was me i would give these doc's the big flick, & find doc's that are willing to help you, if they can't then they should send you to someone who is trained in this field, like a pain doctor.
Its a disgrace to leave you in terrible pain & do nothing for you, looks like you will have to get the ball rolling yourself, by the looks of it.
All of this must be affecting your emotional status and certainly would be aggravating your PN more so.
good luck
Brian :)

Jak, your pain is no less than ours!
 

Jak,
Just becuase your pain is "only" in your feet doesn't make it any less than any one elses! The reality of it all is... your life has changed forever! Who you are as a person has been taken away from you. That is what hurts.

That is the first hurdle we have to face when we are diagnosed with this. For me, it was the hardest. Then, it's adjusting to dealing with the changes in lifestyle. This group here has been so incredibly supportive in helping me!

Keep asking questions, no matter how goofy you think they are, keep reading posts, and keep venting when you need to. If you don't believe me, go back and read some of our old posts. I've vented a LOT on here! I'm a single woman and I've vented about not being able to find a man who will accept me like this, about not being able to take care of my kids, about lots of things... it's hard to adjust to being "different" than we were before!

A friend of mine here at work says "I shouldn't complain about the pain in my feet when the man next to me has no feet!" But I say, if your job is to go and get the food for the man with no feet, you darned sure can complain about the pain in your feet! It all depends on your perspective!

Everyone has a right to complain and we are all here to help each other through it.

Good Luck, and we hope to hear a LOT more from you!

jak
 

Go back and read the 5 stages jo 55 posted. Please learn them because
someday you wil be able to tell them to another in pain.If nothing else,
your concern for them,may begin there healing!!And back to what goes
around comes around.

I've been dealing with polyneoropathes probably far longer then i know are
care to know ( there here ) it's back to one day at a time..I live by a big
teaching hospial.I was a nurse in bigger one's.But was toally surprised there
was no support group for PNers..What i know the call it the silent deseae.
Come on 3 hospitals a great rehab!! Go to arthritis support or this or that.
:) Even have one Dr. who was very busy as me to refresh his menory
on PR, I threw everything my record, my notes ohis desk. Almost wore me
out!! I told i can wait while you have these copied,and then you can read
it all tonight.:) thought there is another waste of my time.He did have
them copied. Hmm!!

My Neuro Dr. said go on-line and 2 years later i did..But first i wanted to
start a support group for those who had no computer or could not afford
affore them.

I called a chaplain friend ,asked if he could help and 2 nurse friends We
decided when,where and how many we could handle. Stared putting up
posters.We decided we could start out with 10 but nobody called:( at
the last min.to many did,we had a large waiting list.We went from a church
to the teaching hospital..The supprt group made the rules..The support
allowed Dr. and nurses could monitor (be quiet) they did and i hope
learned..I :( have beeen asked to start one at another hospital but i have
learned to PACE myself i said no!!But there it someone who will.

I learned acceptance,if you need to vent i would ratter do it in front of
the people at Neuro talk or in the supprt group,not to 3 children who love
me.I think if you put your energy in something you can still do,well anyway
it helped.I reached out and asked for help,also hard for me s.But you must,
tell your family these is a very bad i know you can't cure me but please
won't you take the time to lsten..I'm sure they will and tell them the 5
stages..And i think you just might make it to acceptance then you can get
on and do many things that make you pround and yes happy.

Not all Neuro Dr. could a hoot about PN you got 1. Having a Hmo can put
a limit on who can see,but don't put a limit on what you can do.Get out
and find your place it's there,and your here getting great advice.
Do you know how many eldery are sent home to suffer because a Dr. has
said (your just old) :mad: That should be answered and your (stupid)!!

What i'm tying to say it's your foot it hurts vent.:)..My youngest son has
his 30 yr. old sister-law who has been throgh PN for 2 yrs..They live in your
area,she was very sucessful at everything she has ever done she had to

darn
 

Sorry that one got away from my acking finger!!:D

She had to go on disabiliby,for a short time..But it gave her the time
to get the help she needed no shame she is back working part time.
It helped her get the right medical help..Jak look at all the people reaching
out to you!!There is always walking it gives you time to look around.
I believe walkers,wheelchairs canes doesn't matter attitude does.:)
Many blessings..:grouphug: Sue

Oh Boy
 

I'm somewhat afraid to totally vent...there is an individual who has been a resident poster on the old site...and this one...who did not take kindly to my complaining....This individual said that all I did was complain and never gave input into other peoples situations....this person really did make me gun shy...and "this" individual has not spoken to me since. I do feel a tad hurt. Because "this" person has had major feedback on both websites. So....I think I will just chill.....and try not to aggravate anybody. I hope that my pain doesn't get any worse....and I will wait to see if my doctor will approve narcotics with me signing a contract. I only hope!

If we can't vent here, I'm in BIG trouble!
 

Hey, if we can't vent here, I'm in BIG trouble! I don't want to lay my problems on my kids. I come here to ask questions. I come here to find out how others deal with the issues. Are you kidding? This crap has changed my world and the people here are the only ones that "get" what I'm going through. If I can't vent here, then I'm in the wrong place! If they don't want to hear/read it, then don't read it! It's just like the T.V. change the channel...

Jak,
I hope that you didbn't think I was saying anything other than you've got to find a doc willing to work witth you, and get your priorities straigh.
Don't bother with anything but just pain control was my only message for you.
I wasn't the one telling you to stop your vent.
This is a place for it.
Its also a place to get suggestions, to implement -for your own situation.
We hope the suggestions help, not hinder.

I think you need a plate of my honey chicken, garlic artichokes, sweet patatas and of course a lovely blueberry banana muffin.

With a nice cup of my coffee.

Yessir: perk you right up!!!!

lol
Melody

Can I get your Muffin recipe Mel?
 

I've been thinking about those muffins all week long... and wondering if I can get the recipe! Can you post it?

Happy Muffin Making
 

Here you go. Simple as Pie.

Take two little boxes of Blueberry Muffin mix. Down here it's Jiffy Muffin Mix.
You can use any of them. Banana Walnut, Blueberry, etc.

Anyone will do. Alan and I like the blueberry one.

Preheat oven to 400 degrees

Using two boxes, empty boxes and put into mixing bowl.
One half cup of skim milk.
One half cup of egg beaters (or two eggs, if you prefer).
4 packets of splenda
A dash of Sugar Free Maple Syrup (sweetened with Splenda) not anything else.
Mix all this up in the bowl.

Now to this mixture, you can add a small box of raisins, a chopped up banana (what ever you like).

But the thing that makes it very moist is the "no sugar added" applesauce.

I buy the 6 pack and open one of the little individal packs of Natural Applesauce and I scoop it right in the batter.

Mix it thoroughly.

Now get two muffin pans or do what I do (I use a big 12 muffin pan thing).

I spray it with PAM so nothing will stick.

I then (using a ladle), pour almost to the top of each muffin thing. See the box says to pour in the batter half way so it rises to the top. But I don't do that.

I pour it almost to the top so as it rises it overflows ever so slightly making these adorable rims over the muffins.


Cook only 15 minutes.!!!!!

I make 12 muffins out of this. When they come out of the oven, let them cool a bit.

Using a wide knife kind of thing, gently pry each muffin out of it's thing.

Put on a platter and you're good to go.

YOU MUST TELL ME HOW YOU LIKE THESE.

Oh, when I am using a banana, I make the batter, put the batter in the muffin tray things, and I slice up the banana thinly and I drop three slices of banana into each muffin thing. Then I stick two or three raisins on top.
You can make endless variations on these.

As it cooks, you see bits of banana in the muffins. Really cool looking.

Alan goes nuts. I made a batch today. He just had two of them.


AND HERE THEY ARE!!!!

http://i73.photobucket.com/albums/i2...elsmuffins.jpg