advertisement
Reply
 
Thread Tools Display Modes
Old 04-17-2007, 09:24 PM #1
jakatak jakatak is offline
member
 
Join Date: Apr 2007
Posts: 249
15 yr Member
jakatak jakatak is offline
member
 
Join Date: Apr 2007
Posts: 249
15 yr Member
Default Don't have the will to deal with it

After being in such great shape my whole life....running marathons....exercising daily....always being in great shape....I contract this crappy foot condition....nobody has the answers....I get two nerves sliced out of my feet...and they just get worse....my wife says....there's nothing we can do....you have to deal with it.....I can't...I'm not a warrior....I don't like the 24/7 pain and burning....I'm sick of it!!!!
jakatak is offline   Reply With QuoteReply With Quote

advertisement
Old 04-17-2007, 10:20 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,678
15 yr Member
Default

did the Drs slice nerves out of your feet??
are they sure it is PN only and not RSD too?
we have a RSD forum if you would like to read about that.
http://neurotalk.psychcentral.com/showthread.php?t=247
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 04-18-2007, 12:49 AM #3
Wing42's Avatar
Wing42 Wing42 is offline
Member
 
Join Date: Aug 2006
Location: San Diego
Posts: 365
15 yr Member
Wing42 Wing42 is offline
Member
Wing42's Avatar
 
Join Date: Aug 2006
Location: San Diego
Posts: 365
15 yr Member
Default

Quote:
Originally Posted by jakatak View Post
After being in such great shape my whole life....running marathons....exercising daily....always being in great shape....I contract this crappy foot condition....nobody has the answers....I get two nerves sliced out of my feet...and they just get worse....my wife says....there's nothing we can do....you have to deal with it.....I can't...I'm not a warrior....I don't like the 24/7 pain and burning....I'm sick of it!!!!
How horrible. I went through the same thing...from runner and backpacker, to decrepit. Those early years were horrible. Fear of what the future held and being adrift with no direction or hope was as bad as the pain.

There is nothing in your profile about where you live. If you put it in as part of your profile there might be a good doctor or pain program in your area that somebody here can tell you about.

There are other things that can help you cope and help you heal. I've harped on the Rebuilder for years, and don't want to be like a broken record, but it's worth a try. After less than a month of my use of it, the sharp edge was off the metatarsal pain, though I still couldn't really walk. At least I was sleeping most of the night. These electric units cause the release of endorphins which quiet the nerves and promote healing.

Just know that we care about you, and will do all we can through this weird cyberworld to support you and to promote your recovery. Please be patient. You're wounded from the surgery and it takes time to heal. You've hit bottom now, but things will get better.
__________________
David - Idiopathic polyneuropathy since 1993
"If you trust Google more than your doctor, than maybe it's time to switch doctors" Jadelr and Cristina Cordova, "Chasing Windmills"
Wing42 is offline   Reply With QuoteReply With Quote
Old 04-18-2007, 10:19 AM #4
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default

David:
I have a question about the rebuilder. I understand the principle behind it. You put your feet in a basin of water, you put the electrodes in the water, and a gentle current does something and helps the nerves, right?

Now how is this different than the snakeoil people who were trying to sell a ionizing foot bath thing (the video of this is on my thread about foot patches). Someone put in a link that shows a video of two ladies in white lab coats preaching about this water basin that you put your feet in and they put in two electrodes and the water changes color which tells you that toxins are coming out of your body.

So here you have essentially the same scenario. A water basin, electrodes and feet. The only difference is the rebuilder doesn't change the color of the water and it supposed to help the nerves.


In the video (with the lady in the lab coats), you have the exact same scenario, a water basin, feet in the water and two electrodes.

So how is the rebuilder different?

Thanks much.
Melody
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline   Reply With QuoteReply With Quote
Old 04-18-2007, 09:08 PM #5
Aussie99's Avatar
Aussie99 Aussie99 is offline
Member
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Aussie99 Aussie99 is offline
Member
Aussie99's Avatar
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Lightbulb Good question Mel!

Not sure of answer... but?
Aussie99 is offline   Reply With QuoteReply With Quote
Old 04-18-2007, 09:58 PM #6
Wing42's Avatar
Wing42 Wing42 is offline
Member
 
Join Date: Aug 2006
Location: San Diego
Posts: 365
15 yr Member
Wing42 Wing42 is offline
Member
Wing42's Avatar
 
Join Date: Aug 2006
Location: San Diego
Posts: 365
15 yr Member
Default

Quote:
Originally Posted by MelodyL View Post
David:...
I have a question about the rebuilder. I understand the principle behind it. You put your feet in a basin of water, you put the electrodes in the water, and a gentle current does something and helps the nerves, right?
...
So here you have essentially the same scenario. A water basin, electrodes and feet. The only difference is the rebuilder doesn't change the color of the water and it supposed to help the nerves.
...
In the video (with the lady in the lab coats), you have the exact same scenario, a water basin, feet in the water and two electrodes.

So how is the rebuilder different?

Thanks much.
Melody
You are using language inaccurately so your thinking is not accurate.

Putting your feet in a basin of water with electrodes is a procedure, not a principle.

The principle behind the Rebuilder, TENS, and similar apparatus is to apply a gentle direct electric current of specific shape and frequency to 1) stimulate the nerves to fire in a specific pattern which has been experimentally found to be healing, reestablishing of synaptic integrity, and/or pain relieving, and/or to 2) stimulate certain muscles to fire with a specific pattern and amplitude to exercise them, heal them, and improve blood circulation. The Rebuilder and other electric stimulation units are often used with pasted on electrodes rather than the water bath. I think that the water bath works better because the current is spread more evenly over a wider area, and you absorb a small amount of the Epsom salts which is therapeutic in it's own right.

You do not have the same scenario, "essentially". One is a sales pitch for a procedure of unknown effectiveness. The other is the real thing you do at home or that a physical therapist does to help relieve pain and help healing. It works for animals with damaged nerves or nerve endings and I don't think they fall for sales pitches. The water changing color is a feature that the Rebuilder, TENS, etc. don't have. Too bad, that would be soooo coooool!

You do not have "the exact same" scenario. One difference is that one is bogus and the other not. You breathe in and out, "the exact same" as John Edwards. Does that mean you are extremely wealthy, male, have great hair and a million dollar smile? Of course not. Nobody but John Edwards breathes in and out "the exact same" as John Edwards. The words are "the exact same", but the reality is that they are not "the exact same".

You can say that a tabby cat walks and hunts "the exact same" way a leopard does. That isn't true. Just because the words "loose jointed walk" and "stalking and pouncing" are used for both doesn't make a tabby cat a leopard. In other words, don't confuse words with reality or pictures with reality. Words and pictures can be the exact same or similar, but the reality behind them can be as different as Adolf Hitler compared to Mel Brooks playing Adolf Hitler in "To Be or Not To Be."

There is a lot of experimental and clinical research with positive results using electric stimulation to heal and reduce pain in damaged nerves and nerve endings. You can get an idea from reading the sites at http://www.google.com/search?hl=en&s...on&btnG=Search

Here's a few thousand medical and biological journal articles if you need more convincing: http://scholar.google.com/scholar?q=...r=&btnG=Search

I'm sure that other units works as well or better than the Rebuilder. The difference is the good experience of me and others on this and the previous forum with the Rebuilder. I can't recommend others that I haven't tried. Some people in the old forum had good results with the similar Rejuvenator, but that company seems to have gone out of business.

My physical therapist used a great unit that concentrates the stimulation in an area between the electrodes, in an interference pattern. But, the ones my physical therapist use cost several thousand dollars each, require certification to buy, and training to use properly. In contrast, the Rebuilder costs hundreds and the only training needed is the video that you found so amusing.
__________________
David - Idiopathic polyneuropathy since 1993
"If you trust Google more than your doctor, than maybe it's time to switch doctors" Jadelr and Cristina Cordova, "Chasing Windmills"

Last edited by Wing42; 04-19-2007 at 12:31 AM.
Wing42 is offline   Reply With QuoteReply With Quote
Old 04-18-2007, 10:49 PM #7
LizaJane's Avatar
LizaJane LizaJane is offline
Member
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
LizaJane LizaJane is offline
Member
LizaJane's Avatar
 
Join Date: Aug 2006
Location: Brooklyn, NY
Posts: 805
15 yr Member
Default

Risking having my note to you ignored, yet again, I will offer the same suggestion, for others to read at least, if you still are unhappy to hear advice.

Cymbalta is a very good medication for those of us who are down, discouraged and in pain. It helps both mood and pain. If you are finding yourself demoralized by the pain, that will make the pain worse, which will then make mood worse. The SNRIs seem particularly helpful with this. Effexor and Cymbalta are those. Provigil added to an SSRI also works, but most insurance plans probably wouldn't okay it if one of the others hasn't been tried first.

There, Jack, I've said it again.
__________________
LizaJane


.


--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
LizaJane is offline   Reply With QuoteReply With Quote
Old 04-19-2007, 05:57 AM #8
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb David...

You can buy an IFc unit fairly inexpensively:

http://www.healiohealth.com/tek9.asp...cific=jnnrmmm8

I have one. (there are 3 other types on that site)
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 04-19-2007, 12:36 PM #9
Wing42's Avatar
Wing42 Wing42 is offline
Member
 
Join Date: Aug 2006
Location: San Diego
Posts: 365
15 yr Member
Wing42 Wing42 is offline
Member
Wing42's Avatar
 
Join Date: Aug 2006
Location: San Diego
Posts: 365
15 yr Member
Default Thanks MrsD.

That's a lot cheaper than the Rebuilder. Have you used it for nerve pain? Have you tried it with an Epsom salt divided foot bath?

The wave form is similar to the 4 lead unit my physical therapist used for extreme muscle spasms and pain caused by a herniated cervical disk, and for piriformis syndrome. That was extremely effective and soothing. He used 4 leads for my shoulder, and 2 for the piriformis pain, one on each end.

I would guess that interferential therapy would be equally soothing and healing for nerve pain. One thing that struck me going through some of the research on electrotherapy is that many different forms of electrotherapy promoted healing and reduced pain. I'm not at all convinced that the Rebuilder 7.83 Hz. pulse works better than TENS, EMS, or interferential stimulation. Again, I can recommend the Rebuilder based on experience, but realize that other units may work as well or better. It may be worthwhile to do a separate thread on electrotherapy to see what has been helping people.

For people with access to medical journals, here's a list of recent studies: http://www.electrotherapy.org/recentrefs.htm
__________________
David - Idiopathic polyneuropathy since 1993
"If you trust Google more than your doctor, than maybe it's time to switch doctors" Jadelr and Cristina Cordova, "Chasing Windmills"

Last edited by Wing42; 04-19-2007 at 01:49 PM.
Wing42 is offline   Reply With QuoteReply With Quote
Old 04-19-2007, 03:37 PM #10
jakatak jakatak is offline
member
 
Join Date: Apr 2007
Posts: 249
15 yr Member
jakatak jakatak is offline
member
 
Join Date: Apr 2007
Posts: 249
15 yr Member
Default

Quote:
Originally Posted by Wing42 View Post
How horrible. I went through the same thing...from runner and backpacker, to decrepit. Those early years were horrible. Fear of what the future held and being adrift with no direction or hope was as bad as the pain.

There is nothing in your profile about where you live. If you put it in as part of your profile there might be a good doctor or pain program in your area that somebody here can tell you about.

There are other things that can help you cope and help you heal. I've harped on the Rebuilder for years, and don't want to be like a broken record, but it's worth a try. After less than a month of my use of it, the sharp edge was off the metatarsal pain, though I still couldn't really walk. At least I was sleeping most of the night. These electric units cause the release of endorphins which quiet the nerves and promote healing.

Just know that we care about you, and will do all we can through this weird cyberworld to support you and to promote your recovery. Please be patient. You're wounded from the surgery and it takes time to heal. You've hit bottom now, but things will get better.
If I'm not mistaken...didn't you also have neuroma surgery? I'm thinking, that you chunk out a piece of nerve in both feet...and my right foot became infected..so they opened it up again, and packed it and put my on IV meds for three days. Taking that packing out was the worst pain I have experienced in my life....but it healed and the scar tissue has left my second and third toes spread far apart. Residual nerve damage? Peter paying Paul?
jakatak is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone deal with jaw problems? InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 11 10-04-2008 03:37 AM
How do you deal with panic/anxiety? Pamster Bipolar Disorder 11 04-05-2007 11:44 AM
Do any of you deal with allergies and what symptoms? dreambeliever128 Reflex Sympathetic Dystrophy (RSD and CRPS) 10 03-31-2007 08:20 PM
I can't deal with this trix Thoracic Outlet Syndrome 10 09-27-2006 10:06 PM


All times are GMT -5. The time now is 01:08 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.