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For example if you tell them you drink alcohol...and you are not diabetic...bingo they will diagnose alcohol induced neuropathy. This eagerness however is blind to documented DRUG induced neuropathies, because doctors don't want to get involved in blaming a previous (or same self doctor) for giving you a drug that caused PN. They are very reluctant to blame each other. But they will blame alcohol for people for have been sober for years... we had one person who was sober for 20 yrs and still was given the alcoholic diagnosis! The closest I can come to any useful info is this drug plugged into http://www.drugcite.com/?q=coumadin These are FDA reported side effects: expanding neurological gives this: Quote:
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Thank you again, MrsD. You are a font of good information, and I have come to a better understanding of my condition thru the efforts of you and other members of this site.
Unfortunately today is a sad day. I just visited with my Neurologist. I have not had any noticable improvement in my hands or feet/lower legs (numbness/tingling/loss of tactile) for several weeks now. We haven't gotten the blood work results back yet (or they are at my primary doctors office - i just left them a message), but he says given the lack of progress, I should start thinking of this as a permanent condition, and start working with social security to be declared disabled. The car conversion is going to run $2k-$3k which I cannot afford at this point, so I'm stuck not driving. Nearest bus stop is 1/2 a mile down a steep winding hill. Short term disability lasts until 2/16/13, then its up to the insurance board to decide if I qualify for long term (which per their guidelines I likely dont because I can walk, bathe, shower, eat), but without my fingers to type well, my career is over. Peace and joy to all of you, and thank you again for your help. I wish you all the best. /Bob |
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One word Bob: telecommute Fins up and solve that problem, life goes on and it goes on well !!! |
Let's see what turns up on the last testing.
I assume you had immune globulins tested? ANAs and all that stuff? Let us know what your vitamins tested at also. Some PNs can be turned around with supplements. But if you have a hereditary type, you will be stuck as there are no treatments for those. There are voice activated softwares all over now. ;) |
A clue
Well it has taken a longer time than I expected to get results back and try to progress my PN. Today, I think I got a big clue though.
I requested a new neurologist because my old one could never answer why, and had essentially given up on me, trying to refer me to other doctors who arent even available until March. Fortunately my primary care physician doesnt tolerate that well either, and I'm working towards a new appointment with my new neurologist, who is one of Seattles 50 best doctors 5 years running. However, we also finally got the results of all that bloodwork back, and while I dont have the full report yet (I'll get it on Tuesday), turns out my Vitamin D is way low. Came back at 12, and my understanding is the normal range is 30-100. Mind you, I'm already on a daily supplement that contains 800IU of D3 (Cholecalciferol) and was on that when the blood was drawn. My PCP is sending in a prescription for a mega D suppement, which I should go pick up in a few hours. Too bad you're not my neurologist, MrsD, you'd of nailed this on the first day. Now lets just see if this does the trick. Thank you all again for your support and love. /Bob |
The RX your doctor is writing won't work. (unless it is D3)
All RX D is D2 which is not active in humans. The new normal is 50 not 30. The general rule is 1000IU D3 for every 10 points needed to raise. Let's say you are 10 so you will need 4,000 IU D3 daily and get retested in 3 months or so. If you take what doctor orders...the RX D2, high dose, nothing much will happen and you will not progress: This explains more in detail: http://articles.mercola.com/sites/ar...d-mistake.aspx Getting the testing was good. But sadly doctors don't treat the results properly yet. D3 is OTC and not expensive. You can get any type you want. I get mine at Puritan's Pride, online for pennies a day. |
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another interesting read regarding D2 vs D3. In this case, the doctor has prescribed the following:
Vitamin D (Ergocalcifero) 50,000 IU CAPS with a dosage of 1/week. I have ordered D3, as Ergocalcifero is D2 (Fat soluable), PP 5000 IU. I have a Dr appointment tuesday 11/13 and will discuss D2 vs D3, and whether we want to change this. Can a person take too much D (say I took both the D2 1/week and the D3 daily)? /Bob |
I predict your doctor won't know at all about the two versions.
If you take D3, you won't need the other at all. The only reason the doctors order it, is because it remains in their old outdated therapeutic references. You can go ahead and take it. But don't expect much from it. Quote:
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http://neurotalk.psychcentral.com/thread92116.html Now is the time before your next appointment.;) Things are changing rapidly about Vit D supplementation. It will be a while yet for doctors to understand it all. It is not unlike the poor interpretation of B12 levels, which continue now a decade later inspite of medical continuing education to the contrary about making 400pg/ml the new low for humans. This article on THAT from 2003, written for doctors: http://www.aafp.org/afp/2003/0301/p979.html There are still doctors who don't understand ORAL B12 treatments today. :rolleyes: And BTW both forms are fat soluble. I can't see any reason for using D2 (ergocalciferol) today at all. D3 is even less expensive. |
Ok back from the latest checkup. Actually my Dr did know the D2/D3 issue, and requested D3 - apparently the pharmacy filled it as D2. We discussed, I'll be ceasing the D2 and start taking 10,000IU/day of D3.
Most of the other blood numbers are in Vit A 0.39 mg/L (in range) Vit B1 whole blood 163 nmol/L (in range) Vit B6 75.4 ng/mL (high) Vit B12 303 pg/mL (in range) Vit D 12 ng/mL (insufficiency) Cadmium <0.3 ug/L (in range) T&H 1.93 uIU/mL (in range) Arsenic whole blood <10.0 ug/L (in range, but a bit high) Lead whole blood <2.0 ug/dL (in range) Mercury whole blood 4 ug/L (in range) Pending: B3, B5, B7 Finding a decent neurologist is being difficult - my doctor said, humerously, most neurologist suffer from Ashburies :) the point being, not many go into the field. The new neurologist just reviewed my chart and also wants to send me to UofW, but my primary care wont accept that the waiting list is into March. Since he knows the other neurologist he recommended, he's going to call them and they're going to have a 'chat' about my case, and he's "sicking his bulldog" (one of his med techs) on the folks at UofW until they agree to see me. Some speech recognition software and a $3k hand control unit for the brakes on my car, and I may even be able to get back to work. Hanging on... and thanks again! /Bob |
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