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-   -   25 year old male. very scared. (https://www.neurotalk.org/peripheral-neuropathy/178630-25-male-scared.html)

mrsD 11-21-2012 05:26 PM

@jesse

How is your math? 198mg/2 tablets OTC potassium = approximately 4% of your daily intake recommendation.
4700mg a day is alot. You need to eat good food to get this amount.

I've given this website many times...it is very helpful to
find foods high in nutrients that you may be missing:

http://nutritiondata.self.com/

You need to stop this obsession with micro amounts of B6 in common foods. It is inhibiting you from other nutrients you need on a daily basis.

If you are low in potassium it is because of a medical reason:
kidney functions predominately, but also a very poor diet.
Severe chronic diarrhea will also lower serum potasssium, as will some drugs. (steroids, some antibiotics, diuretics are the most common).

Our bodies conserve and maintain/balance potassium critically...once something begins to lower it, you need to pay attention to that.

1 cup of mashed banana:
http://nutritiondata.self.com/facts/...-juices/1846/2
.8mg of B6,
60.8 mg of magnesium
806mg of potassium

You would need at least 100mg to 200mg a day of B6 for many many months to get any toxicity from it and even then, it is rare.

I am getting a bit weary of this conversation, about B6. So I won't respond to it in the future after this post.

http://ods.od.nih.gov/factsheets/Vit...hProfessional/

Mustang0227 11-21-2012 07:53 PM

mrs d i dont know if u saw my post cuz jesses post was kinda big so u might have overlooked it but i had a question right before jesses post

mrsD 11-22-2012 07:25 AM

Quote:

Originally Posted by Mustang0227 (Post 933692)
mrs d i dont know if u saw my post cuz jesses post was kinda big so u might have overlooked it but i had a question right before jesses post

I am sorry... :o

I think you should direct MS questions to our MS forum. Those members have had many diagnostic tests, delays in diagnosis, etc and can help you better.

http://neurotalk.psychcentral.com/forum17.html

They have a "new" member introduction thread too:
http://neurotalk.psychcentral.com/thread150052.html

I have seen over the years a few people with MS suspicion diagnosis (meaning not firm) who actually had gluten intolerance. Not here but at another forum in the past.

This site is very good for information:
https://sites.google.com/site/jccglu...ationsofgluten
and
https://sites.google.com/site/jccglu...eralneuropathy

Jesse M 11-22-2012 02:19 PM

Quote:

Originally Posted by mrsD (Post 933662)
@jesse

How is your math? 198mg/2 tablets OTC potassium = approximately 4% of your daily intake recommendation.
4700mg a day is alot. You need to eat good food to get this amount.

I've given this website many times...it is very helpful to
find foods high in nutrients that you may be missing:

http://nutritiondata.self.com/

You need to stop this obsession with micro amounts of B6 in common foods. It is inhibiting you from other nutrients you need on a daily basis.

If you are low in potassium it is because of a medical reason:
kidney functions predominately, but also a very poor diet.
Severe chronic diarrhea will also lower serum potasssium, as will some drugs. (steroids, some antibiotics, diuretics are the most common).

Our bodies conserve and maintain/balance potassium critically...once something begins to lower it, you need to pay attention to that.

1 cup of mashed banana:
http://nutritiondata.self.com/facts/...-juices/1846/2
.8mg of B6,
60.8 mg of magnesium
806mg of potassium

You would need at least 100mg to 200mg a day of B6 for many many months to get any toxicity from it and even then, it is rare.

I am getting a bit weary of this conversation, about B6. So I won't respond to it in the future after this post.

http://ods.od.nih.gov/factsheets/Vit...hProfessional/

To mrsD:
Well, my math is pretty bad actually. LOL. But I understand what you mean. I agree with you about the B6 obsession I have. Sorry if I annoyed you on this. This stems from a doctor telling me it could hurt my nerves when I was in a bad stage of PN. I thus learned that eating too LITTLE B6 could be just as bad. How Ironic? Since then I've been eating some bananas and Shredded Wheat that have B6 in them.

I still want to take a potassium supplement, but compound that with eating some potassium rich foods as well - I just feel that it would be hard to get the potassium rich foods I need on a daily basis without someone else in the household eating them before I do. LOL ...Or more so, that shopping for them and keeping them fresh might be somewhat hard for me to do since I'm economically challenged these days. (Cubs foods awed me with their high prices on such things) ...I really appreciate the links and advice.

Until a year ago, I used to drink a whole lot of RC cola - a very bad thing to drink soda so much. I quite drinking soda pop over a year ago, I think that caffeine element and sugar in them did not do me well and that coupled with a "possible" Chrohns disease diagnosis, may have had an effect on my potassium intake, too.

To Mustang:
I heard your questions too. I was thinking that if you're concerned about MS, you could tell your regular doctor (it doesn't have to be a neurologist) to have him set up the tests you need specifically for MS. That way you can get those tests done and rule-out MS.

Lots of people think certain tests can only be ordered by specialists, but you may be surprised to know this is not true. Your regular PCP (Primary Care Physician) can do a lot in regards to setting up and ordering the tests you need - and sometimes they are more understanding to your needs than the specialists are.

I also want to wish everyone here a happy and healthy thanksgiving. I hope all goes well for you all.:D

Mustang0227 11-23-2012 09:08 PM

yea you're right about that. i been having a lot of pain lately so i might go to get my meds adjusted. most of the pain i have been having is on the skin surface. painful burning and pins n needles stabbing me all over sensations. i spoke to the pharmacist and she told me i might have to get them to put me on lyrica instead of keeping me on gabapentin. im just so tired of all these people telling me to take drugs and be patient. they tell me it "takes a long time to figure out these neurological conditions. i dont understand why the hell it takes so long. thats what neurologists went to school for. its their area of expertise. its so unfair that we have to deal with this kind of stuff but im trying to stay positive and hope that an answer will be found soon and that it will be a good answer which means i hope the answer is that i can be cured and return back to normal. im awaiting test results for the heavy metals screening which should be in monday. in the meantime i bought an internal cleansing kit that im going to use regardless. going to start on that kit tomorrow.

Steven N 11-25-2012 10:26 AM

Quote:

Originally Posted by Jesse M (Post 933817)
Since then I've been eating some bananas and Shredded Wheat that have B6 in them.

Jesse, cutting out the soda is a great idea; shredded wheat; or wheat in any form is a bad idea. Mrs. D is right, as usual; you need supplements.
good luck,
Steven

Jesse M 11-25-2012 04:11 PM

Quote:

Originally Posted by Steven N (Post 934372)
Jesse, cutting out the soda is a great idea; shredded wheat; or wheat in any form is a bad idea. Mrs. D is right, as usual; you need supplements.
good luck,
Steven

Why is wheat bad? I thought it was a good fiber. I'm not a diabetic nor do I have a wheat allergy. I can't understand why wheat would be bad for PN. Can you explain. I'm curious about this.:)

ginnie 11-25-2012 04:47 PM

Hi Jesse
 
Yes, I understand the delima about wheat. My doctor also wants me off wheat, says my PN could get better. I have cut down but can't cut it out completely as I eat those things that have sales going. No other way to survive. I have no alergy to it either, though they wanted to test for ceilac. That test is not covered by medicare and runs expensive so I said no to that one. I listen intently to what people say about this. Keep in touch and let me know if you quit it all together. ginnie

mrsD 11-25-2012 04:59 PM

A wheat "allergy" is not the same as gluten intolerance.
Testing for wheat allergy is not the same as for gluten.

Some gluten intolerance even tests out as normal. But for people with nerve issues and PN... it can really be a trigger.

Gluten intolerance is not always Celiac which is genetic. Some people with severe intolerance test normal on Celiac panels and even with endoscope testing.

Jesse M 11-25-2012 06:29 PM

Quote:

Originally Posted by mrsD (Post 934439)
A wheat "allergy" is not the same as gluten intolerance.
Testing for wheat allergy is not the same as for gluten.

Some gluten intolerance even tests out as normal. But for people with nerve issues and PN... it can really be a trigger.

Gluten intolerance is not always Celiac which is genetic. Some people with severe intolerance test normal on Celiac panels and even with endoscope testing.

I must be confused; I was under the impression that gluten intolerance was in relation to diabetes. Since I do not have diabetes I figured this would not be a problem for me -thus eating wheat would not be a problem either.

As it is I don't eat much wheat to begin with -I eat whole grain white bread most of the time. This makes me wonder about oatmeal, too...as in would oats/oatmeal create the same problems?


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