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-   -   25 year old male. very scared. (https://www.neurotalk.org/peripheral-neuropathy/178630-25-male-scared.html)

mrsD 11-28-2012 03:22 PM

Really, I look for the gluten content in the bread.

Some multigrains have much less gluten in them. But I have seen some "whole wheat" breads with gluten as the SECOND ingredient. Gluten is "glue" and is the main component that
causes the intolerances. Gluten is also high in bagels.

Another thing that is difficult to get out of bread is SUGAR!

Some pizza doughs are very high in gluten as well... this lends the dough to being flung around, without falling apart.

Jesse M 11-29-2012 01:56 PM

Quote:

Originally Posted by mrsD (Post 935298)
Really, I look for the gluten content in the bread.

Some multigrains have much less gluten in them. But I have seen some "whole wheat" breads with gluten as the SECOND ingredient. Gluten is "glue" and is the main component that
causes the intolerances. Gluten is also high in bagels.

Another thing that is difficult to get out of bread is SUGAR!

Some pizza doughs are very high in gluten as well... this lends the dough to being flung around, without falling apart.

I got an important question for you mrsD:

I bought a bottle of Potassium Glucanate 99mg from GNC a few days ago and have been taking 1 pill a day since then.

Because I have moderately high blood pressure (but low cholesterol oddly) and my potassium is a bit low, I thought that taking these small amounts (99 mg per day)) might help a little with lowering my high blood pressure, help repair nerve damage, and help my kidneys a bit. ( Last year I had a Kidney stone).

It says that 2000mg per day is the standards for adults and since I'm taking 20 times less than that (99mg), I figured it was safe. --Is it?

I'm also drinking a V8 every other day, and some bananas, too for some additional potassium.

But I'm concerned about taking potassium after I read the article on this link below.

http://www.drugs.com/mtm/potassium-gluconate.html

Here it says that potassium can cause tingling, numbness and muscle weakness - and this makes me very concerned, since I don't want to take anything that even remotely might cause Neuropathy -as my entire goal is to rid myself of it.

Why would potassium cause tingling and numbness? Could it cause Neuropathy?

...And even though I don't have kidney disease, I did have kidney stones (micro-ones) yet some actually prescribe potassium for kidney stones. Still, they say don't take it if you have a urinary track infection (I don't but figure that has to do with Kidneys, too)

In short, I'm considering NOT taking it at all, now that there seems to be some bad side effects that I was unaware of. Certainly some "contradictory' benefits and warnings about it.

Do you know anything about this?:cool:

mrsD 11-29-2012 04:06 PM

You know, Jesse, I think it is time you started your own threads.

I should have brought this up earlier...I am sorry I didn't.

In answer to this question:
That monograph is for RX doses...not OTC ones.
That site also gives drug information for other countries.
In this country Potassium chloride is the mostly commonly given
RX to improve low potassium in patients with documented low
levels, from testing, impacting their health.

Naturemade potassium gluconate:
http://www.iherb.com/Nature-Made-Pot...-Tablets/40429

90mg elemental potassium-- the rest is the weight for the heavy
gluconate carrier.

Not all OTC manufacturers list elemental levels. The NatureMade product does not on its label.
If you purchase a potassium supplement in the US labeled as 'supplement' the law requires it to be 99mg or less potassium.
That monograph does not pertain to any OTC product in US.

In order to understand supplements you have to study the various fine points to labeling. I have an explanation of elemental vs total weight on my magnesium thread here. You need to read it again:
http://neurotalk.psychcentral.com/post20739-10.html

I think it is best if you don't experiment on yourself...without knowing what you are doing. I give safe guidelines here.... and for potassium it is GET IT FROM FOOD sources. Any other experimentation is going to lead to some kind of accident, or worse IMO. That is why our FDA limits potassium supplement content per tablet to 99mg max.

Jesse M 11-29-2012 04:37 PM

Quote:

Originally Posted by mrsD (Post 935627)
You know, Jesse, I think it is time your started your own threads.

I should have brought this up earlier...I am sorry I didn't.

In answer to this question:
That monograph is for RX doses...not OTC ones.
That site also gives drug information for other countries.
In this country Potassium chloride is the mostly commonly given
RX to improve low potassium in patients with documented low
levels, from testing, impacting their health.

Naturemade potassium gluconate:
http://www.iherb.com/Nature-Made-Pot...-Tablets/40429

90mg elemental potassium-- the rest is the weight for the heavy
gluconate carrier.

Not all OTC manufacturers list elemental levels. The NatureMade product does not on its label.
If you purchase a potassium supplement in the US labeled as 'supplement' the law requires it to be 99mg or less potassium.
That monograph does not pertain to any OTC product in US.

In order to understand supplements you have to study the various fine points to labeling. I have an explanation of elemental vs total weight on my magnesium thread here. You need to read it again:
http://neurotalk.psychcentral.com/post20739-10.html

I think it is best if you don't experiment on yourself...without knowing what you are doing. I give safe guidelines here.... and for potassium it is GET IT FROM FOOD sources. Any other experimentation is going going to lead to some kind of accident, or worse IMO. That is why our FDA limits potassium supplement content per tablet to 99mg max.


Yeah - I think you're right. In retrospect, I don't feel I have a condition that actually warrants taking potassium supplements. My potassium levels are NOT very low, just sightly. I'll get the rest naturally by eating foods that contain it from time to time. No big thing. ...And I certainly don't want to experiment on myself. All the other vitamins I take are far safer and necessary.

As for starting my own thread - I don't understand. I hope I didn't hijack this thread. I'm not trolling or debating, am I?

I just feel that starting my own would just get ignored and I wouldn't get the help/response and answers that I honestly need from you all. This forum has indeed helped me quite a bit. But if I'm somehow disrupting this thread, I won't post here anymore. ...Sorry, I don't really know the rules here.:(

mrsD 11-29-2012 04:55 PM

Starting your own thread is respectful to the original poster.
The OP has to wade thru all your posts which are slowly going off topic.
It is not a rule, it is a courtesy. All threads here get attention, from our members. Having your own, is not a negative thing in any way.

Sorry Mustang...we are quite liberal about this aspect of netiquette on PN, I should have spoken up sooner about it so I apologize for not bringing it up sooner. :o

The new thread button is in the upper left of the index page here at PN.
It is a large button.

Mustang0227 12-06-2012 10:28 PM

its ok. lil update here. i saw a nurse practioner who works at a doctors office who mainly deals with MS. she said my left leg feels weaker than the right and also said my legs reflexes are brisk. when i said "is that good or bad?" she said "that is one sign of MS". should i be freaking out about this?

mrsD 12-07-2012 06:52 AM

I think it would be best to ask at our MS forum:

http://neurotalk.psychcentral.com/forum17.html
from what I have read there, many waiting several years to get
a firm diagnosis.

MS can be a diagnosis of exclusion, but MRI's of the brain, spine and lumbar punctures often help solidify it.

Many people worry that they have some "awful" thing, when they get PN symptoms. PN is very common. There are more PNers in US than MS and Parkinson's combined.

ginnie 12-07-2012 02:52 PM

Hi Mustang
 
Ms is hard to diagnose. Until you really get some more tests, try not to worry. Hope this all turns out OK for you. ginnie

mmsutton 01-18-2014 03:49 PM

Quote:

Originally Posted by Mustang0227 (Post 925255)
Hi. I'm a 25 year old male. My symptoms started on 9-3-12 and started as tingling in the left foot and left arm. It then progressed into electrical shock sensations on the skin in different areas of my body. Then it turned into pain in my extremities, joints, fingers. My nerve conduction study showed neuropathy in the legs but i am convinced i have small fiber throughout my whole body since i feel the pain and electrical shocks everywhere. brain mri, neck mri, and bloodworks have all came back normal. I'm trying to convince my neuro to send me for a skin biopsy even though he says he doesnt think i need that yet. Someone please help me. I need someone to talk to about this horrible problem. email me at (please use forum contact methods)

I had the exact same symptoms and misdiagnosed for years. Numbness, weak and sore muscles, tingling, foggy head, peripheral neuropathy, imbalance etc. My chiropractor helped me discover it was mercury poisoning. I had my amalgams taken (9/12) out and followed the bioidentical dentists mercury chelation protocol but nothing happened after 6 months. I sought out a homeopathic doctor experienced in heavy metal poisoning and told me that my cells were so toxic that the supplements (as well as the nutrition I was putting in my body were useless because my cells were basically full of garbage. She had me do a specific 30 day nutritional cleanse and when I came back to see her after 30 days it was a miracle. I had more energy, clarity, my feet were no longer numb, I lost inches in my waist (mercury creates visceral fat because your fat cells protect your organs). That was in March 2013. After the nutritional cleanse I was able to take the chelators and in January 2014, I am feeling normal again. If you give me your number I can call you and tell you what helped me. I leaned so much in the four years of testing, missed diagnosing, $20,000 spent, time wasted, and frustration. I want to help as many people as I can recover from mercury poisoning.

Breezy55 01-19-2014 02:34 PM

Re/Scared!
 
Quote:

Originally Posted by mmsutton (Post 1044428)
I had the exact same symptoms and misdiagnosed for years. Numbness, weak and sore muscles, tingling, foggy head, peripheral neuropathy, imbalance etc. My chiropractor helped me discover it was mercury poisoning. I had my amalgams taken (9/12) out and followed the bioidentical dentists mercury chelation protocol but nothing happened after 6 months. I sought out a homeopathic doctor experienced in heavy metal poisoning and told me that my cells were so toxic that the supplements (as well as the nutrition I was putting in my body were useless because my cells were basically full of garbage. She had me do a specific 30 day nutritional cleanse and when I came back to see her after 30 days it was a miracle. I had more energy, clarity, my feet were no longer numb, I lost inches in my waist (mercury creates visceral fat because your fat cells protect your organs). That was in March 2013. After the nutritional cleanse I was able to take the chelators and in January 2014, I am feeling normal again. If you give me your number I can call you and tell you what helped me. I leaned so much in the four years of testing, missed diagnosing, $20,000 spent, time wasted, and frustration. I want to help as many people as I can recover from mercury poisoning.

It took many Dr's 3 year's to dx whatI had. Fianally a nuerologist did a emg on me and just from that test,I found out I had full body RSD! I have had it now since 2006! Take Care! Breezy55 :eek:


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