Hi & welcome. Im pretty new on here, but have very similar symptoms to you. Mine began in june this year, burning, tingling in both feet then pain as well. Electric shock pains in my legs. I have now started with numbness in my fingers. I have had my nerve conduction test, but no results yet. I am waiting to see my neuro in November.
Its scarey isnt it, not knowing whats wrong with you or how & if its going to progress.
Im finding it hard to deal with to be honest. Im a fitness instructor & cant work.
Hope you get sorted out

Sounds like we are at about the same stage. Mine began in mid-July. I'm a dog walker and can't work. I had my first nerve conduction test Oct 4th. I just took my first anticonvulsant tonight--100mg of Neurontin. Kind of like a sugar pill as far as I can tell. It hasn't done much for me.

I want to say hello and welcome you to Neuro Talk. You can talk here, and people will try to help. You have every right to be afraid. Being young makes any neurological problems scarry, as you think it may last. These conditions have help. It is really important to find a doctor able to make a DX. Your doctor was wrong not to do the biopsy. It seems like you believe that physician has put you into a dead end. don't give up. Try to go to a teaching hospital in your area. I hope that folks will respond and give you some names. I do wish you all the best. There is help, but sometimes it takes some real effort to find the right kind of physician. ginnie

the neuro i have seems like he could care less what is wrong with me. but on the otherhand even tho hes getting ready to wash his hands with my case he did say he would send me to university of florida if these next 2 bloodworks he sent me for come back normal. the 2 bloodworks were spep and iep. the pain is getting harder and harder to tolerate and now 900mg of gabapentin does nothing for me. im in the orlando area. if you have any suggestions let me know or if u know of any good neuros in this area.

Hi and welcome.
I have very little good to say about traditional medicine. I went to the University of Miami, which is considered "world class." They made a great deal of money with all their testing, none of which did me any good.

I am now, finally getting better. A combination of living gluten free (critically important), finding the right supplements, and finally finding the right doctor. I travel over 200 miles to your area, Winter Park, to see Joya Schoen, who is an alternative physician. I think she's great, and recommend you consider that route.

I am not "normal" yet, but see slow and steady progress; at least, enough to start to remove all the fears.

Best of luck,
Steven

Alternative or Integrative MD's are the best for sure. I have several. I would still be in bed unable to sit up from Autonomic Neuropathy/Dysautonomia(POTS) and Chronic Fatigue Syndrome if it were not for my Integrative Doctors. No other "reg" md had a clue.

To mrsD or anyone else that knows about this.

I have Cipro poisoning that of course has a lot to do with fluoride. I already stopped brushing my teeth with fluoride toothpaste and use an antiseptic mouthwash instead (this has helped me with gingivitis in particular.)

But I drink a lot of tap water, at least 8 full cups a day now. Here's my problem.

I live in Chicago and my city’s tap water contains 0.9 to 1.05 mg of fluoride per liter of water. The federal standard since 1962 has been a range of 0.7 to 1.2 mg.

My first question is if you have fluoroquinolone toxicity such as from the antibiotic Cipro, is it wise or unwise to avoid drinking tap water, since fluoride is added to it by the state?

I really need help with this one, since I think Chicago may be one of the cities that has the most fluoride added to its populations water supply that can in turn be harming people like me.

Please let me know what you think. Also, does bottled water such as PurAqua have fluoride added, too -I notice that I can't find it on their listings

I'm not sure if I should be avoiding fluoride to begin with -it just seems logical to me that if Cipro poisoning is in large part damaging due to its fluoride elements, it would be smart to avoid fluoride whenever I can. Is this right?
.

What are my chances of healing from toxic neuropathy?

I have Peripheral Neuropathy from a prescribed, 21-day treatment of Ciprofloxacin (500 MG twice a day) back in June 2012 for a case of prostatis. After 3 weeks, I first noticed the pain and then I quickly stopped taking it after noticing very severe pains. Now, 3 months later – the 1st week of October, I still have frequent pains though they are far less painful.

At the time, I was taking Cipro I was also taking the NSAID Naproxen (1 pill per day and my 1 MG of Clonazapam twice a day). I have discovered afterward that taking NSAIDS and benzos such as Clonazapam/Klonapin while taking Cipro augments Cipro Toxicity. I have had many tests done – I do NOT have diabetes or MS. So this suggest further that my Neuropathy is from taking Cipro.

I had regularly drunk less/or about one 6 -pack of beer on the weekend – so alcoholism seems a very unlikely cause. Now, in October of this year, I still suffer from daily pains of burning, needle and pinpricks and cramps, especially in my feet, toes, and fingers. What has changed is that I no longer feel the hardcore stabbing pains in my toes or the prolonged cramps.

I even have days where I feel “Almost Normal”. Basically I’m afraid of what most Cipro poisoned people are of – that this pain will last for the rest of our lives. Still, I feel much better then I did 3 months ago, especially after taking the four vitamins I’ve been taking daily since august. (Vitamin C 120 mg, Omega 3 120 mg, Magnesium 250 mg and B-12 500 mcg). Please give me your opinion on my case, as I think it will help many others with similar circumstances.


Reply

Welcome to NeuroTalk:

Dr. Cohen has some suggestions on his website.
And there is this new article:
http://articles.mercola.com/sites/ar...t-Failure.aspx

Make sure your magnesium is not OXIDE form. Should be a chelate like glycinate, citrate, gluconate, or malate. Or SlowMag.

Also try not to strain any tendons, now. Tendon ruptures can happen anytime after stopping fluoroquinolones.

To "mrsD" : What's wrong with the "OXIDE" Form? -- The GNC brand I've been taking says: "Magnesium as 250 mg as 63% Oxide and Magnesium Gluconate."

I avoid taking any NSAIDS (such as Alieve, Naproxen and Aspirin) as in people affected with Cipro toxicity, it can “augment” the problem. I hear Tylenol and Acetaminophen is safe though.

Still I don't even take that. I only take clonozepam/Klonopin (0.5 twice a day for anxiety and pain management) and no other drugs. I'm afraid to take anything else that might worsen my symptoms, I as feel I have definitely had some great healing strides since July.

I seem to get worse flare-ups (especially cramping) when it rains or when their is really high humidity. Is anyone familiar with how the weather effects your NP pains? I live in Chicago with harsh winters, I hope the usual cold weather doesn't do too much damage this season.

…And also, is anyone here with Cipro/flouroquinolone poisoning having a hard time with their Neurologist? I get the tests I need but she keeps thinking that Cipro CAN'T cause Neuropathy, despite it being directly on the severe side effects label. ...How ironic.