advertisement
Reply
 
Thread Tools Display Modes
Old 10-26-2012, 01:06 PM #21
Breezy55 Breezy55 is offline
Member
 
Join Date: Jun 2009
Location: Wisconsin
Posts: 124
15 yr Member
Breezy55 Breezy55 is offline
Member
 
Join Date: Jun 2009
Location: Wisconsin
Posts: 124
15 yr Member
Default Scared!!

Quote:
Originally Posted by Sam View Post
Pain and fear are a difficult cycle to break. Especially when you don't have answers. Finding a diversion helps some. Whether is coming to the forum, reading or a good show on the tube, anything to get your mind off the pain for a bit. Talking yourself through it may help as well. Its easy to be consumed by pain and fear if you let it. I wish I had something more tangible to offer, but I haven't figured that one out for myself, let alone be able to stop someone else's pain.

I'm in Indiana. Not being raised here, it surprised me when I finally found a pain specialist here. He's great and his staff is nice too. It was only luck that I stumbled upon his clinic. There may be someone in FL. that you just haven't found yet. Don't give up. If you have a good friend or spouse, just venting to them can make a difference. I'm glad you found this forum.

Sam
Sam,I live in Wisconsin,I am so happy that you found a pain specialist!! Keep up the fight,we are all with you!! Breezy55
Breezy55 is offline   Reply With QuoteReply With Quote

advertisement
Old 10-26-2012, 03:05 PM #22
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Many of us here on PN and on the other NT forums that are pain related...find low barometric pressures (from storms/rain) increase pain. It is common, I think. Even my kitties get sluggish when it is low barometric times. LOL

Some find high temps with high humidity also a problem. But those who normally live in those areas, don't complain as much as people in more temperate areas. I myself find burning more common during hot temps, than cold. But that is just me.

I find it difficult to breathe comfortably in very humid conditions, however.

Quote:
Originally Posted by Jesse M View Post
To mrsD:

Thanks, you saved me a lot of time with such practical advice. I would have been struggling to get that info from anyone and anywhere else. I'm glad to know I can get this from a store rather than getting stuff on-line as I somewhat distrust buying supplements online.

It seems you know more about dealing with PN than I do and I'm tempted and a bit embarrassed to ask you questions, especially as new circumstances arise. But I don't want to overburden you, so if you don't mind - I'll ask them one at a time.

I'm still baiting a question that I feel a little silly for asking though - but I'll ask you anyway. It's about the weather and PN pain. Is it just a mind trick, or does rain and high humidity actually irritate PN pain? I don't know if this is in my head, or if there is some actual basis for this kind of thing.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 10-26-2012, 03:09 PM #23
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hello Jesse

Always feel free to post your questions to Neuro Talk. None of them are silly. People do care on this site, and will always try to help you. Glad you found Neuro Talk, feel welcome and at home here. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 10-26-2012, 03:34 PM #24
Breezy55 Breezy55 is offline
Member
 
Join Date: Jun 2009
Location: Wisconsin
Posts: 124
15 yr Member
Breezy55 Breezy55 is offline
Member
 
Join Date: Jun 2009
Location: Wisconsin
Posts: 124
15 yr Member
Default

Quote:
Originally Posted by mrsD View Post
Many of us here on PN and on the other NT forums that are pain related...find low barometric pressures (from storms/rain) increase pain. It is common, I think. Even my kitties get sluggish when it is low barometric times. LOL

Some find high temps with high humidity also a problem. But those who normally live in those areas, don't complain as much as people in more temperate areas. I myself find burning more common during hot temps, than cold. But that is just me.

I find it difficult to breathe comfortably in very humid conditions, however.
The weather has a huge affect when a person has RSD! Rain,snow,quick change's in temp's,etc!! Breezy55
Breezy55 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-28-2012)
Old 10-26-2012, 11:21 PM #25
Jesse M Jesse M is offline
Member
 
Join Date: Oct 2012
Location: I live in Chicago - a very diverse city.
Posts: 126
10 yr Member
Jesse M Jesse M is offline
Member
 
Join Date: Oct 2012
Location: I live in Chicago - a very diverse city.
Posts: 126
10 yr Member
Default

To mrsD:--

I bought the "SlowMag" today at CVS. Magnesium Chloride: Included -- (238 mg of calcium, 143 mg Magnesium, chloride 405 mg, and sodium 5 mg - this amount based on a 2 tablet serving per day) It was 15 bucks for 60 tablets. But the only one I found was the one with calcium added with it.

I don't know if this is good or not. I heard calcium in high doses could aggravate your kidneys and or prostate, I'm not sure. I did have a Kidney stone last year. So I figure I'd take 1 pill a day instead of 2, with the idea that the better absorbing magnesium will equal out the old oxide type I was taking.

Is this a logical idea? ...I'd really like your opinion on this.

Also, I don't know what "Chloride" is, but 405 mg seems pretty excessive, so I'd appreciate your thoughts about that, too. ...Thanks.
Jesse M is offline   Reply With QuoteReply With Quote
Old 10-27-2012, 07:15 AM #26
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

The amount of calcium in it is not really in the supplement range for calcium. Don't worry about it. Supplement doses start at 1000mg a day and up. That little bit of calcium is in all the SlowMag versions, including the generic.

Chloride is just the carrier molecule. Most chemical compounds are in two parts. The most common chloride is sodium chloride, which is table salt. The amount of chloride in this is a spit in the ocean compared to one fast food meal in a restaurant. Just about every processed food is loaded with salt, and sugar in US. There are 2 chloride molecules for every magnesium in this product... this is because magnesium is divalent..remember your HS chemistry?
MgCl2.

Here is an article on chloride:
http://health.nytimes.com/health/gui.../overview.html
It is rare that chloride is a problem in people because the kidneys, do remove it. Those in hospitals on massive diuretic therapy may become
low in it. But it is so common in our environment that we consume it commonly.

There are some simple restaurant meals that can have 2,500 or more milligrams of sodium in them. Yahoo often has "Eat this and not That" snippets to reveal this abuse. In fact the men's book is quite interesting for everyone...
Read this site, if you dare...
http://eatthis.menshealth.com/home

example:
http://eatthis.menshealth.com/slides...staurant-meals
This massive burger has 6,600 mg of sodium !!!!!! And chloride is in equal measure since NaCl has one chloride per sodium ion.
http://eatthis.menshealth.com/slide/...sharetagsfocus

Magnesium chloride is one of the forms tested that showed good absorption. Neither the calcium nor magnesium is 100% absorbed, as the body has transport systems to do that and it is selective. However, a goodly amount of the magnesium is absorbed into the blood stream, to be effective for you.

If you eat magnesium containing foods, like almonds, beans, oatmeal, and yogurt, you need less magnesium. Two of these provides about 1/2 the RDA for those eating some but not ideal amounts of magnesium. People lose magnesium in urine daily, as well. Alcohol and caffeinated beverages, some drugs prevent normal magnesium levels in most people. Studies have shown that 70% or more of Americans are below the daily RDA of magnesium daily. If you take acid blocking drugs you are blocking its absorption from food, along with calcium and zinc too.

If you don't recall your high school chemistry, now is the time to
have refresher courses. I do not have the time to provide chemistry lessons for every poster. That information is easily found on the net.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 10-27-2012 at 12:37 PM. Reason: fixing typo
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-28-2012)
Old 10-27-2012, 07:29 PM #27
Mustang0227 Mustang0227 is offline
Junior Member
 
Join Date: Oct 2012
Location: Orlando, FL
Posts: 38
10 yr Member
Mustang0227 Mustang0227 is offline
Junior Member
 
Join Date: Oct 2012
Location: Orlando, FL
Posts: 38
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
You know the exact date of your onset? That is unusual. Can you also remember exactly what you were doing then, before that date? You need to be a detective to find your trigger.
You are young for gammopathies. (that is what your newer tests are for).

What do you do for a living? Hobbies? vaccines, illnesses, food reactions or food poisoning, solvents, chemicals.

Do you take any drugs, including over the counter medications?
Did you have a B12 level done at all? Do you eat alot of wheat products, gluten?
Any medically invasive procedures? traumas, accidents, or surgeries?

The more you can tell us the more it may point to a path for you to try and heal.
the reason i know the exact date of my symptoms is because i was at a baseball game when i started feeling the tingling in my left foot and left arm. so whenever the doctors would ask me i would just think about the date of the game. they tested me for b-12 and it was normal. so was potassium and electrolytes. i wouldnt say i eat A LOT of gluten but i dont live on a gluten free diet either. as far as lifestyle i wasnt really doing anything out of the norm. working at a restaurant part time, going to college part time. since i eat out a lot i was thinking maybe it could have been something toxic in my food but doctors dont seem to think that. my bloodwork for spep/iep are now back and it is showing an abnormal protein band. my neurologist doesnt know what that could be so he wants to send me to a university so the medical team there can figure it out. please let me know what you think of all this. oh and also, no, i wasnt taking any drugs before this happened and no surgeries either.
Mustang0227 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-28-2012)
Old 10-28-2012, 04:22 AM #28
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Abnormal proteins thicken the blood. And so does eating high carb, high sugar, high fat foods. These foods raise triglyceride levels which in turn make blood more sluggish. When blood cannot circulate in tiny vessels (most of them in hands and feet) then metabolic byproducts cannot be carried away from cells, and oxygen and nutrients cannot get in. So the nerve cells, react first, because they are there as a warning system to tell us something is wrong.

This site for men (but also valid for women) often evaluates foods served in restaurants, and reveals the nutritional content of the meals.
http://eatthis.menshealth.com/slide/...sharetagsfocus
The whole site is very informative and I'd recommend it to you to help you choose foods that will not impact, strain or impair your health.

Some blood proteins are mostly benign....MGUS is one that only in small numbers of people progress to multiple myeloma. But you will have to see a specialist for further evaluation as your doctor recommended.

http://en.wikipedia.org/wiki/Monoclo...d_significance

We've had several people here over the years with MGUS.

25 is rather young for this, but if it is something you inherited, then perhaps, this is your time.

I'd try and not eat at restaurants so much. The sodium, fat and carbs can really be high there.
Also, MSG is almost always added to commercial foods to make them taste better. And MSG is very bad for nerves... it can make pain worse. The pain receptors, NMDA receptors run on glutamate and calcium. Magnesium blocks them to some extent.
So if you are low in magnesium (eating all those processed foods) as well, then pain will be increased.
This is why I post so much about magnesium. Besides working in hundreds of important enzymes in the body, having low levels, will impact the nerves and PAIN.
http://neurotalk.psychcentral.com/thread1138.html

Another factor? Easy to deal with? The socks you wear. My son had a terrible time with some socks, that compressed his lower legs alot. They left deep impressions in his lower leg when he took them off at night. Sitting alot either in school or work, will make this worse. When he showed me his legs.... I was astounded! So now he wears special socks with wider tops, and it is END of the PROBLEM! (and BTW he is not overweight and does not have large legs). And I'd also suggest wearing relaxed fit jeans. Really tight jeans compress nerves at the groin.

And you need to know the B12 numbers exactly...not just "normal". This is because the lab ranges for B12 in US are outdated and very low.
You should be at 400 or higher. Anything lower than that is NOT normal any longer. This continues to be a significant problem with people here.
Some people have gone to many many doctors until they find ONE who knows of the new therapeutic guidelines. So don't let yourself be another casualty of outdated lab ranges:
http://www.aafp.org/afp/2003/0301/p979.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 10-28-2012, 10:51 AM #29
Mustang0227 Mustang0227 is offline
Junior Member
 
Join Date: Oct 2012
Location: Orlando, FL
Posts: 38
10 yr Member
Mustang0227 Mustang0227 is offline
Junior Member
 
Join Date: Oct 2012
Location: Orlando, FL
Posts: 38
10 yr Member
Default

thank you for all this information. you are of great help to me. i just looked at my b-12 level and it says 85. what do you think is the cause of the problem? the low b-12 or the abnormal blood protein? also i am not diabetic. i dont know if i mentioned that in my earlier posts. as far as b-12 i am taking the WSN nerve support formula which contains a lot of b-12 so maybe that will help? let me know what you think. when they did the brain scan they found no signs of MS but i heard MS doesnt always show on scans and abnormal protein is common in MS patients. could it in fact be MS?
Mustang0227 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-28-2012)
Old 10-28-2012, 11:10 AM #30
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Shocked

85! That is terrible. Are you sure about that, and not reading another value close to it? Sometimes the readouts are narrow and single spaced and easy to confuse.

You need to be on methylcobalamin NOW...ASAP. 5mg on an empty stomach for 3 months, and have a retest.

Your nervous system, and visual abilities will really start to change radically being that low. You know I think 85 is one of the lowest ever brought here! WHEW!

iherb.com, Puritan's Pride and Swanson's, Vitacost, Amazon, all easy and inexpensive. Please do this for yourself and don't wait for doctors. Even with the old outdated lab ranges going down to 200 ...you are far lower than those!

I think you can spring for the 5mg of methylcobalamin... there is not enough in that mixture you are using now. You can go back to it if your blood levels normalize in 3 months. I hope you are taking that product on an empty stomach? If not the B12 will not be absorbed.

Why are you low?
1) are you taking OTC acid lowering drugs?

2) you could have low stomach acid called achlorhydria.

3) you could have inherited pernicious anemia from a relative. Or you have an autoimmune disease that is attacking the parietal cells of the stomach that make intrinsic factor (this is what carries B12 from food into your blood stream).
Did you have any CBC abnormal results? The MCV in the CBC typically elevates before anemia starts. So elevated MCV might show up. Doctors typically ignore this, because they don't understand it. MCV = mean corpuscular volume of the blood cells showing abnormally large cells in a given volume of blood serum.

4) if you are not eating meat/eggs/dairy/seafood/ and are following a vegan lifestyle, you can get low.

Those are the main causes that people can commonly have.

You'll have to ask the specialist about the proteins in the blood.
Also show him the copy of that B12 result too... that ought to spark an
interesting conversation!
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (10-28-2012)
Reply

Tags
nerve damage, neuropathy, small fiber neuropathy


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
56 year old male markack Social Security Disability 12 05-16-2011 10:33 AM
PN in healthy 19 year old male symptoms help mikerobinson41 Peripheral Neuropathy 12 05-28-2010 03:41 PM
9 Year old Male MRI Results, Please help if you can Dad_of_3 Children's Health 3 07-25-2009 10:06 AM
Shunt Revsion in 36 Year Old Male theweave Hydrocephalus 15 05-04-2009 11:06 PM


All times are GMT -5. The time now is 06:03 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.