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Old 10-25-2012, 05:33 AM #1
Mustang0227 Mustang0227 is offline
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Originally Posted by Jesse M View Post
What are my chances of healing from toxic neuropathy?

I have Peripheral Neuropathy from a prescribed, 21-day treatment of Ciprofloxacin (500 MG twice a day) back in June 2012 for a case of prostatis. After 3 weeks, I first noticed the pain and then I quickly stopped taking it after noticing very severe pains. Now, 3 months later – the 1st week of October, I still have frequent pains though they are far less painful.

At the time, I was taking Cipro I was also taking the NSAID Naproxen (1 pill per day and my 1 MG of Clonazapam twice a day). I have discovered afterward that taking NSAIDS and benzos such as Clonazapam/Klonapin while taking Cipro augments Cipro Toxicity. I have had many tests done – I do NOT have diabetes or MS. So this suggest further that my Neuropathy is from taking Cipro.

I had regularly drunk less/or about one 6 -pack of beer on the weekend – so alcoholism seems a very unlikely cause. Now, in October of this year, I still suffer from daily pains of burning, needle and pinpricks and cramps, especially in my feet, toes, and fingers. What has changed is that I no longer feel the hardcore stabbing pains in my toes or the prolonged cramps.

I even have days where I feel “Almost Normal”. Basically I’m afraid of what most Cipro poisoned people are of – that this pain will last for the rest of our lives. Still, I feel much better then I did 3 months ago, especially after taking the four vitamins I’ve been taking daily since august. (Vitamin C 120 mg, Omega 3 120 mg, Magnesium 250 mg and B-12 500 mcg). Please give me your opinion on my case, as I think it will help many others with similar circumstances.


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try WSN Nerve Support Formula. I've heard of people that got good results and thats what im going to start taking until i get a real diagnosis of whats wrong with me
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Old 10-26-2012, 08:38 AM #2
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Lightbulb

You know the exact date of your onset? That is unusual. Can you also remember exactly what you were doing then, before that date? You need to be a detective to find your trigger.
You are young for gammopathies. (that is what your newer tests are for).

What do you do for a living? Hobbies? vaccines, illnesses, food reactions or food poisoning, solvents, chemicals.

Do you take any drugs, including over the counter medications?
Did you have a B12 level done at all? Do you eat alot of wheat products, gluten?
Any medically invasive procedures? traumas, accidents, or surgeries?

The more you can tell us the more it may point to a path for you to try and heal.

Quote:
Originally Posted by Mustang0227 View Post
Hi. I'm a 25 year old male. My symptoms started on 9-3-12 and started as tingling in the left foot and left arm. It then progressed into electrical shock sensations on the skin in different areas of my body. Then it turned into pain in my extremities, joints, fingers. My nerve conduction study showed neuropathy in the legs but i am convinced i have small fiber throughout my whole body since i feel the pain and electrical shocks everywhere. brain mri, neck mri, and bloodworks have all came back normal. I'm trying to convince my neuro to send me for a skin biopsy even though he says he doesnt think i need that yet. Someone please help me. I need someone to talk to about this horrible problem. email me at (please use forum contact methods)
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Old 10-27-2012, 07:29 PM #3
Mustang0227 Mustang0227 is offline
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You know the exact date of your onset? That is unusual. Can you also remember exactly what you were doing then, before that date? You need to be a detective to find your trigger.
You are young for gammopathies. (that is what your newer tests are for).

What do you do for a living? Hobbies? vaccines, illnesses, food reactions or food poisoning, solvents, chemicals.

Do you take any drugs, including over the counter medications?
Did you have a B12 level done at all? Do you eat alot of wheat products, gluten?
Any medically invasive procedures? traumas, accidents, or surgeries?

The more you can tell us the more it may point to a path for you to try and heal.
the reason i know the exact date of my symptoms is because i was at a baseball game when i started feeling the tingling in my left foot and left arm. so whenever the doctors would ask me i would just think about the date of the game. they tested me for b-12 and it was normal. so was potassium and electrolytes. i wouldnt say i eat A LOT of gluten but i dont live on a gluten free diet either. as far as lifestyle i wasnt really doing anything out of the norm. working at a restaurant part time, going to college part time. since i eat out a lot i was thinking maybe it could have been something toxic in my food but doctors dont seem to think that. my bloodwork for spep/iep are now back and it is showing an abnormal protein band. my neurologist doesnt know what that could be so he wants to send me to a university so the medical team there can figure it out. please let me know what you think of all this. oh and also, no, i wasnt taking any drugs before this happened and no surgeries either.
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ginnie (10-28-2012)
Old 10-28-2012, 04:22 AM #4
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Lightbulb

Abnormal proteins thicken the blood. And so does eating high carb, high sugar, high fat foods. These foods raise triglyceride levels which in turn make blood more sluggish. When blood cannot circulate in tiny vessels (most of them in hands and feet) then metabolic byproducts cannot be carried away from cells, and oxygen and nutrients cannot get in. So the nerve cells, react first, because they are there as a warning system to tell us something is wrong.

This site for men (but also valid for women) often evaluates foods served in restaurants, and reveals the nutritional content of the meals.
http://eatthis.menshealth.com/slide/...sharetagsfocus
The whole site is very informative and I'd recommend it to you to help you choose foods that will not impact, strain or impair your health.

Some blood proteins are mostly benign....MGUS is one that only in small numbers of people progress to multiple myeloma. But you will have to see a specialist for further evaluation as your doctor recommended.

http://en.wikipedia.org/wiki/Monoclo...d_significance

We've had several people here over the years with MGUS.

25 is rather young for this, but if it is something you inherited, then perhaps, this is your time.

I'd try and not eat at restaurants so much. The sodium, fat and carbs can really be high there.
Also, MSG is almost always added to commercial foods to make them taste better. And MSG is very bad for nerves... it can make pain worse. The pain receptors, NMDA receptors run on glutamate and calcium. Magnesium blocks them to some extent.
So if you are low in magnesium (eating all those processed foods) as well, then pain will be increased.
This is why I post so much about magnesium. Besides working in hundreds of important enzymes in the body, having low levels, will impact the nerves and PAIN.
http://neurotalk.psychcentral.com/thread1138.html

Another factor? Easy to deal with? The socks you wear. My son had a terrible time with some socks, that compressed his lower legs alot. They left deep impressions in his lower leg when he took them off at night. Sitting alot either in school or work, will make this worse. When he showed me his legs.... I was astounded! So now he wears special socks with wider tops, and it is END of the PROBLEM! (and BTW he is not overweight and does not have large legs). And I'd also suggest wearing relaxed fit jeans. Really tight jeans compress nerves at the groin.

And you need to know the B12 numbers exactly...not just "normal". This is because the lab ranges for B12 in US are outdated and very low.
You should be at 400 or higher. Anything lower than that is NOT normal any longer. This continues to be a significant problem with people here.
Some people have gone to many many doctors until they find ONE who knows of the new therapeutic guidelines. So don't let yourself be another casualty of outdated lab ranges:
http://www.aafp.org/afp/2003/0301/p979.html
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Old 10-28-2012, 10:51 AM #5
Mustang0227 Mustang0227 is offline
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thank you for all this information. you are of great help to me. i just looked at my b-12 level and it says 85. what do you think is the cause of the problem? the low b-12 or the abnormal blood protein? also i am not diabetic. i dont know if i mentioned that in my earlier posts. as far as b-12 i am taking the WSN nerve support formula which contains a lot of b-12 so maybe that will help? let me know what you think. when they did the brain scan they found no signs of MS but i heard MS doesnt always show on scans and abnormal protein is common in MS patients. could it in fact be MS?
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Old 10-28-2012, 11:10 AM #6
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Shocked

85! That is terrible. Are you sure about that, and not reading another value close to it? Sometimes the readouts are narrow and single spaced and easy to confuse.

You need to be on methylcobalamin NOW...ASAP. 5mg on an empty stomach for 3 months, and have a retest.

Your nervous system, and visual abilities will really start to change radically being that low. You know I think 85 is one of the lowest ever brought here! WHEW!

iherb.com, Puritan's Pride and Swanson's, Vitacost, Amazon, all easy and inexpensive. Please do this for yourself and don't wait for doctors. Even with the old outdated lab ranges going down to 200 ...you are far lower than those!

I think you can spring for the 5mg of methylcobalamin... there is not enough in that mixture you are using now. You can go back to it if your blood levels normalize in 3 months. I hope you are taking that product on an empty stomach? If not the B12 will not be absorbed.

Why are you low?
1) are you taking OTC acid lowering drugs?

2) you could have low stomach acid called achlorhydria.

3) you could have inherited pernicious anemia from a relative. Or you have an autoimmune disease that is attacking the parietal cells of the stomach that make intrinsic factor (this is what carries B12 from food into your blood stream).
Did you have any CBC abnormal results? The MCV in the CBC typically elevates before anemia starts. So elevated MCV might show up. Doctors typically ignore this, because they don't understand it. MCV = mean corpuscular volume of the blood cells showing abnormally large cells in a given volume of blood serum.

4) if you are not eating meat/eggs/dairy/seafood/ and are following a vegan lifestyle, you can get low.

Those are the main causes that people can commonly have.

You'll have to ask the specialist about the proteins in the blood.
Also show him the copy of that B12 result too... that ought to spark an
interesting conversation!
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Old 01-18-2014, 03:49 PM #7
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Originally Posted by Mustang0227 View Post
Hi. I'm a 25 year old male. My symptoms started on 9-3-12 and started as tingling in the left foot and left arm. It then progressed into electrical shock sensations on the skin in different areas of my body. Then it turned into pain in my extremities, joints, fingers. My nerve conduction study showed neuropathy in the legs but i am convinced i have small fiber throughout my whole body since i feel the pain and electrical shocks everywhere. brain mri, neck mri, and bloodworks have all came back normal. I'm trying to convince my neuro to send me for a skin biopsy even though he says he doesnt think i need that yet. Someone please help me. I need someone to talk to about this horrible problem. email me at (please use forum contact methods)
I had the exact same symptoms and misdiagnosed for years. Numbness, weak and sore muscles, tingling, foggy head, peripheral neuropathy, imbalance etc. My chiropractor helped me discover it was mercury poisoning. I had my amalgams taken (9/12) out and followed the bioidentical dentists mercury chelation protocol but nothing happened after 6 months. I sought out a homeopathic doctor experienced in heavy metal poisoning and told me that my cells were so toxic that the supplements (as well as the nutrition I was putting in my body were useless because my cells were basically full of garbage. She had me do a specific 30 day nutritional cleanse and when I came back to see her after 30 days it was a miracle. I had more energy, clarity, my feet were no longer numb, I lost inches in my waist (mercury creates visceral fat because your fat cells protect your organs). That was in March 2013. After the nutritional cleanse I was able to take the chelators and in January 2014, I am feeling normal again. If you give me your number I can call you and tell you what helped me. I leaned so much in the four years of testing, missed diagnosing, $20,000 spent, time wasted, and frustration. I want to help as many people as I can recover from mercury poisoning.
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Old 01-19-2014, 02:34 PM #8
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Originally Posted by mmsutton View Post
I had the exact same symptoms and misdiagnosed for years. Numbness, weak and sore muscles, tingling, foggy head, peripheral neuropathy, imbalance etc. My chiropractor helped me discover it was mercury poisoning. I had my amalgams taken (9/12) out and followed the bioidentical dentists mercury chelation protocol but nothing happened after 6 months. I sought out a homeopathic doctor experienced in heavy metal poisoning and told me that my cells were so toxic that the supplements (as well as the nutrition I was putting in my body were useless because my cells were basically full of garbage. She had me do a specific 30 day nutritional cleanse and when I came back to see her after 30 days it was a miracle. I had more energy, clarity, my feet were no longer numb, I lost inches in my waist (mercury creates visceral fat because your fat cells protect your organs). That was in March 2013. After the nutritional cleanse I was able to take the chelators and in January 2014, I am feeling normal again. If you give me your number I can call you and tell you what helped me. I leaned so much in the four years of testing, missed diagnosing, $20,000 spent, time wasted, and frustration. I want to help as many people as I can recover from mercury poisoning.
It took many Dr's 3 year's to dx whatI had. Fianally a nuerologist did a emg on me and just from that test,I found out I had full body RSD! I have had it now since 2006! Take Care! Breezy55
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