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Question for folk with IVIG experience re Insurance

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Old 10-23-2012, 10:12 PM #1
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Default Question for folk with IVIG experience re Insurance
I have a friend who is getting IVIG for lyme-induced neuropathy. Her neurologist iis doing EMG/NCS every 3 months to get her recertified, and charging her a fortune (Out of network). This didn't sound right to me and I looked up two insurance company websites for what doctor's must do to renew certification, and both said the doctors had to submit proof the patient was benefiting, in the form of a scale of their functioning. Neither said NCS/EMGs had to be repeated every 3 months.

I'm wondering what is the experience of folks who have gotten IVIG...did you need to get nerve studies done every three months to stay on the treatment?

thank you.
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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Old 10-25-2012, 05:18 PM #2
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Sorry I can't supply you with any info info, but its nice seeing you post as you have helped so many suffers.
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"Thanks for this!" says:
LizaJane (10-25-2012)
Old 10-25-2012, 05:25 PM #3
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Default still wondering...
Does anybody know a better place to post this query?
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--- LYME neuropathy diagnosed in 2009; considered "idiopathic" neuropathy 1996 - 2009
---s/p laminectomy and fusion L3/4/5 Feb 2006 for a synovial spinal cyst
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Old 10-26-2012, 12:32 PM #4
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Default Ivig
I believe that people with myastenia gravis have to have IVIG treatments. Maybe you could try in that forum?
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