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Old 11-02-2012, 09:40 AM #1
Stacy2012 Stacy2012 is offline
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Yes, you may be right. I was avoiding putting socks on, as I thought keeping my toes cooler would help them so I was just wearing my in house slip on shoes without socks, as I do in the summer. I thought it would help to keep them cool because in the summer my feet got worse if I wore socks.

But I think you are right...I need to keet them warm without getting hot. Today I put on a thin pair of socks with my shoes, hopefully that will help.

geeze, just when I thought I had this all figured out.

thanks!!
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Old 11-03-2012, 02:33 AM #2
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Quote:
Originally Posted by Stacy2012 View Post
geeze, just when I thought I had this all figured out.
Bwahahahahahaha!!! If you've got this all figured out, you're a better man than I am, Gunga Din!

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Old 11-04-2012, 09:34 AM #3
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I am miserable again.

Things had gotten so good when I started benfotiamine, it was a new lease on life. Now however with the weather change or for whatever reason, the pain and burning in my feet is horrid. Last night was a repeat of days gone by where my feet hurt so bad, any sheet that touched them was pain. sticking them out of the blanket was a new kind of pain, the air felt like icicles surrounding them.

Prayer for relief consumed me again.

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Old 11-04-2012, 09:50 AM #4
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I had 3 days or so of severe burning on vacation.

I still get them, but not very often any more.

I don't know why either. Sometimes I think it is stress.
Sometimes connected to what I ate that day.

Example. We had a perch lunch on vacation at a local restaurant, my son and I.
We were surprised at how large the portions were too. Perch is expensive and sometimes in short supply up there. (lake perch).
But it tasted fine, so we didn't think about it. It was very lightly breaded and fried, but wasn't greasy.

Both of us by 5pm had burning feet. I took a brief nap and he went hiking on the shore taking pictures of the wildflowers and unusual lichens on the rocks etc. He does ultra close ups.
Like this photo from 2011...
Fringed Gentian (rare) and wild asters

Anyway he came home with burning feet. And mine were doing the same. So I suspected old fish...that is a prime histamine maker, and perhaps some MSG because it is a restaurant. So I got out the AlkaSeltzer, and bingo in 15minutes both of us had the burning resolve. He doesn't have PN either. But he has had some mild carpal tunnel problems when he plays guitar too much. So who knows? He might be on a path that will become PN some day.

So for me at least some burning is often due to something I ate previously that day or the day before.

Have you tried an antihistamine like Benadryl at night? Sometimes that helps too.
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Old 11-04-2012, 10:51 AM #5
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I am on zyrtec almost year round for allergies. I use to use benydryll, or should I say MISUSE benydryll, almost nightly for a sleep aid about a year ago. Stupid, i know...so I don't take it anymore at all now.

I did eat more carbs this week than the normal strict diet, but I kept my glucose under control so I was ok. Maybe its the extra carbs.
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Old 11-04-2012, 12:44 PM #6
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I don't like meds, so I take Quercitin and Nettles for colds and allergies. Also helps my mast cell connection to POTS. Just in case you want to look into that.

Benedryl has to be taken carefully. It can cause short term memory problems if taken a lot.
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Old 11-04-2012, 04:29 PM #7
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Quote:
Originally Posted by Stacy2012 View Post
I did eat more carbs this week than the normal strict diet, but I kept my glucose under control so I was ok. Maybe its the extra carbs.
That's possible; it can do it to me. Does RLA work for you?

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Old 11-04-2012, 07:12 PM #8
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I have not tried RLA yet. It was on my list to try but then benfotiamine worked so great that I never got it.

I only take magnesium, B12, Benfotiamine, potassium and flaxseed.

I am also on hydrochorothyzide (sp) for blood pressure. Naturthroid for thyroid.

Sally...memory loss? wow that may be my problem.
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Old 11-06-2012, 04:49 AM #9
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I have lived in FL,CA,MI so I have experienced all kinds of weather on my condition. Each type does a different kind of flare up.
Anyhow though it may not be the same I do sometimes get this what I call icy hot feeling where I am frozen yet burning. For me though with the weather if it is hot or cold my body seems to feel it to the extreme so I try to limit exposure in those extremes which is not always possible of course. Once I get flared or for ex cold it is hard to warm up and settle it down.
Have you thought of getting a space heater? I have one and it helps to take the chill out of my lower area. Also microfleece throws to put over myself but that are light. Baths too.
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