[Nervous1]

Hello All,

I completed my tilt table test yesterday and would have had more fun sticking bamboo shoots under my fingernails. I felt like I was going to die. I lost all awareness and passed out. Took over an hour before I could leave.
The test produced syncope
Prodromal symptoms were reproduced
Test suggests that patient's symptoms are due to Vasodepressor syndrome

I am due to begin a 5 hour treatment of IVIG beginning on the 21st of this month. The cardiologist did not prescribe anything for the Vasodepressor syndrome due to the fact that I am beginning IVIG. I read somewhere that the IVIG could help with the Vasodepressor syndrome.
That would be great to kill two birds with one stone, just as long as I am not one of them

I will give another update after the IVIG treatment. Hopefully I will tolerate it.

On the brighter side, I have been able to walk about a mile a day or more with breaks. I have also been lifting light weights again. Boy does this help the body and brain My feet sometimes do not even hurt. I attribute this to the supplements, gluten free diet light exercise and compression socks. Never give up, I admit I was ready!

I have no plans to quit fighting this horrible disease and it really helps to know who you are in the ring with!

[Sallysblooms]

It is terrible for sure. Yes, the supplements make a huge difference. Did you find out the cause? Mine is Autonomic Neuropathy. So I know to concentrate on healing the nerves. So much better now.

[Nervous1]

I have the presence of autoimmune D in my body, and so it is believed that my system is mistakenly attacking my nerves.
This is what I tested positive for @ .09 nmol/L
The most commonly encountered autoantibody marker of autoimmune dysautonomia is the neuronal ganglionic alpha-3- (acetylcholine receptor) autoantibody. This autoantibody to date is the only proven effector of autoimmune dysautonomia. A direct relationship has been demonstrated between antibody titer and severity of dysautonomia in both alpha-3-AChR-immunized animals and patients with autoimmune dysautonomia. Patients with high alpha-3-AChR autoantibody values (>1.0 nmol/L) generally have profound pandys autonomia. Dysautonomic patients with lower alpha-3-AChR autoantibody values (0.03-0.99 nmol/L) have limited dysautonomia.