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Old 11-06-2012, 04:26 PM #1
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Nervous1 Nervous1 is offline
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Join Date: Jul 2012
Posts: 117
10 yr Member
Nervous1 Nervous1 is offline
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Nervous1's Avatar
 
Join Date: Jul 2012
Posts: 117
10 yr Member
Smirk Update on Nervous1 - Dysautonomia (Not formal DX)

Hello All,

I completed my tilt table test yesterday and would have had more fun sticking bamboo shoots under my fingernails. I felt like I was going to die. I lost all awareness and passed out. Took over an hour before I could leave.
The test produced syncope
Prodromal symptoms were reproduced
Test suggests that patient's symptoms are due to Vasodepressor syndrome

I am due to begin a 5 hour treatment of IVIG beginning on the 21st of this month. The cardiologist did not prescribe anything for the Vasodepressor syndrome due to the fact that I am beginning IVIG. I read somewhere that the IVIG could help with the Vasodepressor syndrome.
That would be great to kill two birds with one stone, just as long as I am not one of them

I will give another update after the IVIG treatment. Hopefully I will tolerate it.

On the brighter side, I have been able to walk about a mile a day or more with breaks. I have also been lifting light weights again. Boy does this help the body and brain My feet sometimes do not even hurt. I attribute this to the supplements, gluten free diet light exercise and compression socks. Never give up, I admit I was ready!

I have no plans to quit fighting this horrible disease and it really helps to know who you are in the ring with!
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