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-   -   Oh the horror of night. (https://www.neurotalk.org/peripheral-neuropathy/180274-oh-horror-night.html)

Stacy2012 11-29-2012 08:30 AM

Exercise makes mine worse. Matter of fact a busy day or even just a 30 min arobic video will make my feet flaming hot for hours and the night is usually worse also.

Like I needed another excuse to NOT exercise. :(

On a side note, the last 2 days have been better and the different thing is: I added my magnesium supplement back in. Yeh for magnesium.

I know its the B12 causing me to break out in bumbs but I am still adding things back slow to prove it.

dac122 11-29-2012 08:41 AM

Quote:

Originally Posted by Stacy2012 (Post 935503)
Exercise makes mine worse. Matter of fact a busy day or even just a 30 min arobic video will make my feet flaming hot for hours and the night is usually worse also.

Like I needed another excuse to NOT exercise. :(

Ditto - same here. I pay the price for exercise and can not longer exercise at that level. But it is important we stay active within our pain tolerances, for so many reasons.

My dad suffered the ravages of rheumatoid arthritis for 55 years. I saw on a daily basis how hard it was for him to just get out of bed in the morning. To him it was unthinkable to not fight the disease and become a "basket case". I know he would trade any of my bad days with his best days. To this day, I am inspired by his struggles.

nide44 11-29-2012 10:39 AM

I think that it is because I'm just worn out from a whole day of fighting and grappling with the pain. My body knows what I've been thru all day, even if I've been able to block it by getting involved with something to take my mind off of my PN problems for minutes or even hours at work. By the time nighttime rolls around I think my body has had it, and complains when I try to sleep. I have tried the biofreeze, Icy Hot, feet in epsom salt solution, feet out of covers, whole body on top of sheet or covers, etc. I think that I finally sleep when my body just shuts down. A few shots of vodka sometimes helps to make me sleepy, too - but sometimes I pay for it in the a.m. by waking to worse than normal(ly?). If you can call waking to burning and pain, daily...normal.
I put Icy Hot on my feet every morning to just get me downstairs to my 200mg. Lyrica & 100mg. tramadol a.m. dose (1 of 3 every day- sometimes an extra 100 tramadol in the middle of the day) Also, having emphysema (smoking cigarettes for over 50 years) doesn't make climbing stairs any easier.

Stacy2012 11-29-2012 11:31 AM

:( I hate reading about the throws of pain we all go thru in the night because there really isn't any cure. Ever. All we can do is face each night as it comes and hope relief comes sooner than later.

I am still doing 30 min arobics every day. I can do the arobic tape easier than actually walking. When I walk outside it is 10 times worse, I guess the force of my feet hitting the pavement at a fast walk is harder than jumping around to an arobics tape. I like to walk but the pain is worse.

When I can not do arobics anymore then I will try something else. Maybe exercise in a pool, that sounds cool, refreshing and fun. I tried it years ago and if you do it right you can get a great work out....and my feet would love being in the water...i think.

Susanne C. 11-29-2012 05:41 PM

I am still walking for about an hour most days, with two hiking poles. It is the best part of my day and I would happily sacrifice all other activities (cooking, laundry...;) ) to go to the park. I have noticed a big difference in how my feet feel later if I have been walking on woods trails rather than cement or asphalt. The hard surfaces are much harder on my feet, ankles, and legs, and I just don't walk in the neighborhood anymore. We are lucky to have a state park about two miles away.
Walking at the mall seems the worst of all.

Brue 11-29-2012 06:15 PM

Quote:

Originally Posted by Stacy2012 (Post 935560)
:( I hate reading about the throws of pain we all go thru in the night because there really isn't any cure. Ever. All we can do is face each night as it comes and hope relief comes sooner than later.

I am still doing 30 min arobics every day. I can do the arobic tape easier than actually walking. When I walk outside it is 10 times worse, I guess the force of my feet hitting the pavement at a fast walk is harder than jumping around to an arobics tape. I like to walk but the pain is worse.

When I can not do arobics anymore then I will try something else. Maybe exercise in a pool, that sounds cool, refreshing and fun. I tried it years ago and if you do it right you can get a great work out....and my feet would love being in the water...i think.

I work out in the pool. I do isometrics - you don't even have to swim conventionally. I went down to the beach the other day and went into the surf, and my feet were absolutely destroyed about 24 hours later - it felt like I had broken bones, just from the exercise, and the burning and stinging was much worse than usual too. They're just starting to come around now. Walking is tough for me, even though I wear Z-Coil shoes with springs on the heels that help. Forget jogging. I have to go into the pool. That's the only thing left for me.

Stacy2012 11-30-2012 12:03 AM

Maybe sea salt was a factor. Or the rough surface you were standing on.

I have zcoils. Love them. But I can't say they"help" my situation but i do love them.

dac122 11-30-2012 08:16 AM

Quote:

Originally Posted by Brue (Post 935678)
I work out in the pool. I do isometrics - you don't even have to swim conventionally. I went down to the beach the other day and went into the surf, and my feet were absolutely destroyed about 24 hours later - it felt like I had broken bones, just from the exercise, and the burning and stinging was much worse than usual too. They're just starting to come around now. Walking is tough for me, even though I wear Z-Coil shoes with springs on the heels that help. Forget jogging. I have to go into the pool. That's the only thing left for me.

Brue, I used to jog and would like to return to some kind of aerobic activity like that.

Does working out in a pool really work - any burning or pain afterwards?

Brue 11-30-2012 11:57 AM

Quote:

Originally Posted by Stacy2012 (Post 935754)
Maybe sea salt was a factor. Or the rough surface you were standing on.

I have zcoils. Love them. But I can't say they"help" my situation but i do love them.

Walking would be much more painful for me if it weren't for the springs in the heels. It takes about 30-40 pounds off of me. It doesn't solve any of the pain, it just keeps it from getting worse. Got a blind date through a friend today, and every time I've showed up in z-coils, the reaction hasn't been favorable. *what are those?* *Uh, well...* But what can you do, they're going to find out that you're suffering non-stop at some point anyway. Either they can handle it or they can't. There's nothing I can do anymore.

Brue 11-30-2012 12:14 PM

Quote:

Originally Posted by dac122 (Post 935801)
Brue, I used to jog and would like to return to some kind of aerobic activity like that.

Does working out in a pool really work - any burning or pain afterwards?

It helps my burning and pain by being in the water. Somebody had mentioned having a problem with chlorine, but our pool uses salt to clean it, and I haven't had any problems with it. I've tried running underneath the water, but usually I'll just do isometrics, keep myself afloat for 5-10 minutes and the activity that involves, things like that. I'll put my back to the pool wall, and wrap my arms around the ledge and have my feet doing bicycle movements under the water - I'll swerve my hips to the right, then the left while I'm bicycling. Sometimes I'll swim, do the backstroke, breaststroke, freestyle. There's a whirlpool there, and it's hot - I'll go in there, but I don't put my feet in front of the water jets, THAT will aggravate and stimulate the nerves and cause burning and buzzing for me. But the hot water doesn't seem to hurt it, but help. I go in the sauna sometimes, and that loosens up your whole body, obviously, without affecting your neuropathy in a negative way because of the temperature of the water. That's pretty much my routine.


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