advertisement
Reply
 
Thread Tools Display Modes
Old 11-28-2012, 01:52 PM #1
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default Bad news.....

So the cold laser therapy is having the opposite effect. It's making the pain worse not better... sooo the Physiatrist thinks I might need surgery...waiting to get MORE tests done. And the Tramadol is starting to NOT be effective in treating my pain level.....oh happy day .... I am getting so tired of this pian. I can't sleep at night. Working is extremely difficult as well.....I am barely making it through each day
CRPSsongbird is offline   Reply With QuoteReply With Quote

advertisement
Old 11-28-2012, 03:39 PM #2
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Emily

so sorry you are having a bad time with PN. I also go to a physiatrist. Surgery would be the last thing she would advise me to do. What kind of surgery was recommended? Have you tried lotions with Ketamine in it? This helps me alot, and numbs areas effected. Keep in touch. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 11-28-2012, 03:48 PM #3
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default

I'm not sure what type of surgery he was just concerned about rehab not working. I have to wait for the MRI (I think) before he can say for sure what I'll need. sorry if I sound whinny though, I am just soo tired...sigh. Like I tell my 7yr old..I think I need a nap
CRPSsongbird is offline   Reply With QuoteReply With Quote
Old 11-28-2012, 04:31 PM #4
Stacy2012 Stacy2012 is offline
Senior Member
 
Join Date: Jul 2012
Posts: 1,027
10 yr Member
Stacy2012 Stacy2012 is offline
Senior Member
 
Join Date: Jul 2012
Posts: 1,027
10 yr Member
Default

Im so sorry for your pain and disappointment.
Stacy2012 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CRPSsongbird (11-28-2012)
Old 11-28-2012, 04:46 PM #5
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Emily

Never be worried about fussing here. NT is here to listen anytime. We all get that way when overwhelmed. Take the nap if you can. You have friends right here. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CRPSsongbird (11-28-2012)
Old 11-28-2012, 05:23 PM #6
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default

Quote:
Originally Posted by ginnie View Post
Never be worried about fussing here. NT is here to listen anytime. We all get that way when overwhelmed. Take the nap if you can. You have friends right here. ginnie
YA, I would take a nap, but I'm at work.......thank you so much for caring!
I am trying to be strong but sometimes,honestly, I feel like breaking down and crying. I never had a clue how chronic pain can affect your life and emotions! And seriously thank you foe your support. My fiance is getting tired of me talking about it, and I'm at a total loss of what to do. I've put my trust in the doctors but none of them seem willing to treat my pain as well as the injury.....
CRPSsongbird is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (11-29-2012)
Old 11-28-2012, 05:33 PM #7
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Lidoderm patches.... these are sodium channel blockers and
stop pain transmission by nerves.

I would ask for these before any surgery, and use them for
at least 2 weeks or more to see if they can turn that nerve off.

If you have beginning RSD...you need special treatment.
I'd post on our RSD forum...as needles and surgery can make RSD worse in some people.

http://neurotalk.psychcentral.com/forum21.htm

There have been some posts about venipunctures causing this on that forum. Do a search using "venipuncture" as a keyword.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 11-28-2012, 06:30 PM #8
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
Lidoderm patches.... these are sodium channel blockers and
stop pain transmission by nerves.

I would ask for these before any surgery, and use them for
at least 2 weeks or more to see if they can turn that nerve off.

If you have beginning RSD...you need special treatment.
I'd post on our RSD forum...as needles and surgery can make RSD worse in some people.

http://neurotalk.psychcentral.com/forum21.htm

There have been some posts about venipunctures causing this on that forum. Do a search using "venipuncture" as a keyword.

Its called CRPS now or Complex Regional Pain Syndrome. And that is what I've been diagnosed with. Also it was most likely from the tourniquet as well as the venipuncture....i will try there but my pain is SOOOO OUT OF CONTROL RIGHT NOW! I am doing all i can not to cry! my doctors office said the soonest they can see me is tuesday....what can I do? I don;t want to go to ER or Urgent care and be turned away. I've heard that they wont treat CRPS or Chronic pain conditions or give pain killers for it....what can I do I seriously can NOT take this. My pain level is probably about a 9 right now!
CRPSsongbird is offline   Reply With QuoteReply With Quote
Old 11-28-2012, 06:34 PM #9
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

If you have that diagnosis already, you need to post on RSD forum.

People there have experience with this.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
CRPSsongbird (11-28-2012)
Old 11-28-2012, 07:36 PM #10
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
CRPSsongbird CRPSsongbird is offline
Member
 
Join Date: Nov 2012
Posts: 407
10 yr Member
Default

Quote:
Originally Posted by mrsD View Post
If you have that diagnosis already, you need to post on RSD forum.

People there have experience with this.
bu ti really like the people here
CRPSsongbird is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Happy Holidays- Good News/Bad News roguepuppet Myasthenia Gravis 3 12-23-2010 11:49 PM
Article: good news for the newly diagnosed, fair news for the rest of us fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 14 06-18-2009 07:06 PM
BBC News: BBC News website meets Carolyn Noble, about being a PD Nurrse Specialist Stitcher Parkinson's Disease 0 11-19-2007 12:54 AM
Good news/bad news kinda thing jarrett622 Peripheral Neuropathy 15 08-25-2007 03:07 AM


All times are GMT -5. The time now is 02:23 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.