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09-23-2013, 01:49 PM | #71 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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09-23-2013, 01:54 PM | #72 | ||
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Grand Magnate
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And, of course this does not work for CMTers as CMT is inherited. Probably fine for someone who does not have an inherited neuropathy.
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09-23-2013, 07:43 PM | #73 | ||
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New Member
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Thank you for your comments. My peripheral neuropathy was very intense after my initial reaction to Ciprofloxacin this July. Although it is much improved through diet and lifestyle changes, it's hard to say if the damage is temporary or permanent. I am not very familiar with other forms and causes of neuropathy, so my suggestions are definitely more related to quinolone induced neuropathy.
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07-23-2015, 09:21 PM | #74 | ||
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Where are you now Jesse M? I realize this is an old thread. It's now 2 years later. I am just wondering If you had any improvement in your PN?
Thanks!!! |
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07-24-2015, 08:41 AM | #75 | |||
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Member
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I may possible have just figured out where my idiopathic PN came from!! I have recently been reading about long term use of Ambien causing Peripheral Neuropathy. It is listed as a side effect under Central and Peripheral Nervous System. Now, thanks to this post I am reading about the relationship between some antibiotics and PN.
I have used Ambien for years as prescribed by my doctor. I have taken it continuously since January due to many horrible events in my life . I stopped a week ago after reading about it and my symptoms are starting to lessen. I do not want to get too excited because every time I think I've figured something out my symptoms start up again and I'm back to square one..... Then I remembered my pulmonary doctor put me on azithromycin 250 mg a day for 2 months May and June. I don't know if this effected me as I was already having symtoms but I doubt it was helpful. Also this antibiotic is not on the list of ones with PN side effects but at this point I don't have a lot of trust in Pharmaceutical companies. I am definitely going to look into Benfotiamine and make my standard liver tonic (Beet Kvass if any of you are interested let me know and I'll explain further.) Thank you!!! |
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07-30-2015, 02:52 PM | #76 | ||
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Member
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When i first got this i found a capucturist with a background in neuroligy and he adviced me to take Alpha lipioc acid&Acetyl L-Carnitine and borage oil. Its a different aproach then what you have taken. So why take these vitamines?What reseaurch have you done to support this approach?I am very curouis. I am now 6 years into this PN thing. If i mountain bike 35 km i will get a very nasty flare-up for about a week where i dont like my feet. The same goes for doing squats so i am really limited at this moment which is a big frustration. My PN developt a completly diverrently,in my case it developt very slowly and got wurse over time.I dodnt experience the pain that goes with dying nerves. What is very uncomfortable are the flare-ups mostly after a sport activity,somethimes if i really feel good even the numbness is less dominant. |
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07-30-2015, 07:19 PM | #77 | |||
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Magnate
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JesseM has not been around to Post for about 20 months. Perhaps you would like to expand on your Post so current Members can address you personally. Welcome to the Community. Dave.
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You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers To the shapes we now possess. The Sage - Emerson, Lake & Palmer. |
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"Thanks for this!" says: | Lara (08-01-2015) |
08-01-2015, 08:32 PM | #78 | ||
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Junior Member
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Hi English Dave. I started getting PN symptoms about 3 1'2 months ago at the tail end of taking a long course of Cipro. It is the most likely cause as the other causes have been ruled out, according to my neurologist. I had read JesseM's post about his experience with a Fleuroquinolone antibiotic as a cause and was wondering, hoping, in fact, that he did indeed get better to the extent that he hoped. So as to give me some hope as well.
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"Thanks for this!" says: | EnglishDave (08-03-2015), Lara (08-01-2015) |
08-01-2015, 08:59 PM | #79 | |||
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Legendary
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Hello and welcome to the NeuroTalk Support Groups.
A good way to find more posts regarding Fluoroquinolone or Fluoroquinolones, is to use the forum search feature. I'll leave the link below. There is no need to put in a username but check for posts on the Peripheral Neuropathy Forum. I just did that myself and found a number of posts that may be of help to you. Unfortunately you would need to do your own search as my page filled with search results will not copy over. http://neurotalk.psychcentral.com/search.php p.s. There are also some in the PN Tips, Resources, Supplements & Other Treatments sub-forum |
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"Thanks for this!" says: | EnglishDave (08-03-2015), SU30boy (12-13-2015) |
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