So...you are saying even if we get our numbers where they should be, we will still have thyroid problems...then whats the point?

My tsh, T3 and T4 are all now in the "normal" ranges but at the high end. I plan to go to the doctor in 2 months and if the numbers have not come down I will ask him to up my dosage. I will present my reasons and some research as to why I want more medication. If he does not want to do it, fine, I will go in search of a doctor who will.

I refuse to let a stubborn doctor dictate "numbers" and ranges to me without proof.

But if you are saying it wont matter....then I am confused. I thought once we got the thyroid numbers where they should be for our body that symptoms would go away.

My symptoms had gotten GREAT but now that I have stayed at this dosage so long, some things are coming back. I was hoping an increase in medication would help again.

I think you can get close.... but I don't think you can be 100%.

We just don't have drug delivery accurate enough to match the
normal feedback loop involved in thyroid hormone secretion.

Certainly serious deviations can be managed. But who is to say each person is identical in how they process oral meds?

When people are exposed to stress, trauma, temperature changes, illness, surgery, etc, their normal thyroid adjusts for these events. No oral daily dosing is going to be that flexible.
And doctors don't understand that. In the elderly it is more extreme and some doctors will give thyroid testing and hormone to elderly who are seriously ill, but not all of them will do it.

Keep in mind your PN may be due to other factors on top of the hypo ones.

Ya, it could be from some spiking glucose numbers but really I don't think it is from anything else. Unless there is something hidden I can't see. I have not taken the meds I see talked about all the time. Unless zyrtec is a hidden med. I think it is thyroid, even though I use to believe it was not. I use to completely believe it was diabetes but I can't prove or disprove that. I am not diabetic though my numbers seemed to spike when i first tested I have no idea if they did all the time, how long, etc. I can only go by my first week of testing because I altered my food imediately and stopped it from happening again, so who knows.

It makes sense that meds can't be controlled the perfect way. I guess I will continue on my path to get my perceived "perfect" numbers and see what happens to my symptoms. My numb spot on my heel was getting some feeling back but in the last week it has started to tingle and ache like it did right before it went numb so i wonder if its about to take a bad turn again.

I really think my medication needs to be upped, I am on a low dose, only 1/2 grain, which is not much but I achieved great results with it but I think it's no longer enough.

thanks mrsD

It does take months to see results with thyroid.... you could have needed more, in the first place. Going slow is best too...you want to protect your bones. Excess thyroid hormone tears down bone, faster than you can rebuild it.

hello well I have been diagnosed with type 2 diabtes and in 4 months it started with me in october on 2010 since the cancer operation on my stomach and the hernia repair my back the pinched nerve i have developed the burning feet all the time and the painfull left side of me the meralgia paresthetica is affecting both legs I take morphine and oxcycodone daily for pain this has put me out of work it is not good I have heard it will not gett much better I burned my heel on my foot from using a heat pad cause i have lost feelings in my lower extremities I hate the burning pain form my hip down to my feet I finally get a nights sleepon the pain pills but still have a pain during the day at about a 5 so I WISH YOU WELL i TRY WALKING OFTEN TILLI GET MORE PAIN ONLY THING I CAN ADVISE IS TRY REALLY RESTING AND IT HELPS MAKE THE PAIN SUBSIDE

HELLO WELL WELL WELL i FOUND SOMEONE WHO HAS THE SAME PROBLEM I HAVE ITS HORRIBLE PAIN MEDS ARE THE ONLY HELP ALSO I TRY TO REALLY REST AT THE PAINFULL FLARE UPS I HAVE SO MANY PROBLEMS WITH THE NEUROPATHY ITS HARD TO FEL LIKE DOING ANYTHING MORNING IS THE BEST TIME FOR ME GLAD TO HAVE THE MEDS THEY REALLY HELP WITH GETTING A NITE SLEEEP GOOD LUCK OXCYCODONE AND MORPHINE REALLY HELPS TRY IT OUT TIME RELASE 15 MG LORPHINE 2 A DAY EVERY 12 HOURS AND I TAKE A OCXY 15 MG TO 3 TIMES A DAY ITS WORKING I CAN DO MORE WITH THE MEDS ITS THE ONLY TREAT MENT I HAVE SEEN THAT HELPS i HAVE MERALGIA PARESTHTICA TOO AND I HAVE LOST FEELING IN THE LOWER EXTREMITIRES GOOD LUCK YOU COULD GO TO A PROGRAM THAT OFFFERS LIDOCANE WITH ELETRICITY THERE EXPENSIVE COSTLY 3,000 FOR THE 8 WEEKS THREE TIME A WEEK TO THE CLINIC THERE OFFERING IT OUT HERE IN MASSACHUSTES NEWHENGLE HEALTH AND WELNESS IN CHLEMSFORD MASS AND WOBURN MASS IS OFFERING IT TO MUCH MONEY FOR ME AND THE INSURANCE WILL NOT COVER IT BUT TRY IT OUT IF YOU CAN AFFORD TO

So far I am dealing with it naturally, have not gotten any pain medication to help deal with it. i am thankful that supplements, diet, thyroid meds, I have been able to maintain and actually gotten better.

It sounds like you have a much harder time with it, I hope you feel better and find what works for you.

Hi Jemjeff,

One day at a time. I am lucky that my meds help me at night and I sleep well. So far I am still able to work but I know it wont be much longer the thought of applying for SSI is scarey but I keep reading and getting things ready for when I do I hope things get better for you. Dawn

Hi Jemjeff,

Do you take any of the supplements talked about on this forum? I started with the Bentofiamine and I believe it has really made a difference in my need for narcotics.

The only narcotic I take is Percocet but I'm so anxious about taking it (and becoming addicted - I have an addictive personality) that I really try not to.

My doctor told me it would never get better...but I feel I've had some improvement! Hopefully you find something that helps you too!

Amy

Benfotiamine has been a miracle for me. Wont go a day without it.