I like this post and wish I could sent it to my doctor who listens to me like I am a lunatic when I try to describe my heat/cold sensations.

My PN came from taking a statin drug. When I go to bed my feet feel very cold.
I put an electric blanket over my feet until they feel like they're warm and then remove the electric blanket. During the night I will wake if the sensation of burning feet and need to slip them out from underneath the covers. Once cold again I can tuck them back under the covers. I play the hot-cold game most every night.

I also cannot stand the weight of blankets on my feet. I made a simple frame from 1/2" pvc that holds the bed covers just off my feet.

I believe the nerves in my feet overreact to conditions sending extreme signals when the condition is actually mild. Real or not the pain and discomfort seems as real as it can get.

Many of us do the covers at night, on and off. I've done this since I can remember, in fact! But now it is automatic and I don't remember much at night, unless I wake up shivering or something. I keep the bedroom pretty cool in winter, too.

I don't use a top sheet...I find it very confining. I have a thin cotton quilt I use instead.

OMG Donsabi!!!! So funny, I could have written your post except that I have not made a device to hold the blankets up off my feet yet, ROTFLMBO!! Thats so funny and desperate and smart, lol. I just bunch the blankets up over my feet to make a tent, lol.

MrsD is right, I think we all play the footsie/blanket game. Thats what I meant when i said I wish for once I could just go to bed, with my feet under the covers, and go to sleep. It's a game every night, the question is, how long will it last. Some nights I give up and go to the couch. What is it about my bed that makes EVERYTHING WORSE.

I think this post is mostly a comisserating post. (however you spell that word, lol) Sometimes, it just feels good to say it, even though its all been said before, it feels good to say it, and say it to other people who know EXACTLY what I am talking about. I swear my husband would like to roll his eyes and say here we go again..when I start talking.

I cannot stand sheets or blankets on my feet/toes when laying on my back. I have a pillow at the end of the bed holding the sheets and blankets (not many of them like one and a comforter) up a bit. When I'm on my side there is no problem.

Your frame is great. You also can buy one if you cannot make one.

I also have to get my feet out from under the bedding when they seem hot and painful. It is the nerves for me. Then when that's over with under they go again. Can't stand an electric blanket at all. Nor can I wear socks. Drives my feet up a wall. Nerve thing again.

Yes, it is being treated, but I believe it went untreated for a very long time..years.

I am on desicated NatureThroid perscription. When I started my TSH was a 10.9 and when I drew blood last month it is now a 2.8 so it is getting better, along with T3 and T4, all are in "acceptable" ranges. However I believe it needs to get lower yet and I am going to have to face my doctor in 2 months and hope I can persuade him to up my dosage, and perscribe according to symptoms instead of those stupid ranges. It may be a struggle, I have a feeling he is going to say all is fine.

My feet are OUTSIDE blankets more often than not. My husband will come in and say are you crazy it's freezing in here! I find that if my feet are hot I tend to throw off blankets on my body too. weird.

I am hypothyroid (on synthroid since I was 14...almost 30 years ago) and I'm also a type 2 daughter of a type 1 diabetic. CMT tests have been suggested because a non-diabetic grandfather had neuropathy too. I might be a triple threat! Haha

I never had much of a problem until a horrible night with side effects from Lovazza (sp?). Seems like since then it went from 0 to 50 overnight. It's been about 2 years of this most acute phase. I'm working the supplements, acupuncture, massage and meditation in addition to my Lyrica/Cymbalta/Neurontin cocktail. I will say I feel very grateful to have the treatments available to me that I do. I know that even 20 years ago that was not the case.

I will check out the posts on here about shoes. I did buy a pair of mules - for easy removal. We'll see how it goes!

I have to admit that I sleep with just a throw blanket so it doesn't touch my feet when I sleep. Sleep is hard to come by so when I finally get to sleep I want to stay that way.

I will say the 'commiseration' on this thread has done more for my spirits than anything in ages!!

Merry Christmas everyone!!!

Amy

The most beneficial supplement I take is Benfotiamine by Dr's Best. It is amazing. It completely CONTROLLED the burning for 2 months,thought I was cured it worked so good. After 2 months episodes started again but it is still controlled with benfotiamine. If you have not tried it, I highly suggest you look into it.

My benfotiamine, magnesium and B12 are vital. I wish I could take Rlipoic but it gives me heartburn.

Merry Christmas! It is nice to share with friends who understand.

p.s. I consider myself prediabetic since my bg numbers spike with carbs, so I watch that too.

So I couldn't bring myself to put on shoes to the holiday gathering..My trusted flips made it through and yes even in the snow I made it home without the burning tonight Merry Christmas everyone!!

OMG, Dawn, doesnt the freezing cold cause them to thaw out later and hurt???? No way could I wear flip flops in weather that cold. The minute I come in and they start warming up I get that freezer burn feeling.