NeuroTalk Support Groups - Changing eating habits

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Changing eating habits (https://www.neurotalk.org/peripheral-neuropathy/182343-changing-eating-habits.html)

MSG in Chinese.... many things even when they say no MSG still have them. The noodles especially(LoMein)!

MSG is very difficult for PNers.

Quote:

Originally Posted by hopeful (Post 947263)

Hi Marie,
My SFN started just like yours, out of the blue. I thought I was exceptionally healthy. I tried to eat well and exercised 4-6 times a week. I keep looking but I don't know if they will ever find a cause. I agree with Stacey. I am trying to take control of my health. Doctors can be great and caring but they can only go so far. I have a really hard time taking meds. Try not to be too stressed. My neuropathy gets so much worse when I am. I find that since I have started to be healthy I fell better emotionally. At least I feel I am part of the process in my care. Did you started feeling worse emotionally after you started the Lyrica? I couldn't take it because it caused me to be very depressed and I am not usually. It is not like that for everyone though. Many people find it works great. Keep asking questions. There are some really great people here that are willing to help and have great suggestions. :hug:

Hi Hopeful
Thanks for responding. I always ate healthy. Always ate high fiber food , fish, some meat , fruits and veggies, water and green tea. Never had a weight problem , exercised on TM, long walks and floor work with lite weights. . I thought I was doing everything right but I still got Neuropathy ,with no cause. :mad: Go figure.. I am considered "prediabetic" , (my a1c was 5.7 GTT 167 ). Im believe it was all the high fiber food that caused my predid, altho I thought I was eating "healthy". My Endo dosent think the pred caused the neuropathy. :confused: I have cut back on "good carbs" and have added more meat and nuts, cottage cheese and peanut butter for protein.
All this pain has me confused , angry and now depresssed. I know stress dosent help but I cant help feeling this way. I feel like my body has betrayed me!
Im Still trying to adjust to lyrica, the side effects are still strong only on 50 mgs day. ( 16 days now) Im not sure if the lyrica is making me more depressed or its just me. ( I always had problems with anxiety). Im also afraid that if the lyrica dosesnt help, I may have to stop it. I have read withdrawal form lyrica can be horrid, even slow dosing. Did you have a hard time getting off of lyrica? What do you take for your pain?
Thanks again..

Quote:

Originally Posted by APJH (Post 947671)

Hi Kim! In trying to manage my own idiopathic SFN, I recently saw a nutritionist. I thought she'd tell me to try eliminating wheat or sugar or dairy. But the FIRST thing she said I must do is eliminate all chemicals and toxins. That means anything artificial in our food (hydrogenated oils, high fructose corn syrup, soy lecithin, artificial sweeteners like aspartame, etc.).

So I have not eliminated any food groups yet, but I've been eating a cleaner diet, free of chemicals or artificial additives. It wasn't that difficult--I had to throw out some salad dressings, grape jelly, BBQ sauce and snacks (I'm a salty snack-eater--now I stick with good ol' popcorn). I read labels more carefully, but haven't had to make any huge changes.

I do feel slightly better eating fewer chemicals, though my pain has not improved yet. Next, we'll focus on eliminating certain foods or food groups to see if it helps with the neuropathy at all.

All the best to you!
APJH

Hi APJH
I was recently dx with idiopathic SFN too. :mad:. Was wondern if you have diabetes or if you saw a nutritionist just for the neuropathy. Still can not find a cause. I was dx with mild prediabetes, but my endo doc said the pred is not causing my neuropathy. I have been using splenda as a sweetener subsitute , since im supposed to watch sugar now. Not sure what to do now since your nutritionist said not to use artifical sweetner. :confused: How long have you had your sfn and what do you take for your pain. some days the pain is just unbearable..any comments or suggestions would be appreciated.Thanks!

Quote:

Originally Posted by Marie33 (Post 947973)

Hi Marie. No, I am not diabetic or pre-diabetic. I just went to a nutritionist because I'm trying to investigate any possibility when it comes a cause for this neuropathy. I find it hard to believe a condition like this could be truly "idiopathic"--how could a painful condition just start out of nowhere?

As far as sugar substitutes go, there are some that are natural (unlike Splenda, which is artificial). I think Stevia and Truvia are both derived from natural sources. There's also one called Sweet Leaf that my nutritionist recommended.

I've had SFN for a couple of years (burning, numbness, tingling in both feet, plus some pain in my heels). I was only diagnosed 9 months ago when the pain started to increase. I tried a few different painkillers but I didn't like the side effects (plus, they only helped slightly). Now I go for acupuncture once a week, which takes the edge off the pain enough that it's tolerable.

Best,
APJH

Quote:

Originally Posted by Stacy2012 (Post 947734)

It was me that had the chinese and I do not do gluten free, so it was not the gluten that caused it. For me it was too many carbs. :(

They burned all night. It was awful.

Stacy,
Not all carbs are created equal; have you really been tested for gluten sensitivity?

Quote:

Originally Posted by Marie33 (Post 947973)

Unfortunately, your doctor discounts what you put in your body as having anything to do with the results. Prediabetes is often the precursor or cause of PN. It is often caused by gluten sensitivity, which is worse than sugar for your condition. At the risk of sounding too redundant, Glenntaj is correct.
I recommend spending $15 on Dr. Davis' book at Amazon: Wheat Belly.

No, I have not been tested for gluten problems.

But...it was about eating too many carbs because I can eat that exact same meal (have many times) and not have any problems, UNLESS I eat too much rice.

I don't usually eat all the rice, I scoop just a little to go with my chicken and give the rest to hubby but that time I was REALLY hungry and ate it all. Bad girl. :(

We get carry out with Chinese. I have to get a very bland
entree... usually shrimp with snow peas.

I have a little of the rice and put the rest out for the birds.
They love it! I keep it in the frig overnight --so it dries out a bit, and put it out with the bird food. It is very popular with the birds!

Quote:

Originally Posted by Stacy2012 (Post 948734)

Stacy, I'm sure you are observant enough to know that too much rice caused a problem. But there are other things that may have contributed to giving you that effect; things like whether you added more soy sauce with more rice. Rice is a carbohydrate, certainly, but not usually a highly inflammatory one. There may be other things that accompany it that caused your reaction.

Yes, well, Like I said, we eat this chinese almost every single week and I don't have problems, the only thing I did different this time was eat all the rice. :)