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- - narcotics? (https://www.neurotalk.org/peripheral-neuropathy/182703-narcotics.html)

Quote:

Originally Posted by featherbullet (Post 950493)

I'm sorry guys! That seemed pretty insensitive.I was genuinely surprised.
I guess my mom was lucky/has a high tolerance for pain? Unlike her daughter!! :(

So just a small update- I started the oxyneo yesterday morning. Maybe I have mentioned this-but the lyrica makes me dumb as rocks and forgetful. I don't feel like I took anything! Im loading advil on top of it, but that is also not safe.
I don't see this going well. If I was feeling better , I would start the cymbalta, but would prefer to wait until the weekend where if I experience the side effects, I can be at home under the covers.

Remember, I see the neurologist Feb 14th after an 8 MONTH wait. I see my pain doctor on the 6th I believe. By that time I will be begging him for something other than the small dose of time release oxyneo.

I missed work today because I was kept up until 2am with deep throbbing in my left calf/ankle area. I honestly thought I had a blot clot . I hadnt had that sensation before. It was scary. Needless to say, this pain is keeping me from work, and a normal life. just pills, rest, pills, rest, and motivation from you wonderful people. :hug:

Does anyone have experience with Nucynta? (Tapentadol)

Don't have experience with Nucyhnta; but do with Cymbalta. I take some pretty strong meds; Oxycontin, etc., but tried Cymbalta a few years ago and that put me in "la la" land. I can handle the narcotics without that feeling.

My sister-in-law had the same effect with Cymbalta last year; but no longer takes it. She is now on Lyrica and it is not causing her a problem like the Cymbalta did.

Just for your info.

Gerry

Quote:

Originally Posted by en bloc (Post 950500)

I too had the endometriosis surgery...6 times, many years ago. That gas shifting the organs is quite uncomfortable, in deed. I don't think your lack of pain meds for that was "addict" related. I never got pain meds for that procedure...other then maybe a Tylenol #3 for the first day. Frankly, I don't think they prescribe for that because the pain meds aren't effective for that type of pain (injected gas).
I read on another post that you take 25mg at a time of Oxy...that's quite a bit, I think. maybe they would be more inclined to reduce your dose and keep you on a smaller dose. I would also seek out a specific pain mgmt doctor, instead of neurologist. Pain mgmt docs may have other options that will help you.

I take percocet, but only 2.5 mg (5 for one of the doses if real bad), so probably not really qualified to comment on this thread anyway. Just keep searching for someone to help you.

Just adding because you posted while I was typing. Apparently you may already be seeing a pain mgmt doctor. Sorry, I may have missed that in an earlier post. Hopefully your new neuro will help.

Hi, thanks for your response!
Yes, I do see a pain management specialist..who apparently specializes in telling patients to join his and his wife's meditation group for 450$! He thinks that my nervous system is in overdrive. That's interesting to hypothesize, but doesn't help me any.
As far as the surgery for endometriosis goes, the medication was for the pain of the surgery, ( the three incisions, removal of growth, and burning of the endo itself. The gas portion of it was just an unpleasant and unexpected extra bit of pain. I'm very sensitive..if you so much as pinch me I yell. Fibro maybe?
I suppose 25mg at a time may be a lot, but its all relative. They make oxycodone in 80mg tabs , if that gives you an idea.

Nucynta is fairly new and not very popular, but I suggest Googling it to get accurate details. Its not as "strong" as oxy, but works in different ways.

Thanks again for everyone's replies. Love the support and interest, and especially your stories.

Have you tried meditation and supplements?
Every suggestion here is well meant and worth a try.

Quote:

Originally Posted by malawigirl08 (Post 950594)

Have you tried meditation and supplements?
Every suggestion here is well meant and worth a try.

yes, I have tried both. I m on supplements (lipoic acid, L carnitine, b12, natural anti inflammatories,liquid b50 complex, and high potency fish oil

I did a breathing and meditation course in the summer. I was far too antsy for it but yes, I did enjoy it : )