advertisement
Reply
 
Thread Tools Display Modes
Old 01-28-2013, 02:07 PM #1
Sallysblooms's Avatar
Sallysblooms Sallysblooms is offline
Member
 
Join Date: Jun 2010
Posts: 668
10 yr Member
Sallysblooms Sallysblooms is offline
Member
Sallysblooms's Avatar
 
Join Date: Jun 2010
Posts: 668
10 yr Member
Default

There are things you can do. Many good threads to read about eating right and taking supplements that help the nerves to heal or at least improve.

Do you keep good track of your glucose levels? I have normal blood sugar, no problems at all but I test it. I used to test more often and I found what gets my level up. I have not seen anything above 120 one hour after a meal. That was after potatoes. Low good carbs and almost no sugar keeps my level at about 85 after a meal. Nerves do not want lows or spikes. They are sensitive to sugar and toxins of all kinds.

I have an integrative MD that knows the supplements I need for my Chronic Fatigue Syndrome and my Dysautonomia/P.O.T.S. caused by autonomic neuropathy. Peripheral Neuropathy also.

I take Alpha Lipoic Acid, Benfotiamine (a good vit. B1) l carnitine (Carniclear liquid) B12, pregnenalone and ones to help the body heal, the immune system also.

The other part is diet. Nutrient dense foods like kale are good. "Minding my Mitochondria" is a great book. I don't eat gluten or junk carbs. For sugar, I use honey, real maple syrup and coconut palm sugar. Only foods full of nutrients.
__________________

.

Last edited by Sallysblooms; 01-29-2013 at 01:08 PM.
Sallysblooms is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (01-28-2013)
Old 01-28-2013, 03:01 PM #2
Liftyourhands7 Liftyourhands7 is offline
Member
 
Join Date: Sep 2011
Posts: 180
10 yr Member
Liftyourhands7 Liftyourhands7 is offline
Member
 
Join Date: Sep 2011
Posts: 180
10 yr Member
Default I know how you feel!

Hi... I'm so sorry that you are going through what you are going through, many of us here can relate to you, please try not to be so scared, there are many things you can do to help your symptoms and prevent further damage to your nerves, as mentioned in above post eating better and exercising can help prevent further damage. Also there are threads in the stickies about nutrition and vitamins, please read the stickies. There is hope for you, remember that having diabetes means you really have to be careful with your diet it's really really important so that your nerves will be preserved. I personally have small fiber neuropathy throughout my whole body so I experience pain and numbness everywhere, it's really hard, I take gabapentin and it helps somewhat, so maybe you need medication to help your symptoms, I know having neuropathy is difficult but you can live a productive life. Just a personal note about myself, I am a Christian and I depend heavily on my faith in the Lord Jesus Christ to carry me through everyday, God cares about you, I promise if you look to him he will get you through! There are many people here who are more knowledgable then me about neuropathy, hopefully they will respond to you as well, this is a good place to come for advice and just vent, we all need that. You will be ok. Blessings, Jan
Liftyourhands7 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (01-28-2013), Sallysblooms (01-28-2013)
Old 01-28-2013, 05:05 PM #3
Brian Brian is offline
Senior Member
 
Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
Brian Brian is offline
Senior Member
 
Join Date: Oct 2006
Location: Australia
Posts: 1,256
15 yr Member
Default

Hi, the good news is that peripheral nerves do have the ability to regenerate, it is a very slow process though.
It is solely up to you on how well you manage your sugars to start the healing process, as Sally said nerves don't like high spikes or lows, so it is a must to keep your sugars as close to non diabetic numbers as possible, don't take any notice of doctors that know zero about nerve regeneration, if the nerves are hurting they are still alive so they can get better over time.
Brian is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Sallysblooms (01-29-2013)
Old 01-28-2013, 09:26 PM #4
Marie33's Avatar
Marie33 Marie33 is offline
Member
 
Join Date: Sep 2012
Location: Long Island, NY
Posts: 180
10 yr Member
Marie33 Marie33 is offline
Member
Marie33's Avatar
 
Join Date: Sep 2012
Location: Long Island, NY
Posts: 180
10 yr Member
Default

Quote:
Originally Posted by Sallysblooms View Post
There are things you can do. Many good threads to read about eating right and taking supplements that help the nerves to heal or at least improve.

Do you keep good track of your glucose levels? I have normal blood sugar, no problems at all but I test it. I used to test more often and I found what gets my level up. I have not seen anything above 120 one hour after a meal. That was after potatoes. Low good carbs and almost no sugar keeps my level at about 85 after a meal. Nerves do not want lows or spikes. They are sensitive to sugar and toxins of all kinds.

I have an integrative MD that knows the supplements I need for my Chronic Fatigue Syndrome and my Dysautonomia/P.O.T.S. caused by autonomic neuropathy. Peripheral Neuropathy also.

I take many supplements, three times a day. Alpha Lipoic Acid, Benfotiamine (a good vit. B1) l carnitine (Carniclear liquid) B12, pregnenalone and many other things to help the body heal, the immune system also.

The other part is diet. Nutrient dense foods like kale are good. "Minding my Mitochondria" is a great book. I don't eat gluten or junk carbs. For sugar, I use honey, real maple syrup and coconut palm sugar. Only foods full of nutrients.
Hi Kncoole, sorry for all your pain and suffering. I understand your fear. SFN can be overwhelming and scary. Hang in there, as you willl find out many people on here have lots of good advice and recommendations. I learned more from talking to people on here, then my own doctors! Hope you feel better soon

Hi Sallysbloom,
You said you have normal blood sugar, but you test it. Are you diabetic or prediabetic and what type of neuropathy do you have.? I was dx with small fiber neuropathy, (punch test) no known cause! This is very upsetting and confusing for me, I was always active and healthy. But funny I was dx with predib. The reason I ask is because Im wondern if the vits B1, B12, R lipoic acid,carnitine you mentioned are they mostly benefically for diabetics? You also mentioned you have autonomic neuropathy. My question is how does one know if they have auton neuropathy, when most symptoms ex: constipation /nausesa can be symptoms of many other problems? How did you find out your low BP/dysautonomia was caused from auton/neurop?
Marie33 is offline   Reply With QuoteReply With Quote
Reply

Tags
feet, neuropathy, pain, scared, suicide


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
scared to death J Shelton New Member Introductions 7 10-08-2012 06:13 PM
New here...scared to death:( Sobermouse New Member Introductions 6 09-05-2011 09:25 PM
Scared to death Brokenback jim Spinal Disorders & Back Pain 1 09-09-2008 01:16 PM


All times are GMT -5. The time now is 04:37 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.