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Hi Marie
I take the regular kind of Co Q 10, 100mg, twice a day. I never got any side effects from it at all. PN in general is definately better a year later. I was close to not walking at all. Now I am walking...something is working and I believe it is this suppliment and so does my doctor. I use the "finest" brand from Walgreens. Yes expensive, but worth it. I sure hope this works for you too. I had about given up, and was looking at a wheelchair. I take several other suppliments as well. Let me know how you do and what kind your doctor finally settled on. It is worth a try! ginnie
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Question on Dose of CoQ10 for MrsD
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What general dose or range of CoQ10 would you think helpful for someone on Statin? Thanks, Mike |
I think at least 300mg of non-solubilized form daily.
The new water solubilized type like Qunol, or Q-gel, you could possibly get by with 100mg a day. I saw on one site an estimate that patients on statins, will lose 50% of their own ability to make CoQ-10 themselves within 5 yrs on a statin. This is only an estimate, and 40mg of Lipitor is quite a bit, so you could be lower than that. |
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Hi amike
I take coq10, once a day, 300mgs. the gel type and B12shots weekly. I don't know which helped me the most. Take several others as well. I do hope your pn gets better, mine did. I wish you all the best. ginnie
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[QUOTE=Beachbum65;998700]I take 200 mg. COQ10 once a day. The soft gel type, it does help me but it took months before I noticed any difference. I take so many supplements that it is difficult for me to pin point which ones work the best for me. My neurologist told me that the B12 5000 mcg. And the COQ10 probably was the reason my constant nerve spasms up my legs quit . I am still trying to figure out myself. God bless !
Hi beachbum, glad to hear your doing better. Im starting to take 100 mg of coq10 again, hopefully it will help. I was taking 5000mcg of methycomb/b12 but my neurologist told me to stop taking it because my B12 blood count was too high (1895):rolleyes: but I am taking 2000mcg a day anyway. Did you have your b12 checked and is it high? Not many neurologist believe in taking b12 or other supplements for sfn. I hope someday we all find some relief from this horrible pain. thanks for your respons. |
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Im just seeing your response today. Glad to hear you are doing better! What else have you been taking besides the coq10? I am still strugglin with idopathic sfn. For me, neuropathy is mostly painfull sensations, there are days where I feel like giving up too. Im taking 300 mgs lyrica , cant go any higher because of side effects. It maybe helping a little but I still need more pain relief. How did your pn get better? Are you taking any medications for your pn? I was taking 100mgs of Jarrows unbqulinone (sp) Coq10 for a few weeks, but then I stopped because i didnt see any improvement and plus it made me jittery..I am taking other vits I got from MrsD incldg 2000mcgs of Methlycomb-B12 per day. I read you are taking 300mg of coq10 a day. Does it make you jittery? Maybe i will start taking it again but I hope 100mgs is enough to make an improvement. It sounds like your doing better, I hope you continue to do well!!:hug: Thanks for your response. Marie |
Hi Marie
Yes I am better. There was a combination of things I have done, The vitamines were on top first. Then I use a compounded cream, Lidocane patches, and when it does get bad, I have a narcotics I can and do take. However I try very very hard not to take anything for pain. Tramadol is on hand too, but I don't think that works very well for PN. I don't have this condition as bad as alot of folks here. Only in my left foot, ankle and calf. I really had trouble walking last year, as I have degenerative joint disease in that same foot, with ganglion cysts, that have roots deep inside the ankle. Had two removed, and thats what started the PN. I now have two more, and they can't remove them for fear of making this PN worse. (or RSD)
I can't take lyrica, or Gaba. both tend to make me extremely depressed. I tried both of those several times and just couldn't do it. I still limit the amount of walking I do, or I do get into some trouble with pain. All in all much better than last year. Not sure what helped me the most. Sometimes I think taking less in the way of pain killers, lets your own body try to help. Wish I could put a finger on what worked best for me. I sure do wish you all the best, and that you get some relief. ginnie |
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