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-   -   CoQ10 & small nerve neuropathy (https://www.neurotalk.org/peripheral-neuropathy/184313-coq10-nerve-neuropathy.html)

ginnie 02-22-2013 05:44 PM

Hi Marie
 
I take the regular kind of Co Q 10, 100mg, twice a day. I never got any side effects from it at all. PN in general is definately better a year later. I was close to not walking at all. Now I am walking...something is working and I believe it is this suppliment and so does my doctor. I use the "finest" brand from Walgreens. Yes expensive, but worth it. I sure hope this works for you too. I had about given up, and was looking at a wheelchair. I take several other suppliments as well. Let me know how you do and what kind your doctor finally settled on. It is worth a try! ginnie

amike 07-08-2013 06:54 PM

Question on Dose of CoQ10 for MrsD
 
Quote:

Originally Posted by mrsD (Post 959142)
We are talking major bucks here ...

example: 600mg:
http://www.puritan.com/co-q-10-055/c...-600-mg-030453

http://www.iherb.com/Healthy-Origins...-Softgels/4130

Perhaps 200mg of this would do compared to the old form:
http://www.epic4health.com/qgel-doub...0mg-coq10.html

I'd call him up and explain... Qunol 100mg a day should be enough IMO.

Earlier I mentioned I was on a Statin for cholesterol, 40 mg of Atorvastatin daily, and you mentioned I should be taking CoQ10. I have been taking Nature's Bounty CoQ10 200 mg with "Q-Sorb" twice a day for a couple of weeks. More recently, my order of Doctor's Best High Absorption (BioPerine which is a black pepper extract to help absorption) Fermented Japanese CoQ10 100mg arrived and I will be switching to this when my Doctor's Bounty runs out. Directions say take 1oo mg with fatty meal to help absorption once a day.

What general dose or range of CoQ10 would you think helpful for someone on Statin?

Thanks,

Mike

mrsD 07-09-2013 06:00 AM

I think at least 300mg of non-solubilized form daily.

The new water solubilized type like Qunol, or Q-gel, you could possibly get by with 100mg a day.

I saw on one site an estimate that patients on statins, will lose 50% of their own ability to make CoQ-10 themselves within 5 yrs on a statin. This is only an estimate, and 40mg of Lipitor is quite a bit, so you could be lower than that.

Beachbum65 07-10-2013 04:24 AM

Quote:

Originally Posted by Marie33 (Post 959007)
Today I finally met a Doctor who was compassionate and caring! Update on me .. 2 years ago I was diagnoised with "Idiopathic" small fiber neuropathy by punch biopsy.My new Neurologist spent more then over an hour with me and was refreshingly honest. Because I am otherwise very healthy ,He will not accept my neuropathy as Idiopathic at this time. He wants to do more tests and said he will consult with a Neuromuscular Doctor at this Medical Ctr and will do some research this weekend. (wow) Ok Fast forward.. He recommends I take CoQ10 said to make sure I get the Ubiquinone form for Mitochondrial trtment. I have searched the internet and found this form CoQ10 very expensive. My question is does any one take CoQ10 for small nerve neuropathy, and what is the difference between Ubiquinone and Ubiquinol? The Doctor said to take 1000 mgs twice a day with a tsp of Olive Oil. I do not know anything about Coq10, but I read many PNers on here take it. This dosage seems like alot. Does anyone take Coq10 and how much do you take and does it help? I will wait for a response before I order it..Thank you in advance!

I take 200 mg. COQ10 once a day. The soft gel type, it does help me but it took months before I noticed any difference. I take so many supplements that it is difficult for me to pin point which ones work the best for me. My neurologist told me that the B12 5000 mcg. And the COQ10 probably was the reason my constant nerve spasms up my legs quit . I am still trying to figure out myself. God bless !

ginnie 07-10-2013 07:33 AM

Hi amike
 
I take coq10, once a day, 300mgs. the gel type and B12shots weekly. I don't know which helped me the most. Take several others as well. I do hope your pn gets better, mine did. I wish you all the best. ginnie

Marie33 07-11-2013 10:32 AM

[QUOTE=Beachbum65;998700]I take 200 mg. COQ10 once a day. The soft gel type, it does help me but it took months before I noticed any difference. I take so many supplements that it is difficult for me to pin point which ones work the best for me. My neurologist told me that the B12 5000 mcg. And the COQ10 probably was the reason my constant nerve spasms up my legs quit . I am still trying to figure out myself. God bless !
Hi beachbum, glad to hear your doing better. Im starting to take 100 mg of coq10 again, hopefully it will help. I was taking 5000mcg of methycomb/b12 but my neurologist told me to stop taking it because my B12 blood count was too high (1895):rolleyes: but I am taking 2000mcg a day anyway. Did you have your b12 checked and is it high? Not many neurologist believe in taking b12 or other supplements for sfn. I hope someday we all find some relief from this horrible pain. thanks for your respons.

Marie33 07-11-2013 10:44 AM

Quote:

Originally Posted by ginnie (Post 959636)
I take the regular kind of Co Q 10, 100mg, twice a day. I never got any side effects from it at all. PN in general is definately better a year later. I was close to not walking at all. Now I am walking...something is working and I believe it is this suppliment and so does my doctor. I use the "finest" brand from Walgreens. Yes expensive, but worth it. I sure hope this works for you too. I had about given up, and was looking at a wheelchair. I take several other suppliments as well. Let me know how you do and what kind your doctor finally settled on. It is worth a try! ginnie

Hi Ginnie
Im just seeing your response today. Glad to hear you are doing better! What else have you been taking besides the coq10? I am still strugglin with idopathic sfn. For me, neuropathy is mostly painfull sensations, there are days where I feel like giving up too. Im taking 300 mgs lyrica , cant go any higher because of side effects. It maybe helping a little but I still need more pain relief. How did your pn get better? Are you taking any medications for your pn? I was taking 100mgs of Jarrows unbqulinone (sp) Coq10 for a few weeks, but then I stopped because i didnt see any improvement and plus it made me jittery..I am taking other vits I got from MrsD incldg 2000mcgs of Methlycomb-B12 per day. I read you are taking 300mg of coq10 a day. Does it make you jittery? Maybe i will start taking it again but I hope 100mgs is enough to make an improvement. It sounds like your doing better, I hope you continue to do well!!:hug: Thanks for your response. Marie

ginnie 07-11-2013 04:43 PM

Hi Marie
 
Yes I am better. There was a combination of things I have done, The vitamines were on top first. Then I use a compounded cream, Lidocane patches, and when it does get bad, I have a narcotics I can and do take. However I try very very hard not to take anything for pain. Tramadol is on hand too, but I don't think that works very well for PN. I don't have this condition as bad as alot of folks here. Only in my left foot, ankle and calf. I really had trouble walking last year, as I have degenerative joint disease in that same foot, with ganglion cysts, that have roots deep inside the ankle. Had two removed, and thats what started the PN. I now have two more, and they can't remove them for fear of making this PN worse. (or RSD)
I can't take lyrica, or Gaba. both tend to make me extremely depressed. I tried both of those several times and just couldn't do it.
I still limit the amount of walking I do, or I do get into some trouble with pain.
All in all much better than last year. Not sure what helped me the most. Sometimes I think taking less in the way of pain killers, lets your own body try to help. Wish I could put a finger on what worked best for me. I sure do wish you all the best, and that you get some relief. ginnie


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