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-   -   many PN questions for the experts pls! (https://www.neurotalk.org/peripheral-neuropathy/184522-pn-questions-experts-pls.html)

lined_in_silver 03-06-2013 08:06 PM

I bought some Kefir and gas X today.
Its a start. Sometimes we just have to control the symptoms until the answers are revealed.
I also got some wrist braces for the carpel tunnel ( don't remember if I mentioned that)
Thanks again.

hopeful 03-06-2013 09:02 PM

Quote:

Originally Posted by featherbullet (Post 963560)
I bought some Kefir and gas X today.
Its a start. Sometimes we just have to control the symptoms until the answers are revealed.
I also got some wrist braces for the carpel tunnel ( don't remember if I mentioned that)
Thanks again.

Hi Featherbullet, I forgot to mention I do use Kefir in my daily smoothies. It is very good for the intestines and it does taste good. My favorite so far in vanilla. Also, about the meditating, it's great that you took a class. If you do decide eventually to try it let me know. I can recommend some. I use guided meditation. Their is a someone talking the whole time so it keeps you paying attention and if I lose tract the talking brings me back.

I hope things get better for you. I know how hard it is to have this disease.:hug:

lined_in_silver 03-08-2013 08:25 AM

Yes , please hopeful! I think I would do best with guided meditation because of my tendency to lose focus.

I used to eat/drink kefir when I worked at the health food store. I knew it had more beneficial bacterial than traditional yogurt, but didn't know that it could help with some symptoms I have. So far my tummy is handling it well. :-)

lined_in_silver 03-09-2013 07:59 AM

I'm just looking up benfotiamine. Sounds like a miracle. I'm going to order some.

mrsD 03-09-2013 09:09 AM

Yes, benfotiamine works really well. I take 150mg a day.
I use Doctor's Best.

In the "old" days, (before Neurontin) Thiamine was a common treatment for PN in the elderly. And it works, by enhancing some metabolic actions to help heal. (Neurontin does not).

So it was dropped in US in favor of the Neurontin which was being pushed by drug reps.

Meanwhile, in Europe, Benfotiamine was being investigated in Germany for diabetic PN. This form stays in the body a bit longer than thiamine which seems to appear in the urine (its odor an easy marker to notice) within hours of taking. The very first benfotiamine therefore came from Germany. And we used to have a poster, on our previous board home before we moved to here, who used it. He used to post about it. Back in late 1990's. Sadly to say he passed away from cancer in the mid 2000's, but he used to email me etc. He said it cost alot of money and hassle to import, to even purchase. (Over $60 for just a month's supply).

Now it is very affordable. I get my Doctor's Best from Amazon at a huge discount.

Start at least at 300mg a day, but after a while once you are primed up and your enzymes saturated, I think 150mg a day is a maintenance possibility over time.

lined_in_silver 03-09-2013 03:30 PM

You sure know your stuff! I ordered Doctors Best as well, but from Iherb. I live in Canada, but with shipping it was $20. ( My painkillers cost $26 a week )
I will finish the bottle before I make any judgements.
I am on Lyrica. But once my samples run out I will be switched to Gabapentin because it is cheaper and covered by the trillium program here in Ontario.
I will be sure to update with my progress. :-)

hopeful 03-09-2013 05:45 PM

Quote:

Originally Posted by featherbullet (Post 963940)
Yes , please hopeful! I think I would do best with guided meditation because of my tendency to lose focus.

I used to eat/drink kefir when I worked at the health food store. I knew it had more beneficial bacterial than traditional yogurt, but didn't know that it could help with some symptoms I have. So far my tummy is handling it well. :-)

Hi Featherbullet, the first one I would suggest would be Kelly Howell. She has a website which is her name .com. She has all different meditation CD's. Take a look at the site and see if any of them may be for you. Her voice is very soothing.
Hope it works! hopeful:)

lined_in_silver 03-11-2013 06:44 PM

I found some long ones on YouTube by her. Her voice does put you in a trance!
No need to buy anything. I like that.

lined_in_silver 03-14-2013 08:30 PM

So I was finally actually diagnosed today with peripheral neuropathy by my neurologist. She said she was surprised by the results of my nerve conduction study because I am young and my blood work is fine.
I'm now being sent to a different neurologist who specializes in peripheral nerves.
I'm anxious to try the benfo...hasn't arrived yet!!

Kitt 03-14-2013 09:17 PM

Do you know what type of peripheral neuropathy? Thank you.


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