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Old 03-05-2013, 03:17 PM #1
jake8105 jake8105 is offline
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Default Neurothapy or no?

I'll try to make a long story short.
Symtoms starting June 2012: Tingling, strange crawling sensations, burning in feet, sometimes sensitive skin or exxagerated sensitivity, tightness in calves, tightness on the top of my head(it hasn't happened lately), pins and needles in the heels of my feet
Starting February 2013: All of the above, now having muschle spasms, electrical zaps/shocks, aching/sore ankles and feet, sometimes sore pains shooting through my muscles(both arms and legs)
The pins and needles in my heels is usually just when I wake up in the morning but are gone shortly after.

Neurologist says no neurothapy, based on everyting I've read on here I'm not going to go by what she said. I have had an MRI which came back normal, countless blood test which where "normal", but on my next day off I'm going to to get a copy of all these and check all the numbers for myself.

Reasons that could have given me neurothopy, that I can think of would be from alcohol abuse, lyme diseas, or "anxiety" as my neurologist said. I hope she's right as she said that my condition is reversible, but now I'm left to figure the rest out for myself. I'm not going to take the chance on her being wrong and my conditions become drasticly worse and then me be wishing that I would have kept investigating. I guess my questions are have any of you or do you know anyone who has had these symptoms from anxiety and fully recovered from it? Or, do I need to continue to go to different doctors and continue to look for an answer for these symptoms? Does anyone have any other ideas as to what these symptoms sound like?
I will post my blood tests and numbers when I get them within the next few days.
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Old 03-05-2013, 04:02 PM #2
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Lightbulb

Anxiety will alter the amount of carbon dioxide in the blood, and
if you hyperventilate while anxious there can be all sorts of
odd sensations. Usually they are around the mouth. But top of the head is a prime spot for doctors to make this diagnosis.
Really severe hyperventilation will affect everywhere. Not just some locations.

If you know you are anxious there are two supplements you can try. One of them, L-theanine...is also recommended for sensory neuropathies. Doctor's Best makes a good one. You can start there. 2 capsules twice a day and see what happens. This was recommended in Dr. Blaylock MDs newsletter and if you search
"theanine" here you will find posts about it.

Secondly you can start with magnesium soaks with epsom salts, at night before bed in the bathtub (6oz to a tub of lukewarm water for 20minutes to a 1/2 hr or more). This will relax your muscles and take the tightness away. Some will also be absorbed and help you sleep. If this works, then you can take a supplement like SlowMag twice a day.

Another anti-anxiety OTC product is PharmaGaba. This form is more easily absorbed and gets into the brain and works like a mini-Valium, without the addiction or sleepiness.
There are a few PharmaGabas out there, but they are very
expensive.
This one is not and works for me:
http://www.amazon.com/GABA-Supplemen...rds=pharmaGaba

Subjectively your anxiety should be less with either or both
theanine and pharmaGaba.

The magnesium is really important to nerves however and muscles, so start with that as soon as you can. Many of us on PN here use magnesium daily, in one form or other. Avoid the oxide form, as it doesn't get absorbed.

Here is my magnesium thread...
http://neurotalk.psychcentral.com/thread1138.html

If you don't have results for B12 and Vit D...then you need to
get those measured. That is the first thing for people with nerve symptoms and pain.

Think back to when this started. Were you ill? virus? food poisoning, or did you take antibiotics for something?
Were you exposed to chemicals, toxins, insecticides, garden chemicals? Do you have well water? If so get it tested for arsenic.

Look at your diet. Do you eat MSG in processed and restaurant foods? MSG is very hard on some people, and in many things, soups, flavored chips like Doritos, sausages, sauces. Check food labels to find it. monosodium glutamate.
Some people become gluten intolerant and neuropathy symptoms can come just from eating wheat, barley and rye.
You may have to alter you diet, to see improvements.
Sugar, and white flour also are stimulants to nerve symptoms, especially in people with impaired glucose tolerance (this is not diabetes, yet, but a beginning to it).

Those are your first steps. Let us know your test results, please.
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Old 03-05-2013, 06:30 PM #3
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***My vitamin D level was low when they tested, but B12 was "normal", I will post exact numbers as soon as I can get over to the hospital to pick the records up. When these symptoms first started there were a few things that i can remember. 1. I had an absessed tooth. It took them a few months to find it they where saying "nothing was wrong" so they kept perscribing me amoxi-clav(I think this is how you spell it this has been almost a year ago), my diet was awful it was a binge drink on weekends, drink 5 cokes a day, and go to mcdonalds all the time diet. I HAVE cut out ALL alcohol and most cokes. I rarely get fast food I usually take a can of tuna and crackers with me for lunch now. I eat raw meat such as seafood and steak( I don't know if this would contain anything), and this is about all I can think of. I'm pretty sure no one in my family has had this, unless someone that lives out of state does and I'm not aware of it. This is about all I can think of, I don't think I was ever around any toxins.
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Old 03-07-2013, 08:20 PM #4
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Default Lab Results

The following tests were taken on 10/18/12

Test
Esrman=1
CRPHS= 3.9H
MG= 1.9
FOLATE= >19.9
RPR**********
VITB12= 444
HIVINDEX= <1.00
HIV QUAL******
PROT,S= 6.7
ALB,SER= 4.2
A1 GLOB,S= .2
A2 GLOB,S= .7
BGLOB,S= 1.0
GGLOB,S .7
MSPIKE=*******
GLOB,S= 2.5
A/GRAT= 1.7
PLS NOTE= Comment
ARSENIC= 5
LEADBLD= None Detected
MERTCBLD= None Detected
MMA= 111

If I need to provide any more information I will do so. I have an appointment scheduled for March 20th with a new primary care physician. I have been to a neurologist that said negative, and MRI has been negative, and these are my lab results( excluding a low vitamin D that was done at another doctors office last June, it was checked again later and was "normal") what are my next steps, what direction should I go from here? I'm willing to go to any type of doctor/specialist, and take any test necessary. I do have medical insurance so none of this should be a problem.
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Old 03-08-2013, 04:56 AM #5
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Does your lab report give the ranges for that lab with the results?

This can be important, because of lab procedures and calibration.

If you are in US 444 for B12 is just barely normal. The lowest normal now is considered to be 400pg/ml.

Your MMA level seems odd.
From the net:
The reference range of MMA is 0-0.4 µmol/L (0-4.7 µg/dL).
from http://emedicine.medscape.com/article/2108967-overview

Elevated MMA indicates that B12 is not working in the body, so the MMA builds up. One wants to see a very low number for MMA, therefore.

This link gives arsenic ranges:
http://www.atsdr.cdc.gov/toxguides/toxguide-2.pdf

So your arsenic level needs explanation.

Your magnesium is in the low end of normal.
http://www.nlm.nih.gov/medlineplus/e...cle/003487.htm
This is common in the US where 70% of Americans show
some low magnesium levels.
So eating more foods that contain it, and avoiding diuretics like alcohol and caffeine, and diuretic drugs, may help that.
You can take a supplement like SlowMag twice a day. Or soak in epsom salt baths.

Your folate is elevated:
http://www.everydayhealth.com/health...d-results.aspx
This is common when there are B12 problems.

You may not be methylating B12 and folic acid properly.

So you can start taking methylcobalamin and methylfolate OTC and see if that helps. Most doctors will not suggest anything with your test result. they are not aware of the new guidelines.

Folic acid is in fortified foods now in the US. If you cannot methylate (activate to folate) either, then it will build up in the serum. This failure is a genetic error and pretty common. Left untreated it can lead to cardiovascular damage and disease.

There is a DNA test for MTHFR genetic polymorphism if you care to delve more deeply into it.

Do the magnesium because it is really helpful for most people.
Here is my magnesium thread.
http://neurotalk.psychcentral.com/thread1138.html

Methylcobalamin: 5mg daily orally on an empty stomach. Do for 3 months, and evaluate results. Your levels should be over 1000.

Methylfolate: Metafolin by Solgar, 800mcg a day to start.

Both of these are available online, example:
iherb.com
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Old 03-08-2013, 06:36 PM #6
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Default Revised lab results with ranges

Test Range Units
Esrman=1 0-15 mm/hr
CRPHS= 3.9H 0-3.0 mg/L
MG= 1.9 1.8-2.4 mg/dL
FOLATE= >19.9 >3.0->3.0 ng/mL
RPR**********
VITB12= 444 211-946 pg/mL
HIVINDEX= <1.00 <1.00
HIV QUAL******
PROT,S= 6.7 6.0-8.5 g/dL
ALB,SER= 4.2 3.2-5.6 g/dL
A1 GLOB,S= .2 0.1-0.4 g/dL
A2 GLOB,S= .7 0.4-1.2 g/dL
BGLOB,S= 1.0 0.6-1.3 g/dL
GGLOB,S .7 0.5-1.6 g/dL
MSPIKE=*******
GLOB,S= 2.5 2.0-4.5 g/dL
A/GRAT= 1.7 0.7-2.0
PLS NOTE= Comment
ARSENIC= 5 2-23 ug/L
LEADBLD= None Detected 0-19 ug/dL
MERTCBLD= None Detected 0.0-14.9 ug/L
MMA= 111 73-376 nmo1/L

mrsD, I went to wal mart today and got some Slowmag, I'm looking into the Pharmagaba( I went to an herbal store in town and it was outrageous so I'm going to do some online shopping). As for my vitamin b level, I would like to bring it up would you recommend b-complex or just regular b-12 for that? As far as all the other tests go I am going to take your advice and get the other products online as well. I plan to take all this information to my doctor and hopefully he will comply with the steps I want to take, if not I guess I'll go doctor shopping again. Is there any other lab work I should request? I'm going to write down the levels suggested on some of the links on this forum and go every 3 months to make sure I'm maintaining levels that I want, and hopefully from cutting the caffeine, alcohol, and stress and maintaining a healthy diet (cutting fast food) I can get back to my normal self again. And this is probably an obvious question but I'm still new to this, if my conditions are from alcohol, poor nutrition, and anxiety, if i fix all these things will my "neuropathy" revere, or is this an irreversible cause?
And is there a suggested book or website that will give me a complete 100% guide of a great healthy diet, not for weight loss, just all around good health?
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Old 03-08-2013, 06:52 PM #7
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Alot is unknown about PN. This why you are HERE, and why your doctor is not helping you.

Your lab range for B12 is the outdated old one, where lows are
in the 200 range and called "normal". This is unacceptable.

We have tons of information gathered here on the Subforum and on the B12 thread and some at the vitamin forum.

To start you need to up your B12 to a level at least of 1000.
Use Methylcobalamin 5mg orally on an empty stomach, for about 3 months and get retested.

Start the magnesium, and with both of those see how things go.

Avoid sugar, MSG, and gluten if possible. There are over 100 types of PN, and you have to approach this carefully and with thought.

You could have a hereditary CMT. At this point you just don't know. Try to relax, do meditation exercises, and keep your brain off your discomforts. If you focus on them they will burn a pathway to your pain centers and become self perpetuating.
This is the new way to approach chronic pain. Do not allow your brain to train itself to focus on discomforts. You can Google and find these techniques, for many types of pain.
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Old 03-08-2013, 06:55 PM #8
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Thanks mrsD, I probably speak for everyone when I say I'm so thankful your on here and willing to help everyone.
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Old 03-12-2013, 09:15 AM #9
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Quote:
Originally Posted by jake8105 View Post
Thanks mrsD, I probably speak for everyone when I say I'm so thankful your on here and willing to help everyone.
This is great info, as I am in the same boat. Dr gave me 1 cc B12 injection per month seems to help for a few days after the shot so now I take 2 per month.along with a good multi vitamin,omega-3,B-1 300,Magnesium 250,Niacin 500 and Acetyl-L-Carnitine 500,alpha-Lipoic Acid 200.Thinking it is due to alcohol I wonder if I need something else .All the vitamins I had to figure out on my own except the injection .This with Gabapentin 300x4,oxy condone 5x3 and Amitriptyline 150 at bedtime.It helps somewhat but doesn't touch the severe flare ups that can last for days.I live in constant pain if I can knock it down a little more I am open for anything! Sometimes I can barely walk, need help it has took my life away.I am great full I found you guys since I have been praying for guidance ! I know you guys know what I am going through.I would not wish this on anybody but it is nice to know I am not alone. With all the very informed and knowledgable people here gives me hope that I had lost along time ago.Thanks so much!
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Old 03-12-2013, 09:25 AM #10
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Welcome to NeuroTalk, Beachbum...

You are off to a good start. But check that magnesium and
make sure it is NOT OXIDE form. That type is not absorbed and is passed in the stool.

I think you would do better on active methylcobalamin oral 5mg a day on an empty stomach. The shots don't work well for everyone and they are not the activated type of B12 either, unless you get them compounded especially for you.

Anyone who drinks alcohol or suspects a connection with alcohol should try the improved B1 called benfotiamine. You can get this at iherb.com or Amazon. Most of us use the Doctor's Best brand. Start at 300mg a day and see what happens. After 3 months or so you can drop to 150, if your improvements sustain.

People getting B12 shots should have testing done to see if they are really working. Don't do any shot or supplement for 7 days before the test. You should be above 400pg/ml...which is the new cut off point for "normal". Don't accept "normal" comments from a doctor. Get your own numbers.
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