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-   -   Questions on lab results (https://www.neurotalk.org/peripheral-neuropathy/185049-questions-lab-results.html)

mrsD 04-01-2013 02:06 PM

The ArginoCarn has arginine in it. This amino acid when taken without balance with l-lysine may activate viruses...like shingles, or cold sores (Herpes simplex). I tend to avoid recommending arginine products (some magnesium chelates have this in it too), unless you intend to take l-lysine with it.

The GlycoCarn is similar to the first carnitine the HIV community used. (propionyl carnitine) Which is a glycine (2 carbon amino + propionyl which is a 3 carbon amino group). At one time years ago acetyl carnitine was not commonly available, but now it is.

For our purposes, I'd start with acetyl carnitine. I believe the others provide metabolic support in other ways. For example a source of glycine is involved in methylation chemistry, and provides the methyl group. Acetyl provides the acetyl to acetylcholine synthesis which is an important neurotransmitter in the autonomic and central nervous system.

Today there seems to be more research on acetyl carnitine in the medical papers, especially in regards to chemo damage prevention.

The GlycoCarn would be more expensive, but if you want the other benefits listed on this link, there is no reason not to try it.
http://en.wikipedia.org/wiki/Glycine...yl-l-carnitine
The extreme exercise and bodybuilding people seem to like this combo because of the nitric oxide stimulation.

hopeful 04-02-2013 07:37 PM

Quote:

Originally Posted by mrsD (Post 970097)
There is also a 1000mcg version at Puritan's. Read the offerings carefully because they also sell the cyano type.
It is easy to pick the wrong one.

Their buy one get 2 free will start soon, maybe in May.

There was a time when methylcobalamin was not easy to find.
Back then Jarrow's was at iherb.com and most of us used that.

I only use it once or twice a week now, since I tested so high (1999).

Hi Mrs. D., I'm not sure if you are interested or not but Puritan is having their sale now. I paid for 2 bottles and got five. So I ordered 5 months worth for
11.99. Thanks for the information!
hopeful:)

hopeful 04-02-2013 07:44 PM

Quote:

Originally Posted by Synnove (Post 970372)
Hi hopeful

I read your post where you mentioned the lesions on your brain. I also have demyelinating lesions in the white matter on the brain, and the doctors have not been able to tell me what they are, could be so many things.
And I agree with you, it can be so very frustrating and scary when we are feeling sicker and sicker as time goes by, and they can not come up with a cause. The neuropathy is bad for me.
I hope you feel better soon.

Hi Synnove,
It is so scary to have lesions on your brain and be told they don't know what they are but not to worry about them. I really didn't understand how she could say they didn't cause anything but in the next breath, said they were probably causing the hyperreflexes in my legs. I try not be to scared but at times I go to the what ifs. It certainly is not always easy to live with neuropathy. The neuropathy is really bad for me too. Thanks for the well wishes! I hope you feel better soon also!:)

Marie33 04-07-2013 11:50 PM

Quote:

Originally Posted by mrsD (Post 963719)
Well, um....

If you are taking B12, 600+ is not sterling. It is okay, but for people having neuro symptoms it would be nice to be a bit higher IMO. B12 has to get into the CNS...and the higher the gradient from the blood serum the better it crosses into the CSF.

I just read that toxicity from Flagyl can cause brain lesions.
Let me see if I can find that again.....

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2963744/
also there are reports of unilateral lesions on Google as well.
It is an example of a drug actually damaging the brain. So who knows
what yours could be from?

I'd take some acetyl carnitine just as insurance if you aren't already. Start at 250mg twice a day.

The D is good... not perfect but very close to my results too.
Considering how many people have results in the single digits, 43 is okay. My doctor wanted me at 70 but I've never made that goal. 50 is the "new" low norm now with the new research.
Given lab error possibilities you are very close.

MrsD,

My D level is 42 . I read somewhere we should be near 60-70. Do you think we should be increasing it for better health results?
Also, my B6 just came back at 65. My neurologist called to tell me it was high and that "normal range" is between 12-25 and to stop taking all B vitamins including B6! I stopped taking B6 (Metanx & P5P) over 2 months ago because I ran out, but its still "elevated". Doc thinks this could be contributing to my SFN pain. Also, my B1 level is 1200. (I started Dec 2012) Doc told me to stop that too, but Im still taking 150mg benfentamine (Sp) anyway, is 1200 too high even though the lab range is a lot lower? Should I stop taking it? I dont want to make things worse..
By the way, I still take methalcobamine (sp) (B12), 1,000 once a day even though and my level is "high" 1711 . Please let me know what you think...Thank you

mrsD 04-08-2013 09:55 AM

If you do not stop vitamins for about a week, they will register in tests as a false high.

B6 is stored for a short time in muscles, as pyridoxal and this may be a source for serum elevations. However there is a study on PubMed done with autistic children, who tested high in B6 when there were no vitamins being taken. This could be a feature of a metabolic error in that population we don't understand yet, or it could be from fortified foods. Many foods have B vitamins added.

Doctors do not understand lab ranges of nutrients at all. I wouldn't expect much useful advice from them on this subject.
The ranges were made from statistics gathered from people at random who were NOT taking vitamins. One would expect higher results when supplements are being used.

Intracellular testing labs measure what is inside cells, and not just the serum, like the common tests use. This is thought to be more accurate.
This lab does more accurate testing:
http://www.spectracell.com/


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