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Old 03-17-2013, 07:43 PM #21
Synnove Synnove is offline
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To mrs.D

Thanks again. You are a well of information.
This site is helping. Because one has to find a way to go to the right doctors and ask the right question.
I have read and printed up the information re. Charcot-Marie syndrome.

Now I understand a little what the neurologist was getting at. He did point out something about my foot arch and asdked if any in my family had feet like this. He also pointed out regarding uneven shoulders, I said that is because I have a little slight scoliosis. He did not say, but now I read a little of that fact. I think the scoliosis is due to the club foot.
He has diagnosed me so far with musle atrophy of right leg,in addition to polyneuropathy. and I now also read this may be part of this disorder.

So this article was interesting, but I do hope I do not have it> Pray to God.
I will be going for more tests.

Actually, the rheumatologist also sent me to a genetic testing doctor some time ago. This was due to some telengiectasis they had seen in my brochi. But we decided I probably do not have any trend in that way.

They did explain regarding gene testing there. Thanks
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Old 03-18-2013, 06:02 AM #22
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Default Not to add on to any of this--

--as you apparently have "co-morbidities" already--but anyone with neurologic symptoms of pain/paratheses beyond just the lower extremities who has a history of stroke or other insult to the brain or spinal cord should be evaluated for central pain syndrome:

www.centralpain.com

This is also know as thalamic pain syndrome--if the thalamus, which acts as a relay center for sensory information, is damaged by stroke, MS, B12 deficiency, etc., it is possible to have nerves pathways there damaged to the extent that they fire off erroneous sensations to nearly any part of the body.

This condition is extremely difficult to diagnose, inasmuch as the symptoms can be exactly mimicked by a number of other conditions. One symptom that sometimes can point to it is the phenomenon of summation--that an innocuous touch to a body part is not immediately painful, but that the sensation builds over several seconds to involve dysesthetic, burning nerve pain.
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Old 03-18-2013, 08:32 AM #23
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To glenntaj
Thank you for your information. Yes, I did look up the link regarding "Central pain syndrom" when you posted it earlier, and I will keep it in mind and further research.
I can tell you: When it was first incidentally found out regarding the first stroke, 2 years ago, it was a " old infarct within left thalamus".
The second stroke, was very small, and I did have symptoms of parasthesia in right arm.
The MRI this time read " acute focal nonhemmorhagic infarct in the subcortical white matter of left postcentral gyrus".

All the other neurological situations has been mentioned in earlier posts.

As you can understand, the symptoms that has been worring me the most is the tremor like vibration and electrical current lik type of sensation I have been feeling. It feels like inside of spine, radiating to the whole torso and down legs.
I have mentioned this first to my general neurologist early on, but I never got any responds. Months went by, I saw a MS specialist and mentioned this again. Then , as so many things were getting worse, last fall, I asked to perhaps find a different general neurologist, saw one, he said" never in my 30 years of practice, have I heard any such symptom" I, not being knowlegable regarding thi, aske for a EEG, which I had, and it did show something abnormal, but he said someone else can explain it. He sent me to 2 other neurologist for evaluation. The first one said" I can not see any tremors on you" " We all have some tremors" and " your EMG is perfectly fine, I did it myself" ( I only had EMG of upper extremeties, now I am going to have all 4)

So now I am glad I finaly have found a good neurologist specialist, and I will mention regarding the Central Pain Syndrome

Thank you
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Old 03-18-2013, 08:37 AM #24
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Lightbulb

You might want to read this thread too at RSD...
They have "central" pain too. I am not sure if it is thalamic however.

This is new electrical treatment based on the transcranial magnetic treatments for depression. (approved by the FDA).

It is called tDCS:
http://neurotalk.psychcentral.com/sh...highlight=tDCS

fmichael there is using this presently to control his RSD pain.
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Old 03-18-2013, 10:19 AM #25
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Thank you glenntaj

Yes I have taken note of that link, and will study it more. Now that I think I have found a neurologist that can help me, I hope for more answers regarding the scary feelings of " tremors and electric current down spine torso and legs. These feeling/sensation gets worse when I am tired or exhausted.
But I did mention it to this doctor. He said it was a kind of neuropathy. This was the time I ever got any response to this issue.
Actually, I had been sent to 3 differen neurologists, and I got no answer. I started to feel that no one took me seriously, and realized these doctors were not realy good.

I will fallow up next appointment is next week, will se what this doctor finds out.

I think we got off the topic of this thread re Xanax. So I will continue to fallow this neurotalk site where there is so much help to get. Perhaps you have a thread regarding "Central Pain Syndrome" I will let you know how it goes.

Last edited by Synnove; 03-18-2013 at 10:23 AM. Reason: correcting mistakes
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