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Old 03-23-2013, 02:13 PM #3
Riverwatcher Riverwatcher is offline
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Join Date: Mar 2013
Posts: 3
10 yr Member
Riverwatcher Riverwatcher is offline
New Member
 
Join Date: Mar 2013
Posts: 3
10 yr Member
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Hi Mrs D

Thanks for the quick response! I've had testing for autoimmune and for antibodies. All negative with the exception of one marginal result for cryoglobulins. Not sure about the MGUS, will go back thru my records.

It's been suggested that I have a nerve biopsy to determine the potential for vasculitis, this is based on the marginal test result regarding the cryoglobulins. I have opted not to do the biopsy until further tests indicate the need, the biopsy I'm told will leave permanent numbess in the back of my leg and heel.

Have been tested for B12, ok. Only med I'm taking at for high blood pressure.

I've seen 2 neuromuscular specialists at the Cleveland clinic so I'm thinking that the low hanging fruit options for possible diagnosis are ruled out.

Looking now to become more active in my own personal choices and behavior which might help the situation. Just read posts from Wing42 on " A program to heal nerve damage and reduce PN symptoms". Looks to be very helpful.

River
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