Hello...I also get the raindrop sensations and the twitches in my feet and calves and everywhere else. I'm very shaky on my feet and have a lot of leg weakness. Definitely doing the right thing by seeing a neurologist. What did you mean by Aurora clinics? Are you referring to the location? Just curious because that's where I live and I would be curious to know if you find a good neuro who can help you. I haven't had much luck.

There should be no question that your PCP would give a referal. Don't hesitate to call back and ask him to do this. It only took me one week to see a neurologist after my doc. did it for me. Be assertive, and I hope you both get into this neuro. soon. ginnie

I wish I could get in sooner. I'm terrified this could be a permanent thing. And of course I'm torturing myself by reading all of these scary medical articles.

Hi, hope you can get that appt. soon. Don't think that PN can't get better, it can. I have it in my left foot, ankle and calf. Last year I was in a wheelchair. This year I am walking alot better with no assistance. I started on suppliments (that I didn't believe in ) B12 shots etc. Have hope that with the right care and assistance, you can get better. Keep hope alive. ginnie

ginnie how long did it take for the B12 to start working for you? And for your symptoms to improve to this point?

Hi, I did start to notice improvement within three months time with B12 shots, every other day for a few weeks, then weekly. I am also on other suppliments. Can list them if you want. I am honestly better, and don't have the burning or pins and needles lately. In a year, I went from not walking well, to almost feeling normal. My PN was due to surgery on left ankle. I am trying not to have more surgery on this ankle too, I don't want to go through all that again.
I go see a physiatrist, and she is the one who got me to try this method. I am also not taking very many pain pills. I sure hope you get a doctor who will guide you through, and at least try this. I was not a believer, but was desperate not to loose my walking ability. I wish you all the best. ginnie

thanks for your response ginnie. I've been having 1 x 1mg hydro B12 injection per week for the past 4 weeks. My dr doesn't mind giving me injections if it makes me feel better, but on the other hand I don't think he completely understands the complications of low B12. At least he isn't resistant to me treating it though even if it's within the "normal" range (275).

do you think I should also take the methyl sublinguals every day or are the injections enough?

I wish your doctor were a little more accepting of the B12 shots. I give my shot to myself. Nothing to it....Syringe is filled to the 1000 mark. Also take Co Q 10 which aids in the repair of nerve damage. You can save the trouble of an office call by self injection. If at all possible seek a physiatrist. They are on board more when it comes to vitamines. MrsD on our site is the best when talking about vitamines, knows the latest research on the B12, and the best brands for quality and price. It was really through her posts, that I decided I wanted to try this approach. I went to my doctor and inquired.
Many PCP's don't really know that much about this kind of therapy. You need one that knows all the latest research about it. How long will your doctor be willing to give you these injections? Bring up the self injection, and maybe get some research together. MrsD can post the exact articles she has put on NT. Bring that along to your next appt. Maybe he will be a bit more excited about this kind of help. If he balks about self injection, maybe ask him why. Office calls, are money for him. This has to be about you, and the best possible route for getting the PN to subside. I believe MrsD said you can't over do the B12. How many Mgs. are you getting from your doctor?
Weekly is OK for matainence therapy, I was started with a bit more than that for a few months.
Also to go glutten free, maybe of help to you. I watch the glutten and eat alot less of it than I use to do. I have heard that this also can help with PN.
I stay away from as many additives in my food too. Go as fresh as you can.

Let me know how it goes. Do post to MrsD for the research. I will be here for you anytime. I sure wish you the best in this direction. ginnie

ginnie,

my dr hasn't really said how long I can have the B12 shots for. I think soon he might want to switch me over to once per month shots. I'm not confident with injecting myself. I live in Australia so I don't need to pay for the drs visit, only the B12 injections themselves. If my dr says I can't have it weekly anymore, will switching over to methyl B12 (500 mcg per day) be enough to repair the damage?

Right now I am getting a 1 mg injection of hydroxocobalamin per week.

thank you

Goodmorning. I was afraid that your doctor would want to go down to once a month, then pills. Alot of doctors do that not knowing this can really help with PN. Any B12 is better than none. However, knowing what the weekly shots did for me, I would want to continue with weekly if I had a choice. I stayed on the B12 even after I got some relief. I am into my second year with weely injections. Maybe get the research to your doctor, and try to convince him you would like to stay on for weekly. I do take the B vitamines, B Comnplex as well.
Your doctor isn't completely on board with this. Maybe look for a physiatrist, who not only deals with pain, but treats the whole person at a cellular level. I sure hope all works out for you.
As far as self injection goes, believe me, there is nothing to it. I don't like needles at all, but this is a breeze. Compared to having PN, I was willing, as I had hoped for the results I got. Let me know how it turns out with your doctor.
ginnie