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Old 04-21-2013, 10:54 AM #1
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echoes long ago echoes long ago is online now
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Default

Quote:
Originally Posted by glenntaj View Post
--will it help in terms of getting any services/therapies prescribed and/or paid for?
hopefully. that is the next step.
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Old 07-08-2013, 11:54 AM #2
Jennifer C. Jennifer C. is offline
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Default Acute to Chronic

I have axonal motor neuropathy. Mine is a form of Guillan Barre Syndrome, and I came down with it suddenly in late December 2012 (my diagnosis was acute axonal motor neuropathy.) Mine is likely due to a virus, but it could be autoimmune. Now I am in a chronic stage. My numbness and pain is getting progressively worse. My emg from May shows that my damage has progressed since it was done in the hospital. The damage has also moved into my muscles in the lower legs. I am going to have 5 IVIG infusions for 5 days in a row and then 2 per month until I get better. My insurance company has denied my treatments 3 times but I am getting better signals on this appeal. I'm hoping that the IVIG will improve my situation.
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Old 07-08-2013, 05:11 PM #3
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Default I have axonal sensorimotor

polyneuropathy. It has just been sensory neuropathy involving the sural nerves for the last 10 years, but apparently sometime this past year it is involving motor nerves on my left foot, my last EMG/NCV was in May. I expect the right foot will follow suit. I hate the fact that it is idiopathic. To me at this point that is the worst thing, since there is no one thing that points to the cause, I feel pretty helpless.
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