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Old 04-19-2013, 08:40 AM #2
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Quote:
Originally Posted by inspirations View Post
Good morning, everyone. I used to be on the old BrainTalk forum; well, I used to check in. Mrs. Doubtfire may remember me. I've had PN for about 12 to 15 years, and once the medication stabilized me, I didn't go back to the neurologist. I've just had a round of tests for brain, with most of them turning out fine, but still waiting on MRI. In addition, my new neurologist did another EMG and nerve conduction. His diagnosis is Axonal Sensory Motor Polyneuropathy. Can anyone tell me what this is, and its progression? I went to Bing, but didn't learn much. The doc is having me do blood work to ascertain the cause to slow progression. Does anyone know anything about this? Any advice is welcomed.
I have axonal sensory motor neuropathy, both large and small fiber. In my case it is hereditary, CMT, and it is progressive, as the nerves die back the muscles start to die as well and you develop increasing disability. For me the numbness is moving toward my hips, I cannot move my toes, and my feet and ankles are losing strength. It is a slow but inexorable process.
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