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04-19-2013, 08:40 AM | #1 | ||
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"Thanks for this!" says: | mrsD (04-19-2013) |
04-19-2013, 09:30 AM | #2 | ||
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"Thanks for this!" says: | Susanne C. (04-19-2013) |
04-19-2013, 08:59 PM | #3 | ||
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I was about 46 when my symptoms started to really affect my life, I am 51 now. The past five years have been a series of setbacks and losses, but I am thankful that my children are nearly all grown, only one is 14, the rest are able to take care of themselves and they all help out. Anyone going though this with young children is suffering far more than me. Gabapentin only helps with symptoms, it will not slow the disease process. If yours is hereditary, and your symptoms sound too familiar, nothing will do that. What blood tests are they planning to do? Are they doing any genetic testing? Good luck! Susanne |
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04-19-2013, 10:01 PM | #4 | |||
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basically it means that you have axonal degeneration or damage to multiple sensory and motor nerves. the axon is the part of the nerve that carries the electrical signals. The velocity and amplitude of those signals are slower and less because the axons are damaged. over time the covering or insulation of those axons, the myelin sheath will also start to deteriorate as they are affected by the deterioration of the axons they cover.
I have the same diagnosis. My progression has been slow and steady over the past 12 years. presently i am numb above both knees and to a leeser degree in my hands and lower arms. i just had emg/ncs's on my feet, legs and lower back today and on my hands and arms 4 weeks ago. There will be no happy ending to this story for me. My cause was exposure to toxins. Your progression sounds slow and steady also to this point. |
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"Thanks for this!" says: | glenntaj (04-20-2013) |
04-19-2013, 10:22 PM | #5 | ||
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What are/were the initial symptoms of Axonal Sensory Motor PM?
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04-19-2013, 10:36 PM | #6 | |||
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for me numbness in both big toes and foot pain.
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