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Old 04-22-2013, 08:37 PM #16
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Oh my, whatever you do, stay off the statins!
I was on Tricor for about three months, lost all sense of balance, fell three times trying to walk up to the high altar with my husband and son for my youngest's first communion, even with a cane.
My neurologist, who was new at that point and very careful about contradicting anything my PCP had prescribed said rather coyly "you might want to stop taking that".
I improved dramatically. In fact while I am weaker now, four years later, my balance has never gotten as bad as it was on the Tricor.
I believe statins and triglyceride meds are contraindicated in all PN cases, but for CMT'ers they are pure poison. Lots of info on statins on this forum.
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