we are all different, I had no problem dropping down from 1800 mg after no relief. I have burning sensations sporidicly all over arms and legs, am trying Lyrica now, suggested by a Mayo neuro. Anybody had any success with Benfotimine?

Hi Joe,

When were you first diagnosed?

When did you first experience neuropathy symptoms?

Hey Jack,
I have SFPN. I can not imagine my life at this time without this forum or Lyrica. I hope that you get feedback about Benfotimine from someone here. Some people have complained of weight gain with Lyrica. So far my weight has stayed under control. My neuro stresses the importance of diet, with an emphasis on leafy greens and fish oil. I juice bags of kale. I also take more vitD and B12 (empty stomach for absorption).
The PN forum is priceless for keeping up with it all. I wish you good luck and I hope we get to know jack..

Welcome Joe/Jack & Joe.

Golf eh? A friend of mine wrote a book about it and it's now turned into a movie - so he's well chuffed.

Cold turkey is not a given, but the risk is real, so weaning off is always a good idea.

Benfotiamine is a more potent form of thiamine: vitamin B1. It was once the treatment of choice for some forms of PN, and there are a lot of members here who use it to great success. If is available OTC. I use it too, 300mg/day FWIW.

Thanks for the note - I'm currently taking 150mg Benfotiamine 2x per day on an empty stomach. It's been about a month...

Welcome Jack. I have good integrative MD's so I get great advice about supplements and diet. I have Autonomic Neuropathy/Dysautonomia. Benfotiamine, Alpha Lipoic Acid, B12, l carnitine and others along with a very good diet with no bad carbs or gluten has been helpful.

Thanks Sally,

I have been taking the same supplements as you, along with other vit/sup recommended here by mrsD and others.

I'm still looking for a doctor/someone locally (Portland, OR area) who can personally give me some positive direction and hope.

Hey Jack ,
I'm on only 75mg of lyrica at night and if I miss it-i get the exact sensations you talk about!

Not that I want to promote narcotics, because they are addictive-but the fentanyl patch has reduced my severe burning by 60-100℅, depending on the day/hour/stress

I take benfotiamine and b12 for good measure-since pain relievers don't fix anything!
I'm giving self hypnosis/relaxation a shot as well.
We can't underestimate the healing power of our mind
Best,
Feather

I'm delighted for your friend as well... I'm curious, what is the title of his golf book?

Hi Mel,

It sounds like your neuro is providing good advice. The info from this forum seems to support your doctors views. I too have adopted this diet, which has helped in loosing most of the weight I had gained.

Thanks for the well wishes,