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Old 05-02-2013, 11:10 AM #1
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Welcome Jack. I have good integrative MD's so I get great advice about supplements and diet. I have Autonomic Neuropathy/Dysautonomia. Benfotiamine, Alpha Lipoic Acid, B12, l carnitine and others along with a very good diet with no bad carbs or gluten has been helpful.
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Old 05-02-2013, 11:45 AM #2
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Quote:
Originally Posted by Sallysblooms View Post
Welcome Jack. I have good integrative MD's so I get great advice about supplements and diet. I have Autonomic Neuropathy/Dysautonomia. Benfotiamine, Alpha Lipoic Acid, B12, l carnitine and others along with a very good diet with no bad carbs or gluten has been helpful.
Thanks Sally,

I have been taking the same supplements as you, along with other vit/sup recommended here by mrsD and others.

I'm still looking for a doctor/someone locally (Portland, OR area) who can personally give me some positive direction and hope.
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Old 05-06-2013, 06:24 AM #3
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Hey Jack ,
I'm on only 75mg of lyrica at night and if I miss it-i get the exact sensations you talk about!

Not that I want to promote narcotics, because they are addictive-but the fentanyl patch has reduced my severe burning by 60-100℅, depending on the day/hour/stress

I take benfotiamine and b12 for good measure-since pain relievers don't fix anything!
I'm giving self hypnosis/relaxation a shot as well.
We can't underestimate the healing power of our mind
Best,
Feather
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