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-   -   Need recommendation for compounding cream (https://www.neurotalk.org/peripheral-neuropathy/188484-recommendation-compounding-cream.html)

dac122 05-17-2013 08:44 AM

Thanks. Great idea! I'll check.

Flora 11-24-2014 06:24 PM

compounded topical cream
 
My compounded cream contains:
Amantadine/Orphenadrine/Diclofenac/Imipramine
I feel as though it makes me feel dizzy, or 'groggy" - could this be possible?

Jon_sparky 11-25-2014 02:03 AM

Yes, mine effects me this way.
I was given Lido, prilo, Lamotrigine, Meloxicam, and Ketamine, doesn't help the PN pain, but helps on the knees... I figure for $400 might as well use it where it works...

v5118lKftfk 02-18-2015 03:51 AM

body brush all over before epsom bath soak
 
Quote:

Originally Posted by mrsD (Post 984254)

Not everyone gets the same benefit from the epsom soaks.. Alot depends on your skin (males have thicker skin than females), and how long you soak, and how much you dissolved in the bath/tub.

... just to mention, getting a stiff body brush and brushing your whole body (in the direction of your heart) to remove dead skin before getting the epsom salt bath, feels great (both invigorating and relaxing), stimulates the lymphatic drainage system, is good for your skin, makes your skin feel soft and helps your skin absorb the epsom salts.

Natalie

Vowel Lady 02-20-2015 04:38 PM

Dac...
I have atypical Trigeminal neuralgia. Heavy duty pain. I use a compounded cream with lidocaine, Capsaisin and Gabapentin with fairly good results. However, my insurance no longer wishes to cover it's cost and it is crazy expensive.

Does anyone know if Medicare drug benefits cover compounding creams? I must have this medication and can't work due to all the pain.

Also, looking for any other insurance info. Regarding compounded medication.

Thank you.

Synnove 02-20-2015 05:01 PM

HI,
I have Sensory Motor Polyneuropathy and SFN, and my prescription for compound topical cream is: Ketamine 10 %, Lidocaine 10 % and Gabapentin 5 %.
I use this 3 times daily as /if needed in addition to Amitripthyline and Lyrica for neuropathy pain. I use the cream only on days of flares.

beatle 02-22-2015 10:40 PM

PN cream
 
Here's mine:

Ketamine 10%, Clonidine .2%, Amitriptyline 2%, Tetracaine 2%, Gabapentin 6%, base cream

I had tried one before that was not nearly as effective as this formula containing Clonidine. Well worth the $100/jar and lasts a good while.

Vowel Lady 02-25-2015 08:27 AM

Quote:

Originally Posted by beatle (Post 1125544)
Here's mine:

Ketamine 10%, Clonidine .2%, Amitriptyline 2%, Tetracaine 2%, Gabapentin 6%, base cream

I had tried one before that was not nearly as effective as this formula containing Clonidine. Well worth the $100/jar and lasts a good while.


Beatle is that $100 with or without insurance??? Mine is $800 without insurance. How many times a day do you apply the medicine? Please tell me more here or in a pm. Maybe I can use your pharmacy.

beatle 02-25-2015 06:28 PM

Without insurance. That seems to be the going rate around here for a tub that lasts 2-3 months.

when2be 02-25-2015 07:31 PM

compounding cream
 
[Everyone is different first of all.
I use ketamine 15% LAM and its better than any oral medicine for scarred nerve and CRPS in the arm area. I used vit D 50,000 iu to low back before and after lumbar disc surgery and it was better than any oral pain medicine.
Tried a mixture of meds that had amitriptyline, ketamine 8% , balcofen and NSAID and it did nothing. So good luck. The oral medicines don't really help the bad pain in the radial nerve when it gets horrible only the compounded ones do.



QUOTE=dac122;983445]All,

I just read on the TEA site about Dr. Mark Davis, Mayo Clinic compounding a topical amitriptyline and ketamine cream; which lead me to a Google search; which lead me to searching here.

Wow! It looks like all sorts of combinations are being tried with some common themes to fight pain, burning/vascular response, etc.

So I am very interested in trying this. My doctor has never recommended this so I am betting she just needs a starting point and recommendation. She seems willing to try things.

Anyway, I am fortunate that both Gralise 1200mg/day (extended Gabapentin) and 5% Lidoderm patches. Would compounding these together be a good place to start? A better question is how much?

Thanks[/QUOTE]


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