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Old 05-03-2007, 10:01 PM #1
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Anniversary of sorts...

I want no pity, I just want to THANK everyone HERE and on other boards that helped me get to celebrate this 'anniversary'.

Four years ago I started to get numb, 5 weeks later I spent an horrific 14 hours in an ER waiting room before I was seen, then tentatively diagnosed. The 'wait entailed watching other's either leak from 'wounds' or vomit. Another 7 hours before they could find a BED to admit me...with an 'agressive 'PN...went from below the ankle to the KNEE while waiting. Was there, then kicked out after two days of DUH and sent home...BTW on the legs it's now up to my BUTT? and almost to the elbows on the upper limbs. It mite have been a 'sub-acute' onset, but I assure you the PAIN while waiting was ACUTE? [HOW can one both DIP their appendages in frenchy-fry oil, FREEZE them, then plug them into a faulty electric outlet?-It happened] I'd not slept for four days w/the pain...after, I don't think I slept a whole nite for over six months after. It was almost 2 years before I could have dreams again? The meds s/e?s well the hallucinations were the worst.

It's THREE years since the true diagnosis of CIDP/Agressive autoimmune PN was confirmed. A month from now will be my anniversary for IVIG. Thank goodness for this, despite all it's risks!

It's ONE year since my Cancer surgery, and all that has entailed...I understand I've 4 more years on an 'aromatse inhibitor' essentially a post-cancer estrogen blocking therapy [not called, but IS a chemo-therapy] that is supposed to keep cancers from coming back...I can't after the whole neuropathy diagnosis help but NOT be VERY suspicious. Wonder why.

It's ONE week since my diagnosis of Hashimotos's Thryoiditis.. an auto-immune aspect to thyroid, that no one could admit to, cause the basic numbers were 'right'... [A hidden, closet syndrome? DUH?]

Due to all the above I've gone from Osetopenia to POROSIS... Despite all my posts, I am not a totally 'happy camper'? I am not, but am trying to do and learn all I can from you all and other places to make the best durned LEMONADE I can...lo-cal too! Tho I guess the two-3 bone breaks in just the past 2 winters should have been a big red to docs, tho it wasn't, I Became THAT BIG RED FLAG...Speaking UP.. Not to mention the 'other' little fractues!

You all here have been mainstays to both reality and sanity of all this stuff! SOO...HERE are lots of hugs for you!

- j
AND THANKS!
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