Yeah, I'm interested too why the doctor thinks your B-12 level is too high!!!

Try and get your exact B-12 level.

Just got mine today, it's 944 and I'm striving for higher. When I got the blood test last Wednesday, I had been on the methyl B-12 for 3 to 4 days. It was enough to get it in my system, obviously. I had never done a b-12 level before.

Melody

Why? Unfortunately, it's called ignorance.

rose

Hi. I had my ssep which is worse then the emg its like a few minutes of constant shocks 4 times. I also had another emg so will see. I got my b12 level and it was 2000 and that was just from taking the complex b for 3 weeks. So now do I still take the b12? I started back with the b complex cause my syptoms have gotten worse since stopped. I am suppose to go to a pain clinic on Mon but think I may reschedule until I know more cause I fear them making me worse. Just from that emg/ssep I'm in so much pain. Also all the meds have made me sick,the pt made me worse so I don't know what to do about the pain clinic cause what happens if they make me worse since we don't have a dx yet. Any thoughts? I'm looking into other neurology places like that one in Chicago after these results come.

IF it's the PT, you might be overdoing it just a bit..once that 'heavy' feeling starts creeping in...speak up and STOP! As for the pain clinic itself, what are you doing there that's triggering things?
If you read some old posts, you'll find that lots of good, bad reactions can happen, as well as no reaction at all.
The top 'sticky' includes a post listing a large number of medications that could be tried. I truly hope there's one there for you.
I know you've been reading hard and asking lots of very relevant questions. It's a lot to take in while you hurt like the 'Dickens'! Hang in there - j

I'm sure you're right rose - I just thought it would be interesting to hear what he is thinking. Cuz doctors sometimes need "continuing education" in these matters ! Maybe daniella could take a B12 info sheet to him (he'd probably freak out - LOL).

Careful with your B6 levels from a lot of B-complex. Too much and it might cause PN-like symptoms FYI.

"B6 - Doses of up to 50 milligrams of vitamin b6 are generally considered safe; however, taking over 200 milligrams per day of pyridoxine (aka vitamin b6) can cause neurological problems in some individuals." - <<from Vitaminstuff website>>

So extra B12 can be helping while too much B6 is hurting...

BTW, you all should know that I keep saying this cuz I was MEGA-dosing on B-complex before (- rather that B12 only -) and it had an OPPOSITE of good effect!

So now I take the regular B-complex dose, mega-dose the B12 and for me it works great!

Liz

Your 2000 B12 result (on just a B complex) shows that you do not malabsorb severely. You may or may not be headed in that direction.

I would take a reasonable B complex, at least 1000 mcg methylcobalamin B12 at a different time, and you can find an excellent thread about magnesium by mrsd. I believe it is at the vitamin forum.

I wish I had known to take methylcobalamin right away. If I had begun taking 5000 mcg methylcobalamin right away, instead of getting merely adequate treatment after eventually being diagnosed, I would be a lot better off.

rose

Liz,

I'm always interested in what they say. Frustrated usually, but interested. Sure wish more of them would rely less on the pharmaceutical reps for their continuing education

My smart-*** reply was to someone else's question, I think.

rose

Hi. So if I take a b complex, womens 1 a day viatmin, and then seperate take 1000mcg of b12 that would not be too much b12 with by levels and there would be no harm? It has been a week too since the doc said to wait a week. I also take magnesium and glucosamine msn. Also for my blood work I'm skeptical because as I said though at the end of my weight gain when I was severly anorexia/under and ended up in 2 cardiac units my blood work was fine. Like how can that be? So I often am skeptical but what can one do? Thanks again

I have been looking at everything I can see about methylcobalamin for years. I know of absolutely no reason to fear harm if you took dozens of those 1000 mcg methylcobalamins every day. A possibility of help, yes. Danger, no.

It's amazing how ill, even near death, some can be and have a good lab report. I was literally dying for lack of B12, and my CBC results were smack down the middle.

rose

I have to agree with Rose. My doctor looked at me when I her told what was going on with the B-vitamins and said, "We tested you last summer and your levels are fine." I had to point out that the test results aren't always accurate. She agreed after a few moments of thought. Besides which, the proof isn't in the test results but in the fact that my PN is almost gone already.