NeuroTalk Support Groups - Nutrition help for neuropathy?

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- - Nutrition help for neuropathy? (https://www.neurotalk.org/peripheral-neuropathy/18977-nutrition-help-neuropathy.html)

Daniella, yeah I think you are on the right track with that vitamin combination. I wish you success!

Also - this is sort of a "theoretical" question to put out there for everyone.

Are the mega amounts of B12 helping us with PN because we are actually deficient....OR.......and this is just a thought I had........maybe huge amounts of B12 counteracts some sort of underlying problem that has yet to be discovered/identified in the medical community. You know......since docs don't really know how to treat neuropathy, they must not be 100% clear on all the causes/mechanisms.

I'm probably way off the deep end - but it was a thought I had!

Liz

Thank you. I'm going to start what I said cause I'm loosing hope. Since I have started seeing this neuro I have gotten so much worse. The ssep test and emg really flared me up and basically have been crying through the vicadin for the past two days.All the meds,pt,tests,other ideas like the shoe this neuro suggests has made me worse. I'm going to see after the results but feel I need to look for someone else unless this test show something and he has a direction no more guesses.This week my mom is calling the chicago place and sending my reports to other neuro here cause I can't live like this and barely can move. I will agree with Rose. Like I said I was flat lined in the er from such a low palse but a few days before my blood work was fine. I will say at that time I was destructive in my eating disorder but you would stil think blood work from being that malnurished and underweight would of showed something. I don't know what the answer is and that is what is frustrating. I guess finding docs that really dig deep and even if there is a 1 percent chance will go to that length.

Quote:

Originally Posted by nursegirl (Post 98509)

The oral methylcobalamin is not typically absorbed well...you only get about 10% from it.
Injections of cyanocobalamin DAILY--which is what doctors do for the severely depleted patient (many of them elderly) may be done as an emergency effort (typically 7 days or less).

B12 and folate are involved with methylation reactions in the body. If you look up methylation you can see what a huge subject it is.
example:
http://www.lef.org/magazine/mag2000/...ort_b12_1.html

This is complex biochemistry.

Pretty good advice except don't cook with olive oil, it is unstable (in that it changes molecularly when heated) coconut oil and butter are stable to cook with, olive oil great on salads or cold, not heated. And margarine is plastic, butter is real. Changing your lifestyle is the most important thing, watch the food you eat, make sure its mostly plant base, read the book authored by Dr. Thomas Rau regarding eating for an alkaline balance. Exercise too, read up on the no-nos, sugar, soda, white flour, alcohol except on occasion, etc. etc. Take care and keep educating yourself.

Quote:

Originally Posted by Wing42 (Post 95266)

Daniella,

There's a lot on nutrition for PN in the stickies section. My posting there, at http://neurotalk.psychcentral.com/sh...p?t=177&page=2 (scroll down to item's #18 - 20) discusses this topic.

Basically, what helps your heart and general health helps your nerves function and heal. You know the drill:

- whole grain foods (good balance of fiber, good fatty acids, micronutrients, slow absorbing carbs) ,

- lots of soluble fiber from grain, beans, nuts, fruit and vegetables (absorb cholesterol and toxins from the intestine and help maintain healthy intestinal environment),

- little or no concentrated sugar from any source, including fruit and juice (really bad...stresses the liver, the pancreas, directly stresses nerves, increase inflammatory response),

- small amounts daily of high quality protein from beans, fish, eggs, small servings of lean meat (the basic building blocks of cells),

- and as MrsD stressed and me too in the sticky, a good balance of omega-3 and omega-6 oils (reduce plaque, reduce inflammation, basic building block of nerve myelin sheath).

My wife and I used to be meat-and-potatoes folks, but over the years, as runners and fitness buffs we slowly changed over to a healthy diet. Start out by substituting: non-fat milk for regular or low-fat (you get used to it within a week) and then low-fat soy milk. Absolute no-nos starting now are regular sodas (about 10 tsp. of sugar per 12 oz.), sweetened coffee drinks (a vente Frappacino has about 30 tsp. of sugar!), fruit juice (same as soda, except it's fructose which is even more of a shock to you system than sucrose). Slowly switch to healthier meats or tofu, and cut portions. I hardly eat beef or pork anymore, preferring fish, tofu, or a bit of lamb occasionally because its grass fed, lean, and hormone and antibiotic free. Pass on the cake and go for fruity deserts, and eventually fresh fruit for dessert. When you cook, use olive or canola oil. I fry with olive oil almost exclusively. It's especially delicious with eggs, and in baked goods. Use Smart Balance or comparable as a spread, and eventually use NO fats on toast. On toast, my wife and I went from butter to margarine to Smart Balance to just a thin film of Smart Balance to jam only on toast...and then switched from jams or preserves to spreadable fruit that I heap on without guilt. We also went from wheat bread to whole grain breads...now wheat and white bread taste like pablum or mush to us. Your taste changes quickly to conform to what you're eating, so be adventurous and stick with the healthier foods you like.

Diet isn't enough. You also need to exercise. But that's for another thread.

Your body mass index (BMI) should be less than 25, and ideally less than 22 (see http://www.nhlbisupport.com/bmi/ ) . My BMI is 25.1 so thanks for your post. Its a wake-up call for me.

All drugs are toxic to some degree. They stress the liver and kidneys which have to eliminate them. This is something to be aware of in your search for health. As you get healthier, you might be able to reduce your daily drug intake under a doctor's supervision. We tend to add drugs as we age, and continue ones that aren't necessary. Except for carefully calibrated amounts of specific drugs to control life threatening things, we can often safely cut back or eliminate some.

You can cheat every once in a while with a clear conscience because the only angels are in heaven. Negative emotions make our life worse and our PN much worse so don't beat yourself up over any of the above. It's not your fault that you have PN. jAll of us were blind-sided by it.

I do cook with olive oil, you just have to make sure to keep the heat low, not let it burn, then it's fine. I can't use butter (dairy intolerant), can't use vegetable oils (usually contain corn or soy or both, can't have either), not sure I can use coconut oil either. Have been thinking about trying grapeseed oil, just haven't done it yet.