I got an MRI that ruled out MS and and type of leison. Thank god.

Good Luck at your apt tomorrow. Please let us know how u make out.

Mrs. D., My limbs go numb all the time, wake me up at night, sitting at dinner, pretty much anytime. MS was ruled out four years ago, diagnosis of CMT. I always assumed the PN caused it. I do have nerve compressions body-wide, but neuro dismissed them as part of the package after testing for HNPP. In the absence of brain legions, is MS still a possibility? I do have distant relatives with it.

Good luck at the neurologist today Babymama!

The MRI is revealing for MS.... It is really difficult to say, because CMT is so difficult also to diagnose without DNA testing.

The MS presentation is very complex... you could ask at our MS forum..some of the members went years before diagnosis.

Thanks! Am so excited to get answers.

Not all types of CMT are difficult to diagnose without DNA blood testing. There are numerous other ways such as family history, EMG/NCV testing, etc.

Hi Susanne, Don't you have a son? who was diagnosed with CMT? I can't remember if he had DNA blood testing or what. If so, what type of CMT does he have? At any rate, you both would have the same type of CMT even though you both have different symptoms as symptoms vary greatly even within the same family. I know you know this.

Well today was a bit of a disappointment. He was mainly focused on the autonomic disorders and ordered a few more tests. I felt like he was rushed and kept trying to leave the room --which was beyond upsetting. What's worse is he doesn't want to see me until all the tests are complete. One is autonomic testing which they didn't have availability to book until August! So no answers until then? I don't think I can handle this.

Man, I hate the medical industry, and it IS an industry. All they care about is herding cattle through the office. My sister works in a huge Dr.'s office, and rest assured, they care more about the AMOUNT of people who they shuttle through the door than health of patients.

I would not wait that long.

I personally have learned how to fire a doctor.

If I don't like something, I will not say anything until I quietly begin searching for new options, then when I line someone else up I fire the other doctor.

People are too intimidated by dr's and allow them to control the situation, make us feel stupid, and we take it.

I hate the medical industry.

So true!

I wish I could fire him, but my husband won't let me. He's tired of me searching for answers going dr to dr.

I have all over PN again today. It's pretty bad. What could cause it to move all over body and sometimes hit every place? I even feel it down my esophagus.

What is going on with my body????!!!!