PN is never the same and always crazy.

Some days are good. Some ok, some bad. Some days I go several days and feel like the Queen riding high until I crash and burn. What prompts PN to come and go and move around? Who knows.

My symptoms recently changed also. I have no idea why.

Your symptoms are way worse than mine and I really hope you find some answers and relief.

Yes, Kitt, have solid evidence of CMT 2, family history, symptoms, tests. And I just found out that my second son is experiencing numb hands and feet, with clumsiness and toe walking. The eldest one is very affected at 28, about to go on gabapentin.
I was just wondering if they could be co-morbid.

Babymama, I am so sorry to hear about your experience. Diagnosis and tests can take a long time, but to treat you like that is inexcusable.

Thanks guys.

Anyone have luck with naturopaths? I really feel like this is all a toxic response. I'm trying detox: the gluten free, sugar free route to see if it helps. So far not much difference. I wonder if I detox for 6 months I can shake this thing?

It's just that the symptoms came on so suddenly from one day to the next. I also have chronic fatigue now. If I go for a walk, I'm in bed for two days following. And I'm a former athlete. I ran for 15 years. So something bizzare is happening.

I think an integrative physician or holistic MD would be better.
Where you are, there should be several to chose from.

Google Integrative physician... and a site comes up to put in
your zip code.

Thanks. I totally agree. I made an apt with top integrated dr but apt isn't until August! I'm in NYC and the popular drs are so hard to get into. I did also find a toxicologist but apt is July 22.

So it happened again. My visual sensory issues are screwed up and autonomic dysfunction is getting bad again. And it makes me completely nauseous. I forgot to add that I took Vit C same time as magnesium before. And the symptoms started again now after drinking orange juice. Coincidence? Could Vit C release toxins from cells? Also I stopped pumping breastmilk (i was pumping and dumping) the past 3 days and noticed my neuropathy got much much worse over all body. Were the toxins in bm being reabsorbed? How is this for craziness, after the three days I decided to pump and my arm neuropathy got better. My arms have always been one of the most painful places. There has to be a connection.

I stopped all citrus fruit and juice years ago. Makes my arthritis much much worse. Some people just cannot tolerate citrus.

Stop the OJ (and Lemonade) and fresh oranges/lemons for
a while and see how you feel. Two weeks is the typical time for
an elimination diet.

Food allergies and intolerances are very common.

Mrs. D, you have so much info, its seriously appreciated. Thanks.

so I've been up all night so far with my feet/arms/hands burning , but what is worse are the palpitations and heart rhythm. I feel the entire bed shaking from my pounding heart and it either is pounding way too slow, skipping beats, or, by a slight move, racing. What are the best ways to deal with this?

I'm new to these autonomic symptoms and they really freak me out. My neck even hurts from the heartbeat.

I'd report this to a doctor. Take your pulse also and log it.

I had pounding like that when I was having the crisis reaction
to my blood pressure pill! This is a serious symptom IMO.

It would be a good idea to have a blood pressure cuff at home so you can take it when these "attacks" come on. I had to keep a log of pressures 3 x a day for 3 months, when I had my reaction, that my doctor insisted upon.

Also you can get pounding like that after a heavy meal, or alcohol use.

Yes. I already have a blood pressure monitor and out of fear, take my measurements often.

Again I don't drink and I have been tested for wavy metals.