[jjones]

My pain has been really hard to tolerate. It just knocks me out and I'm having a hard time dealing with it. I'm new here... I've been diagnose as idiopathic small fiber sensory PN, though I still have many questions for my neurologist and pain dr, after reading and researching lots (including these boards, thank you). Until lately I'd been doing ok (oh, there have been highs and lows, and in the beginning it was bad, but I've been working hard to move forward and try to stay positive when I can), pulling myself together and keeping a positive attitude, at least for the most part.

But lately, I am having a harder time typing... my brain and my fingers don't seem to be connecting very well. the pain is increasing everywhere... feet, legs, back, shoulders, arms, hands, fingers. And to top it off, now the left side of my face feels half-numb - like it is coming ouit of lidocane after a dentist procedure... not fully numb, but as if it has swollen to twice its size and is half numb.

And the exquisite sensitivity to the lightest touch, even the barest breeze of wind is now causing me such intense, horrifying pain in places. for the past four days I have barely been able to function... sleeping when I can, crying when i can't hold back the tears. I keep telling myself it will get better. this is just a slump. but I'm scared. I'm practicing my breathing and going to my 'happy place' in my mind as much as possible.... Sorry to dump this, I just had to get it out somewhere.