[Beachbum65]

I have been looking online for a good Hospital but I see so much info,just wondering if anybody has tried this route? As it seems other organs are being attacked now heart and/or liver. My Neuro told me he could send me to the Mayo Clinic but they would do the same thing he is doing now so I just don't know what to do. Pain is so bad I thought about going to the hospital here but figured they would think I was just another drug seeker. Thank you!

[ger715]

Originally Posted by Beachbum65

I have been looking online for a good Hospital but I see so much info,just wondering if anybody has tried this route? As it seems other organs are being attacked now heart and/or liver. My Neuro told me he could send me to the Mayo Clinic but they would do the same thing he is doing now so I just don't know what to do. Pain is so bad I thought about going to the hospital here but figured they would think I was just another drug seeker. Thank you!

Other than an assisted living; nursing home, I would doubt if you would be hospitalized for PN. While painful; PN not usually life threatening.

You are right; Mayo will only do additonal testing. There does not seem to be any cure for PN, other than treating the pain. So whatever type you have, for the most part, does not matter.

I saw on another thread, you are also dealing with edema. Alcohol/beer will only increase edema so best to use as little, if any, as possible. Edema can also be a side effect of Lyrica. There have been some on NT that found it necessary to stop using it.

I have been taking either Lasix or Spironlactone (water pill) daily for the past
five years. It does keep the swelling in my feet, ankles and legs down a bit. If I stop taking them; I start to swell again. I have had tests to check if it due to heart problems, etc.; but it is not. I guess possibly another part of PN and side effects. Since I have stasis dermatatis of the feet, ankles and to the knees; compressions stocking only make the Stasis and PN more painful. Elevating the feet as much as possible does help a bit.

Take care,

Gerry

[Beachbum65]

Originally Posted by ger715

Other than an assisted living; nursing home, I would doubt if you would be hospitalized for PN. While painful; PN not usually life threatening.

You are right; Mayo will only do additonal testing. There does not seem to be any cure for PN, other than treating the pain. So whatever type you have, for the most part, does not matter.

I saw on another thread, you are also dealing with edema. Alcohol/beer will only increase edema so best to use as little, if any, as possible. Edema can also be a side effect of Lyrica. There have been some on NT that found it necessary to stop using it.

I have been taking either Lasix or Spironlactone (water pill) daily for the past
five years. It does keep the swelling in my feet, ankles and legs down a bit. If I stop taking them; I start to swell again. I have had tests to check if it due to heart problems, etc.; but it is not. I guess possibly another part of PN and side effects. Since I have stasis dermatatis of the feet, ankles and to the knees; compressions stocking only make the Stasis and PN more painful. Elevating the feet as much as possible does help a bit.

Take care,

Gerry

Thanks Gerry, yes this seems to be the case. I would be more than happy to be guinea pig in a clinical study at this point. I need to go back to the cardiologist and get my heart checked again since its been 15 or so years ago to make sure I don't have an issue there also. I was taking Lyrica for a short time but it did not work for me. I will ask about Lasix when I go back. I swell up when I drink to many beers and salt. So I try to avoid such things but not always successful. Thank you for your reply, all the best to you !

[mrsD]

Lasix is effective but also drastic.

It will deplete magnesium and Vit B1 (in addition to potassium and sodium). As this happens the edema will appear worse over time. I discovered this myself. I use Lasix once a week or less only when my left foot is swollen and too painful to bear.

[ger715]

Originally Posted by mrsD

Lasix is effective but also drastic.

It will deplete magnesium and Vit B1 (in addition to potassium and sodium). As this happens the edema will appear worse over time. I discovered this myself. I use Lasix once a week or less only when my left foot is swollen and too painful to bear.

Unfortunately, i do not seem to have a choice. The doctor has put me on the Spironolactone because it is a potassium sparring med. I also take 10MEQ Klor-Con potassium tablet daily.

Unfortunately, the swelling began within a couple of weeks after Cystocele surgery which took place about 5 years ago. Also, was given a script of 500 mg's Levaquin for 14 days after leaving hospital. This did not help the PN, as well as developing, for the first time in my life, Edema. I tried, on my own, taking the Spironlactone every other day; but swelling got worse; especially left ankle.


Gerry

[daniella]

When I first developed this condition many years ago I looked for an inpatient place for chronic pain in general but could not find one. Then I ended up at Cleveland Clinic day program for pain. I think it was supposed to be 6 weeks but I only lasted 4 days cause my pain was too high and then I was sent to the pain doctor there. Have you seen a pain doctor? Often they do more with treatments then doctor such as a neurologist.