Does anyone suffer from bladder symptoms as a result of their neuropathy?
Like burning, urgency,frequent trips of course W/O infection. And trouble starting/seizing of the muscle. Is this considered autonomic?
Before they knew I had diseased nerves, my symptoms presented in my bladder first..so they kept doing cystoscopies ,thinking I had interstitial cystitis.
I am considering going back on pregabalin to deal with it

Any comments would be appreciated.
I hope everyone is well.

Hi
I have bowel and bladder problems which are classed as autonomic, I get frequent uti's and have the same trouble starting as you have, I have hesitancy all the time and some times I cannot start the flow so have to use a catheter. You mention pregabalin did they help with the problem? I have been on them before and had terrible side effects, sorry I couldn't be of more help.

The types of symptoms you mention are consistent with autonomic dysfunction. However, I have never heard of pregabalin helping with this type of issue.

Pregabalin helps with the burning aspect.
How is autonomic neuropathy diagnosed? The only test I've had specifically is a nerve conduction study which revealed abnormalities in my hands/feet/wherever the test was performed.
However, I have symptoms in so many other places where the test wasn't conducted-so they just keep saying that I have abnormalities in my hands/feet. See how this is a problem !!

I don't follow up with a new neuro until December. I feel discouraged .

Thanks for taking the time to read.

I should have been more clear in my reply. Pregabalin does help some with burning symptoms. I have never heard it being used or help with autonomic dysfunction you described...as in the 'function' aspects of initiating and/or complete emptying of urine.

There are urodynamic studies for some of the symptoms you describe.

http://en.wikipedia.org/wiki/Urodynamic_testing

As for other aspects of autonomic dysfunction/neuropathy and/or dysautonomia, there are various different tests for cardiac related problems as well as GI related issues.

Do you have other symptoms?

Hi :-)
I don't think its ever used for autonomic problems , no.
I have only been diagnosed with peripheral neuropathy but they don't know why I have it, and the burning and pain everywhere but my head.
Used to get insane pressure in my tailbone area, have had the bladder burning and urgency for years off an on. I had the urodynamics test done..it empties completely but doesn't feel like it to my brain.
I have mod-sev bi lateral carpel tunnel , and abnormalities in my nerve conduction study in my feet as well. They burn often.
I've had all tests done , like ultrasounds, STD tests ( for pelvic pain and burning ), had a laparoscopy to remove endometriosis which did not improve the pain. I suspect it has to do with my spine. I've had an MRI on my brain and I do not have MS.
Just wish I had an answer, or at least a way to help the bladder issue. I've been on Detrol and another medication used for incontinence but it didn't help.

Thanks so mucn for trying/listening

Medical problems are discouraging. Try to keep thinking positive. You may have to quit walking until the cramping and pain are under control. I wish you luck with your new neurologist.

Give up walking ? What cramping?
I don't remember writing anything about that : /